Nuuman M. Kinyasi: Hemophilia Care in Tanzania – Bridging the Gap with Global Progress
Nuuman M. Kinyasi, Secretary of Dar es Salaam and Coastal Zone at Hemophilia Society of Tanzania, shared on LinkedIn:
”Hemophilia Care in Tanzania: Bridging the Gap with Global Progress
Globally, hemophilia care is entering a new era with non-factor therapies, gene therapy, and extended half-life products, while prophylaxis is now widely adopted as standard care in high-income settings.
In Tanzania, however, significant structural challenges remain:
- Delayed or missed diagnosis due to limited awareness and diagnostic capacity
- Inconsistent availability of clotting factor concentrates
- Heavy dependency on donated products, creating unpredictability in access
- Limited access to prophylaxis
- Weak national registry and surveillance systems
This contrast highlights a critical reality: global innovation is advancing faster than health system readiness in many low-resource settings.
There is an urgent need to strengthen national rare disease strategies, improve diagnostic systems, and ensure sustainable access to treatment.
The gap is not in science – it is in access and health system readiness.
Equity in hemophilia care must be integrated into broader national chronic disease priorities.”
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