Zahra Ghasemi: The Human Reality of IVIG Access
Zahra Ghasemi, Pharmacoeconomist, Member of Health Technology Assessment international and Cochrane, shared a post on LinkedIn:
“Different diagnoses, one lifeline: The human reality of IVIG access!
Last year, I shared a deeply personal chapter of my life: my sister’s battle with Guillain-Barré Syndrome (GBS).
While that experience was a sudden, acute crisis, today marks the start of Primary Immunodeficiency Diseases International Awareness Week.
On the surface, these conditions seem worlds apart; one is a rare neurological attack, the other a lifelong immune deficiency, but they are bound together by a single, critical lifeline: IVIG.
Today, a global effort is shining a light on primary immunodeficiency, a group of over 400 rare, chronic disorders in which the body’s immune system is missing or functions improperly.
For millions of PID patients, IVIG is not just ‘medication’; it is their external immune system.
It is the bridge that allows a child to go to school or an adult to sustain a career.
Yet, because these therapies rely entirely on human plasma donation and complex fractionation, ‘access’ remains one of our greatest global health challenges.
Awareness is the first step toward policy change.
Whether we are industry professionals, policymakers, or citizens, we must advocate for a world in which ‘plasma, the liquid gold’ is accessible to every patient who relies on it to survive.”
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