Fiona Robinson: NBDF Webinar Explores the Practical Challenges of Hemophilia Gene Therapy
Fiona Robinson, Medical Writer and Editor at Communications Fiona Robinson, shared National Bleeding Disorders Foundation’s post on LinkedIn:
“Last week we learned about the promise of gene therapy, so can everyone with hemophilia just get it?
Of course, it’s not that simple.
In this week’s National Bleeding Disorders Foundation Wednesday Webinar Dr Diane Nugent, Social Worker Jessica Wulf, and Jeff Blake from Hemophilia Alliance will discuss some of the Challenges of Gene Therapy, including eligibility, access, insurance, advocacy, and psychosocial aspects.
Bring your questions for the live Q and A!
2PM ET, Nov 4.”
National Bleeding Disorders Foundation shared a post on LinkedIn:
“The Challenge of Gene Therapy.
Speakers: Diane Nugent, Jeff Blake, Jessica Wulf, LMSW
Gene therapy offers exciting possibilities for people living with hemophilia B, but the journey to treatment is long, complex, and full of obstacle.
Join our expert panel as we discuss eligibility requirements, insurance challenges, advocacy efforts, and the psychosocial factors that influence treatment decisions.
Attendees will gain practical insights and resources to help navigate the evolving gene therapy landscape.
Plenty of time will be alloted for a live Q and A.”
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