Japan’s Youth Engagement in Hemophilia Care: Where Even the Doctors Get It – HABIT Summit 2025
Brian O Mahony, CEO of Irish Haemophilia Society, former President of WFH and EHC shared an appreciation post on X:
”Paeditrician Dr.Tomofumi and nurse Sakaguchi speaking about youth engagement in haemophilia patient organisation in Japan. Japan has an unusually high number of haematologists and health care professionals with haemophilia – HABIT Summit 2025 .”
At HABIT Summit 2025, paediatrician Dr. Tomofumi and nurse Sakaguchi shared their experience on youth engagement in hemophilia patient organizations in Japan.
A country where, rather ironically, an unusually high number of healthcare professionals also live with hemophilia.
In a rare twist of fate, the experts are not just treating the condition — they are living it!
Maybe that is what it takes to truly understand patient-centered care: medical degrees and factor replacement therapy.
Read Hemostasis Today, to be up to date on the World of Thrombosis and Hemostasis.
-
Feb 16, 2026, 13:40David McIntosh: Concrete Performance Targets for Rare Disease Patients
-
Feb 16, 2026, 13:40Ramy Abdelnaby: Exploring The Timing of Antiplatelet Administration In Minor Stroke Post-Thrombolysis
-
Feb 16, 2026, 13:33Anne Hege Aamodt Congratulates Gisle Berg Helland on PhD Defense About Stroke Outcome MRI and ML Prediction
-
Feb 16, 2026, 13:25Rucha Patil: Delighted to Contribute to The Round Table on Integrated Care of Hemophilia and Hemoglobinopathies
-
Feb 16, 2026, 13:21Quamruz Zafar: Using the FAST Approach Saves Lives and Reduces Long Term Disability
-
Feb 16, 2026, 13:21Christopher Cannon: Factor XIa Inhibition Reduces Stroke by 26% Without Increasing Bleeding
-
Feb 16, 2026, 13:15Rishiraj Sinha: Strengthening Donor Ecosystems to Support Patient Blood Management
-
Feb 16, 2026, 13:13Tarek Dakakni: Mobile Stroke Units Make Treatment Faster, Clearer, and Smarter
-
Feb 16, 2026, 13:03Lamees Alsalehi: Presenting Age, Gender, and Comorbidity Patterns in Stroke at DINC 2026