Sarah-Jane Nkrumah: Giving a Wider Understanding to Those Living With Sickle Cell
Sarah-Jane Nkrumah, Founder of Sickle Cell Unite, posted on LinkedIn:
”One of our recent posts seemed to really resonate with many living with sickle cell, we’ve received many messages on these statements that make them feel. I liked to share them on my profile to give a wider understanding.
These are personal takes we have encountered over the years from those living with Sickle Cell. They may not apply to everybody, as everybody is different, but just a heads up, as it usually is a shared thought.
Over the years, we have heard these things from many warriors; it’s not that they don’t appreciate the support, it’s just that these phrases can come at the wrong times. There are also things that have been said over and over again and are not what people who are in pain may want to hear at that time. This is to help become more aware.
Save this for awareness.
Share so others can also understand.
Comment on something you may be tired of hearing. Repost if you can relate.”

Keep up with Hemostasis Today.
-
Feb 6, 2026, 18:07Anna Kouraba: Laiko Hospital’s Contribution to rFVIII Single Chain Real-World Evidence at EAHAD 2026
-
Feb 6, 2026, 18:02Erik Berntorp and Kathelijn Fischer Honored with The EAHAD 2026 Lifetime Achievement Award
-
Feb 6, 2026, 17:34Raising Awareness of Factor I Deficiency – Hemophilia Welfare Society Karachi Pakistan
-
Feb 6, 2026, 17:29Alexis Guédon: Cardiovascular Risk Profiles and Outcomes in Patients With Giant Cell Arteritis
-
Feb 6, 2026, 17:18William E.: Rho-Kinase Identified as a Novel Target in Post-COVID-19 Vascular Disease
-
Feb 6, 2026, 17:00Merry Mazmanian: Exploring the Development of Biobank Infrastructure in Armenia
-
Feb 6, 2026, 16:58Wolfgang Miesbach: A Hidden Platelet Activation State Bridging Thrombosis and Inflammation
-
Feb 6, 2026, 16:41Lester Leung on Launching a New Era in Preventing Silent Stroke and Dementia
-
Feb 6, 2026, 16:24Roseline d’Oiron on The Challenges of Pregnancy and Childbirth in Glanzmann Thrombasthenia at EAHAD 2026