Leveraging Data to Drive Sustainable Care for Haemophilia and Haemoglobinopathies – NNHF
Novo Nordisk Haemophilia and Haemoglobinopathies Foundation shared on LinkedIn:
“How can data help you achieve your goals?
At our online Partner Highlights Meeting, partners from across the Novo Nordisk Haemophilia and Haemoglobinopathies Foundation (NNHF) explored how data-driven advocacy can help make local realities visible, strengthen the case for more sustainable care, and support action for people living with haemophilia and haemoglobinopathies.
Two NNHF-supported activities brought this into focus:
Kenya and Uganda
Dr. Richard Sanya from the African Population and Health Research Center (APHRC) shared insights into the economic and health burden of haemophilia across households, health systems, and society.
India
Dr. M. Joseph John from Christian Medical College Ludhiana presented the STEWARD study, highlighting how cost-of-illness, quality-of-life, and financial protection data can support advocacy and policy dialogue.
A warm thank you to our speakers and to all the partners who joined online and contributed to such an engaging exchange.
The images capture just a few of the many participants who joined the call, which brought together more than 70 people from across NNHF’s global community.
Curious to learn how our programmes are strengthening care through local partnerships and data-driven advocacy?”
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