Japan’s Youth Engagement in Hemophilia Care: Where Even the Doctors Get It – HABIT Summit 2025
Brian O Mahony, CEO of Irish Haemophilia Society, former President of WFH and EHC shared an appreciation post on X:
”Paeditrician Dr.Tomofumi and nurse Sakaguchi speaking about youth engagement in haemophilia patient organisation in Japan. Japan has an unusually high number of haematologists and health care professionals with haemophilia – HABIT Summit 2025 .”
At HABIT Summit 2025, paediatrician Dr. Tomofumi and nurse Sakaguchi shared their experience on youth engagement in hemophilia patient organizations in Japan.
A country where, rather ironically, an unusually high number of healthcare professionals also live with hemophilia.
In a rare twist of fate, the experts are not just treating the condition — they are living it!
Maybe that is what it takes to truly understand patient-centered care: medical degrees and factor replacement therapy.
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