World Thalassaemia Day: Building Care Around Patients – Novo Nordisk Haemophilia and Haemoglobinopathies Foundation
Novo Nordisk Haemophilia and Haemoglobinopathies Foundation shared a post on LinkedIn:
”On World Thalassaemia Day, we celebrate NNHF partners who are striving to improve care, visibility and support for people living with thalassaemia.
At RS Universitas Airlangga in Surabaya, Indonesia, a joint thalassaemia and haemophilia clinic is changing the way affected people experience care: one coordinated pathway covering diagnosis, treatment, monitoring, and support all in one place.
Across East Java, an estimated 600–700 people are living with thalassaemia.
Each one of them and the families who support them deserves care that is consistent, connected, and built around their needs.
‘Behind every treatment journey is a person trying to go to school, work, care for their family, and plan for the future. Our responsibility is to make care feel less overwhelming, so patients and families know they are not facing their condition alone’, said Dr Pradana Zaky, Haematologist at RS Universitas Airlangga.
Today, we celebrate every concrete action to make better care a reality.
Read directly from Dr Zaky and the multidisciplinary team at the clinic how they are contributing to this progress.”
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