Expanding Haemophilia Detection and Access in Sierra Leone – NNHF
Novo Nordisk Haemophilia and Haemoglobinopathies Foundation shared a post on LinkedIn:
“Impact Spotlight: April
Welcome to the latest spotlight on World Haemophilia Day: We are proud to share a story that speaks directly to this year’s global theme: diagnosis.
Meet Mohamed Bangura
Pictured is Harry Mayeah Koroma, President of Frontiers for Haemophilia and Bleeding Disorders Sierra Leone (left), during a visit in 2024 to young Mohamed, the first haemophilia case ever diagnosed in Sierra Leone, alongside his mother and siblings.
A moment that represents much more than one diagnosis.
What’s changing on the ground?
Since the first NNHF project, the total number of diagnosed haemophilia cases has risen from 32 to 47, a 43% increase in diagnosis rates.
Behind these numbers are tangible actions:
- A core team of champion nurses trained in family tree tracing to identify suspected cases
- A dedicated laboratory technician with expertise in haemophilia diagnosis
- A trained physician providing basic haemophilia care
- Advocacy efforts ensuring the regular availability of diagnostic reagents at Connaught Hospital, made possible with the support of the Mayor of Freetown
Why is this working?
At the heart of this progress is a strengthened patient organisation and a committed team of volunteers driving change from within.
Outreach workshops across Makeni, Kono and Freetown have raised awareness of haemophilia among healthcare professionals and the wider public, fostering earlier identification and a broader understanding of the condition.
Looking ahead
The current project aims to establish multidisciplinary care in the capital and initiate basic and emergency care across three regions, potentially reducing travel time by up to 6 hours for people with haemophilia living outside the city.
Today, we celebrate every diagnosis, every dedicated volunteer and every step forward.
The journey of ‘Impacting care.
Together’ continues.”
Denise Braendgaard, General Manager at Novo Nordisk Haemophilia and Haemoglobinopathies Foundation, shared this post on LinkedIn, adding:
“We are joining today’s World Haemophilia Day celebration and thank wholeheartedly our partners across the world for their exemplary and exceptional dedication every day.”
Stay updated with Hemostasis Today.
-
Apr 19, 2026, 05:35Mohammed Elmourtada Abdulgayoom։ New Perspectives on Anemia of Chronic Disease and Its Treatment
-
Apr 19, 2026, 05:14Mehmet N. Cizmeci: Neuroimaging in Preterm Infants With Intraventricular Hemorrhage Is Evolving
-
Apr 19, 2026, 04:47Test Your Hematology Knowledge with ASH Questions and Answers – ASH
-
Apr 19, 2026, 04:26Priyanka Raheja: Happy World Haemophilia Day from The Royal London Haemophilia Centre
-
Apr 18, 2026, 18:55William Aird: Ferritin as a Probability Signal
-
Apr 18, 2026, 18:54Abdulla A. Damluji: OCEANIC-STROKE Trial Analysis and Its Clinical and Market Implications
-
Apr 18, 2026, 18:29Vasee Moorthy: Join WHO Clinical Trial Course Launch at Stand With Science 2026
-
Apr 18, 2026, 18:28Holly O’Byrne: Improving Hemorrhagic Shock Care With a Patient Centered System
-
Apr 18, 2026, 18:26Sthanu Subramanian: CVST as The ‘Great Masquerader’ with Normal Initial CT