Michelle Leona Cecil: A Call to Protect Patient Care and The Nation’s Blood Supply for Blood Disorders Community
Michelle Leona Cecil, Community Digital Advocate at MicroHealth, WFH Susan Skinner Memorial Fund Scholarship Advisory and Selection Committee Member, reposted from Hemophilia Federation of America on LinkedIn:
”The potential impact to the Division of Blood Disorders at the Centers for Disease Control and Prevention (CDC) is not just a funding or structural issue… it’s a patient care issue.
For so many in the bleeding disorders community, this division has played a critical role in:
- Supporting data and research that informs care
- Funding programs that help patients access treatment
- Partnering with providers and organizations to improve outcomes
When something like this is at risk, it creates uncertainty, not just for systems, but for people.
People like those of us living with bleeding disorders.
People who rely on consistent, informed, and supported care.
People whose lives quite literally depend on it.
I’ve seen firsthand how important coordinated care, education, and access are.
When those things are threatened, the ripple effects are real, and they are felt quickly.
This is one of those moments where awareness matters.
- Pay attention to what’s happening
- Ask questions
- Reach out to your representatives
- Support organizations doing this work every day
Because decisions made at this level don’t stay at this level, they show up in exam rooms, pharmacies, and everyday life.
If you’re part of this community – patients, caregivers, providers, advocates… your voice matters right now.
Can I count on you to join the Hemophilia Federation of America in taking action?
Can I count on you to share our concerns about the nations blood supply remaining safe?”
Quoting Hemophilia Federation of America‘s post:
”It has been one year since staff from the CDC’s Division of Blood Disorders were placed on administrative leave.
Since April 1, 2025, critical programs serving the bleeding disorders community have lacked the leadership and expertise needed to sustain them.
Join HFA for a national community organizing call to receive updates and hear from partners actively working to reinstate these essential staff and services.
Wednesday, April 8
7:00–8:00 PM EDT
This session will include updates, community perspectives, and opportunities for engagement.”
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