Rob Maloney: How Our Camp Brings Relief to Children with Bleeding Disorders and Their Families
Rob Maloney, Chief Executive Officer of Hemophilia of Georgia, shared on LinkedIn:
”We talk a lot about what our camp does for kids.
And we should. It matters on a lot of levels.
It gives them courage, belonging, freedom and so much more.
It’s a chance to stop feeling like the only one.
But one of the most honest things I’ve heard about camp came from a parent.
She didn’t give me a polished speech. She just said, in her own way, that camp gave her a week to breathe.
Parents of children with bleeding disorders do not really clock out.
They are always aware. Always watching. Always running scenarios in the background.
- What if he falls?
- What if she starts bleeding?
- What if the school doesn’t know what to do?
- What if we’re out of town?
- What if I miss something?
Even in good seasons, that kind of vigilance takes a toll.
So when a family trusts our camp and they know the doctors are there, the nurses are there, the counselors understand, and their child is safe, something rare happens.
The child gets to be a child. And the parent gets to exhale.
That is not a small thing.
In rare disease care, we often focus on the patient, and rightly so.
But families carry this too.
Parents carry it in their bodies, in their schedules, in their sleep, in their relationships and the way they move through the world.
Sometimes one of the most meaningful things an organization can offer is not just another meeting.
Sometimes it’s a week where everyone can breathe a little easier.
We can’t wait for camp!”
Stay updated with Hemostasis Today.
-
Apr 4, 2026, 16:11Shiny K. Kajal: Platelet Transfusion Is a Clinical Decision, Not a Reflex
-
Apr 4, 2026, 16:09Khaled Musallam: Revisiting Global Anemia Burden with Revised WHO Hemoglobin Criteria
-
Apr 4, 2026, 16:07Rabi Hanna: RUBY Trial Shows Life-Changing CRISPR Therapy for Sickle Cell Disease
-
Apr 4, 2026, 16:06Hossam El Benawi: Is Ultrasound Alone Enough to Diagnose CVI?
-
Apr 4, 2026, 16:04Seema Dawood: How Vitamin B12 and Folate Deficiency Cause Megaloblastic Anemia
-
Apr 4, 2026, 14:55Thomas Rocco Jr: Adverse Cardiovascular Outcomes Associated with Metabolic Syndrome in Non-Obese Patients with Heart Failure
-
Apr 4, 2026, 14:40Abdul Mannan: A Clinical Framework for Direct Oral Anticoagulant Reversal in Acute Bleeding
-
Apr 4, 2026, 13:07Caitlin Raymond: A Call for Improved Clinical Integration in Transfusion Medicine
-
Apr 4, 2026, 12:54Tareq Abadl: When the Bone Marrow Says I’m Trying