Salmaan Dalvi: Mapping Rare Diseases Across East and Central Africa
Salmaan Dalvi, Vice Chair and Honorary Chapter Head at Connect Souq, Chief Executive Officer(Hon) at RCMRegistry, shared a post on LinkedIn:
“Mapping Rare Diseases Across East and Central Africa
Rare diseases are only ‘rare’ until they are systematically identified and recorded.
Across East, Central and Southern Africa, the absence of structured registry data continues to delay diagnosis, distort prevalence estimates, and limit access to advanced therapies.
Under CATRDR, we are building an ancestry-linked, ethically governed registry framework to support clinical intelligence, research collaboration, and regulated treatment pathways.
Community members, clinicians, and institutions are invited to participate:
Structured data today enables equitable access tomorrow.”
Stay updated with Hemostasis Today.
-
Jul 13, 2026, 23:39Yaariv Khaykin: Whole-Person Care Can Strengthen Stroke Prevention in Patients With Atrial Fibrillation
-
Jul 13, 2026, 22:33ESOC 2026 recordings are now available on eSTEP – European Stroke Organisation
-
Jul 13, 2026, 20:17Julia R. Coleman: Fantastic First Day at ISTH 2026
-
Jul 13, 2026, 20:11Ruah Alyamany: Combination Therapy Improves Quality of Life in ITP
-
Jul 13, 2026, 19:47Brian O Mahony: Two-Year Results of BBM-H901 Gene Therapy Presented at ISTH 2026
-
Jul 13, 2026, 19:37Sara Zalghout: Connecting With Colleagues From All Over the World at ISTH 2026
-
Jul 13, 2026, 18:54Alfonso J. Tafur: New Evidence on Perioperative Anticoagulation in Cancer at ISTH 2026
-
Jul 13, 2026, 18:42Jessica Garcia: Thrombin Generation in Type 3 VWD With an Inhibitor on Emicizumab
-
Jul 13, 2026, 18:19Fionnuala Ní Áinle: High-Quality Evidence for DVT Diagnosis in Pregnancy at ISTH 2026