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Shelly Reed: Advocating for HTCs and CDC Funding with the Hemophilia Federation of America

Shelly Reed/LinkedIn

Sep 23, 2026, 12:57

Shelly Reed: Advocating for HTCs and CDC Funding with the Hemophilia Federation of America

Shelly Reed, Senior Training Specialist at HUB International, shared a post on LinkedIn:

“I’m so grateful to have spent the past few days in Washington, D.C., with the Hemophilia Federation of America and the bleeding disorders community advocating for people living with bleeding disorders.

Advocates from all across the nation met with members of Congress and their staff to share our lived experiences and discuss two key priorities that shape critical infrastructure for the bleeding disorders community:

Protect funding for Hemophilia Treatment Centers (HTCs) so they can continue providing comprehensive care and services that help prevent complications and improve access to specialized care.
Restore staffing and core functions at the CDC’s Division of Blood Disorders and Public Health Genomics so critical data, research, and public health work can continue supporting people with bleeding and clotting disorders.

These conversations matter because federal policy and funding decisions have a direct impact on patients’ ability to access the specialized care they need.

I’m grateful for the opportunity to share my story, ask for action, and help ensure the voices of people living with bleeding disorders are part of the conversation.

I’m continually inspired by the advocates who came before us: the people who bravely shared their stories, built relationships, pushed for change, and helped pave the way for the care and opportunities our bleeding disorders community has today.

I’m proud to carry that torch forward and will continue to do so as long as I am able to.

I’m equally inspired by the new advocates stepping into this work and the future generations who will carry it forward.

Advocacy is a continuum, and each of us has a role in making the path a little better for those who come next.

Thank you to Hemophilia Federation of America for bringing this community together and creating space for advocates at every stage of the journey.

Grateful for those who paved the way.

Honored to carry the torch.

And looking forward to seeing what the next generation does with it.”

Shelly Reed