Peter Zdziarski: Protecting Our Community While Creating a Future Where We Are No Longer Needed
Peter Zdziarski, Founder and Marketing Director of Glanzmann Thrombasthenia Advocacy Network, shared a post on LinkedIn:
“There is a side of patient advocacy that most people never see.
The GRF is often approached by companies looking to partner with our community. Some partnerships create real value for both.
Others ask for data, access, or promotion that simply don’t align with our values.
Our responsibility has always been to protect our community and preserve a safe place where people can share openly without fear of that information being used outside of that space.
Our mission has never been to manage Glanzmann Thrombasthenia forever. It’s to help create a future where organizations like ours are no longer needed, which I believe is the ultimate goal for all disease nonprofits.
We hope future industry partners see the value of independent patient advocacy and the perspective only patients can provide.
Do I sound passionate and protective?
Of course!
I’m not just a board member. I’m a patient. I’ve grown with the community as we have evolved into an amazing place to get answers, sometimes even in real-time!
The best outcomes happen when nonprofits and industry work together while respecting each other’s unique role, especially for the patients we all serve.”
Other posts featuring Peter Zdziarski on Hemostasis Today.
-
Nov 8, 2026, 19:31Anna Kajaste-Rudnitski: Presenting AAV-Induced p53 Signalling in Human CNS Cells at ESGCT 26
-
Nov 8, 2026, 19:29David McIntosh: Cybersecurity Matters, but Blood Availability Remains the Bigger Challenge
-
Nov 8, 2026, 19:26Wenxue Ma: An Integrative Framework for Macrophage-Mediated Therapeutic Resistance in Cancer
-
Nov 8, 2026, 19:25Yildiz Yigit: Presenting a Polycythemia Vera Case at the MPN Subcommittee Session
-
Nov 8, 2026, 18:56Denis Oduor: Strengthening the Regulation and Delivery of Blood Transfusion and Transplantation Services
-
Nov 8, 2026, 18:28Raghavendra Rao: A Narrative Review on Chronic Venous Disease during Pregnancy
-
Nov 8, 2026, 17:57Dhiren Patel: PLD1-Derived Phospholipids Regulate NAD Kinase and ROS Production in Neutrophils
-
Nov 8, 2026, 17:48Andra T.: What Causes Antiphospholipid Syndrome? – Four Steps, not One Cause
-
Nov 8, 2026, 17:38Nasrin Samadi: Can a Normal Clotting Test Be Misleading?