Connecting Haemophilia Centres, Certifying Treaters, and Improving National Data in Romania – EHC
EHC – European Haemophilia Consortium shared a post on LinkedIn:
“Day 2 of the EHC country visit to Romania took the delegation to the Comprehensive Haemophilia Care Centre at the Fundeni Clinical Institute in Bucharest.
After yesterday’s roundtable at Parliament, EHC President Tatjana Markovic, Vice-President William McKeown, and Steering Committee Member Marius Tanase met the clinical team and toured the adult clinic, laboratory, paediatric unit, and outpatient clinic.
Huge thanks to Professor Daniel Coriu, Centre Director and Head of the Romanian Haematology Association, for hosting the delegation, and to Dr Melen Brinza, Dr Ana-Maria Marcu, and Sorina Hincu for showing them their work.
Discussions covered how to bring treaters and centres across Romania closer together, how to certify centres and treaters, and how a national registry with its own secretariat could improve data and services.
Romania has come a long way in recent years, and there is real reason to be optimistic about what comes next. Thank you to the Fundeni team and Asociația Română de Hemofilie (our Romanian National Member Organisation) for their openness and their commitment to people with bleeding disorders.”
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