Marianne Yee: MySCDstory Expands Access to Multilingual Sickle Cell Education
Marianne Yee, Associate Professor of Pediatrics and Pathology and Laboratory Medicine, Division of Pediatric Hematology/Oncology at Emory University School of Medicine, shared Liza-Marie Johnson’s post on LinkedIn:
“This is fantastic. More multi-lingual educational resources are so important!”
Liza-Marie Johnson, Director, The Bioethics Program, Physician-Ethicist, Clincial Researcher at St. Jude Children’s Research Hospital, shared a post on LinkedIn:
“September is Sickle Cell Disease Awareness Month
—a time to elevate the voices and experiences of people living with sickle cell disease and to expand access to clear, meaningful information.
I’m excited to share that MySCDstory is now available in Spanish!
MySCDstory is an interactive resource designed to help teens, young adults, families, and caregivers explore different sickle cell disease treatment journeys, including medication, chronic transfusion therapy, bone marrow transplant, and gene therapy.
By following Nia’s story, visitors can learn how each treatment path might affect health, school, work, family life, and emotional well-being-giving them information and questions to discuss with their healthcare team.
Please explore and share.
French, Portuguese, and Arabic versions are coming soon.
In collaboration with Akshay Sharma, Booster Shot Media, Inc., all the members of our SCD GENE advisory council, and importantly the patients and caregivers who’ve made this work possible.”
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