Rich Gorman: Understanding Lived Experience in Bleeding Disorders Through Arts-Based Research
Rich Gorman, Assistant Professor in Ethics and Social Science at Brighton and Sussex Medical School, shared Brighton and Sussex Medical School’s post on LinkedIn:
“Delighted to be able to share this.
Bleeding and Belonging is a collection of poetry written by families affected by bleeding disorders.
The poems reflect on the emotional, social, and lived realities of living with a bleeding disorder, exploring how families make sense of both inheritance and identity, whilst navigating uncertainty and resilience.
The collection is available to read online.
Produced in collaboration with the charity Local Families with Bleeding Disorders.
The poetry was also featured in a recent Haemnet podcast ‘Veins, Verse, and Voices.’
The research builds on expertise at Brighton and Sussex Medical School that focusses on exploring how creative, arts-based, and participatory approaches can help us understand people’s experiences of health, care, and medicine.
A very personal project for me, and one that I hope can support efforts to develop more sensitive, patient-centered, bleeding disorders care.
The project has also recently received additional funding from the University of Sussex’s Arts and Humanities Research Council (AHRC) Impact Acceleration Account to produce a print-run of the books enabling the further dissemination of the poetry, and explore how engaging with patient-generated narratives might impact healthcare professionals’ learning and development.
If this is of interest, get in touch!”
Brighton and Sussex Medical School shared a post on LinkedIn:
“A new digital poetry collection, produced through research led by BSMS‘ Dr Rich Gorman, titled ‘Bleeding and Belonging‘, tries to understand more about the hopes, expectations, and worries of people affected by bleeding disorders.
Discover more about the collection.”
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