Japan’s Youth Engagement in Hemophilia Care: Where Even the Doctors Get It – HABIT Summit 2025
Brian O Mahony, CEO of Irish Haemophilia Society, former President of WFH and EHC shared an appreciation post on X:
”Paeditrician Dr.Tomofumi and nurse Sakaguchi speaking about youth engagement in haemophilia patient organisation in Japan. Japan has an unusually high number of haematologists and health care professionals with haemophilia – HABIT Summit 2025 .”
At HABIT Summit 2025, paediatrician Dr. Tomofumi and nurse Sakaguchi shared their experience on youth engagement in hemophilia patient organizations in Japan.
A country where, rather ironically, an unusually high number of healthcare professionals also live with hemophilia.
In a rare twist of fate, the experts are not just treating the condition — they are living it!
Maybe that is what it takes to truly understand patient-centered care: medical degrees and factor replacement therapy.
Read Hemostasis Today, to be up to date on the World of Thrombosis and Hemostasis.
-
Jul 11, 2025, 19:14ISTH 2025 for Cardiac Surgery: LEX-211 (FARES-II) Trial Shows Promising Results
-
Jul 11, 2025, 16:48GPAS 2025: Shaping the Future of Bleeding Disorder Care
-
Jul 10, 2025, 11:23HTRS Thanks CSL Behring for Its Ongoing Commitment to Research Support
-
Jul 9, 2025, 14:11Join Dr. Bethany Samuelson Bannow for a Virtual Event on Hemostasis and Cancer
-
Jul 9, 2025, 13:59Late-Breaking Insights from ISTH 2025: Rurioctocog Alfa Pegol in PUPs with Hemophilia A
-
Jul 11, 2025, 18:50ICAS Not a Factor: Post-EVT Intensive BP Control within 24 hrs Worsens Outcomes
-
Jul 11, 2025, 17:57Need for Recanalization Strategies Reinforced in P1 and P2: PCA Stroke Poor Outcomes
-
Jul 11, 2025, 15:40Wolfgang Miesbach: How to Better Understand and Explain Gene Therapy of Haemophilia?
-
Jul 11, 2025, 14:53Thrombosis with Thrombocytopenia, Post Vaccination Syndrome
-
Jul 10, 2025, 18:16Sex-Specific Models for ASAH Show No Added Benefit over SMA2SH2ERS risk predictions
-
Jul 7, 2025, 17:08Detecting Anti-Drug Antibodies to Emicizumab: A French Center’s Remarkable Experience
-
Jul 6, 2025, 21:00From Untouchable to Editable: How 21st-Century Gene Editing Breakthroughs Clash with Systemic Barriers
-
Mar 6, 2025, 17:15Olympus Announces Launch of Single-Use Hemostasis Clip
-
Jul 10, 2025, 18:25Dr. Carol Kasper: Honoring the Legacy
-
Jul 8, 2025, 08:26ASH and HVO Collaborate to Expand Hematology Training in LMICs
-
Jul 6, 2025, 15:02Patients as Experts: EHC Calls for Early Involvement in HTA Systems
-
Jul 6, 2025, 14:56Missed ISTH 2025? Congress Daily Has You Covered
-
Jul 6, 2025, 11:48Japan's Youth Engagement in Hemophilia Care: Where Even the Doctors Get It – HABIT Summit 2025