Hassan Raza: Insights from WFH Congress 2026 on Advancing Equity and Community in Global Bleeding Disorders Care
Hassan Raza, Vice President at Hemophilia Foundation, Pakistan, shared a post on LinkedIn:
”It was a pleasure to have been invited to speak at the World Federation of Hemophilia Congress in Kuala Lumpur.
There were delegates from more than 130 countries who gathered under one platform for a shared cause.
The WFH has a strong commitment and history when it comes to promoting dialogue and discussion among all stakeholders.
It showed all of us the value of community engagement and development particularly when it comes to advocacy for shared causes.
The Congress is an opportunity for PwBDs, HCPs and all those working on bleeding disorders to share their experiences and learn from others.
The 4 days were extensive, but extremely important as we learnt about the continuing divide in access to treatment as well as the gap in diagnosis and the need to promote global equity.
The solutions proposed require a global approach.
Some key topics which resonated were the challenges we would most likely continue to face as the world gets more divisive, the access to care for girls and women with bleeding disorders and the continuous need to provide psychosocial support to all for them to excel.
I personally presented on how not to let the disease be an impediment while recognising our privilege and navigate the societal imposed stigmas. The biographical disruption caused by a chronic disease need to be seen as an identity of resilience and perseverance to ensure a biographical repair.
The PwBD track was an ideal way to connect with others who share the same passion as well as understand different perspectives. We connected with old friends and made new as we went along. Pakistan got the President’s award for the best organisation which we owe to all our members and volunteers while we also presented on the gains made in the last two decades.
It has been a collective effort where every member has contributed towards ensuring that all PwBDs irrespective of their identity or location get access to best possible resources. The burden to keep this up is something that was felt by all in their individual and collective capacities.
This wouldn’t have been possible without the support of some of our great friends from WFH whose 24/7 work goes on to have tangible impact on the lives of the people. I’d like to especially thank Cesar Garrido, Assad Haffar, Glenn Pierce, Rana Saifi, Salome Mekhuzla and Emilie Rehel for ensuring that every voice is heard and we are able to ensure sustainable care back home despite the odds.”
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