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Maura Boerio: Quantifying Barriers to Care in Vascular Ehlers-Danlos Syndrome
Maura Boerio/LinkedIn
Apr 22, 2026, 17:06

Maura Boerio: Quantifying Barriers to Care in Vascular Ehlers-Danlos Syndrome

Maura Boerio, Second-Year Genetic Counseling Graduate Student at Boston University School of Medicine, shared a post on LinkedIn:

“Last week, I had the privilege of presenting my graduate capstone research which characterized and quantified major barriers in Vascular Ehlers-Danlos Syndrome care.

This was such a rewarding moment to nearly finish out my time in the Boston University Genetic Counseling Program. It was also such a full-circle moment as my passion for clinical genetics was founded in heritable aortopathy research five years ago. I am incredibly grateful to the VEDS community for their collaboration, as well as to my capstone committee for their expert guidance: Jodi Hoffman, Isabella Marin, Victoria Morris, and Sherene Shalhub.

We look forward to pursuing publication of this project.”

Maura Boerio: Quantifying Barriers to Care in Vascular Ehlers-Danlos Syndrome

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