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NBDF

Fiona Robinson: ''Living with Glanzmann Thrombasthenia'' Live on Next Week's NBDF Wednesday Webinar
Jun 30, 2026, 16:20 | Voices
Fiona Robinson: ''Living with Glanzmann Thrombasthenia'' Live on Next Week's NBDF Wednesday Webinar
Fiona Robinson, Consultant, Medical Writing and Editing, at Communications Fiona Robinson, reposted from NBDF on…
Fiona Robinson: New Ways to Engage Young People with Bleeding Disorders on the Upcoming NBDF Wednesday Webinar
Jun 16, 2026, 13:46 | Voices
Fiona Robinson: New Ways to Engage Young People with Bleeding Disorders on the Upcoming NBDF Wednesday Webinar
Fiona Robinson, Consultant, Medical Writing and Editing, at Communications Fiona Robinson, reposted from NBDF on…
Fiona Robinson: What exactly Are Rebalancing Agents for Bleeding Aisorders?
May 27, 2026, 17:51 | Voices
Fiona Robinson: What exactly Are Rebalancing Agents for Bleeding Aisorders?
Fiona Robinson, Consultant, Medical Writing and Editing, at Communications Fiona Robinson, reposted from National Bleeding…
Nominate a Bleeding Disorders Community Hero Making a Difference - NBDF
Apr 8, 2026, 14:58 | Voices
Nominate a Bleeding Disorders Community Hero Making a Difference - NBDF
National Bleeding Disorders Foundation shared a post on LinkedIn: ''Awards Honoring NBDF Community Advocates, Volunteers,…
Strengthening Research and Partnerships at THSNA 2026 - NBDF
Mar 26, 2026, 16:38 | Voices
Strengthening Research and Partnerships at THSNA 2026 - NBDF
National Bleeding Disorders Foundation shared a post on LinkedIn: "That’s a wrap on THSNA 2026!…
Michael Recht Appointed Chief Medical and Scientific Advisor to NBDF’s Pathway to Cures
Mar 16, 2026, 18:54 | Voices
Michael Recht Appointed Chief Medical and Scientific Advisor to NBDF’s Pathway to Cures
National Bleeding Disorders Foundation (NBDF) shared a post on X: ''Michael Recht, MD, PhD, MBA,…
Advocating for the Bleeding Disorders Community at NBDF 2026 Washington Days - Hemophilia of Georgia
Mar 9, 2026, 14:10 | Voices
Advocating for the Bleeding Disorders Community at NBDF 2026 Washington Days - Hemophilia of Georgia
Hemophilia of Georgia shared a post on LinkedIn: ''Hemophilia of Georgia (HoG) continued its advocacy…
Advancing Education, Access, and Community Support During Bleeding Disorders Awareness Month - NBDF
Mar 2, 2026, 15:27 | Voices
Advancing Education, Access, and Community Support During Bleeding Disorders Awareness Month - NBDF
National Bleeding Disorders Foundation - NBDF shared a post on LinkedIn: "March is Bleeding Disorders…
Open-Label Extension Study of Marstacimab: Pfizer Has Reported a Fatal Event
Jan 16, 2026, 04:11 | Insight
Open-Label Extension Study of Marstacimab: Pfizer Has Reported a Fatal Event
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on LinkedIn: "Safety Signal:…
Fiona Robinson Invites You to NBDF Webinar on Research Grants
Jan 10, 2026, 08:41 | Insight
Fiona Robinson Invites You to NBDF Webinar on Research Grants
Fiona Robinson, Consultant, Medical Writing and Editing, at Communications Fiona Robinson, reposted from National Bleeding…
Leonard Valentino on The Substantial Impact of Michael Recht on the NBDF Legacy
Dec 22, 2025, 22:30 | Voices
Leonard Valentino on The Substantial Impact of Michael Recht on the NBDF Legacy
Leonard Valentino, Former President and CEO of NBDF, President of WFH USA, reposted from Michael…
Novo Nordisk Submits Biologics License Application for Mim8 (Denecimig) in Hemophilia A
Oct 31, 2025, 14:21 | Drugs
Novo Nordisk Submits Biologics License Application for Mim8 (Denecimig) in Hemophilia A
National Bleeding Disorders Foundation (NBDF) shared on LinkedIn: ''Novo Nordisk has submitted a Biologics License…
Wolfgang Miesbach: Proud to Share This Commentary Just Accepted in Research and Practice in Thrombosis and Haemostasis
Oct 31, 2025, 01:59 | Insight
Wolfgang Miesbach: Proud to Share This Commentary Just Accepted in Research and Practice in Thrombosis and Haemostasis
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared on LinkedIn: "Advancing Care for Women…
Allison Wheeler Rallies Support for Magdalena Lewandowska's NYC Marathon Run Benefiting NBDF
Oct 18, 2025, 16:51 | Voices
Allison Wheeler Rallies Support for Magdalena Lewandowska's NYC Marathon Run Benefiting NBDF
Allison Wheeler, Associate Professor, Research Director at Washington Center for Bleeding Disorders, shared on LinkedIn:…
NBDF: Proud to See Our Own Teri F Willey Representing the Foundation in the Funding Rare Disease Research Webinar
Oct 4, 2025, 09:55 | Voices
NBDF: Proud to See Our Own Teri F Willey Representing the Foundation in the Funding Rare Disease Research Webinar
National Bleeding Disorders Foundation (NBDF) reposted from Fondation Ipsen on LinkedIn: ''NBDF is proud to…
Sundar Selvaraj - A Scientist Advancing Hemophilia A Research While Living with Severe FXIII Deficiency and VWD 2M
Sep 26, 2025, 10:44 | Voices
Sundar Selvaraj - A Scientist Advancing Hemophilia A Research While Living with Severe FXIII Deficiency and VWD 2M
National Bleeding Disorders Foundation (NBDF) shared on LinkedIn: ''Researcher. Advocate. Dad. Sundar Selvaraj brings a…
Kyle Davis - A Valued Member of The LEE Research Advisory Council
Sep 25, 2025, 11:18 | Organizations
Kyle Davis - A Valued Member of The LEE Research Advisory Council
National Bleeding Disorders Foundation (NBDF) shared on LinkedIn: ''Dr. Kyle Davis is a board-certified Pediatric…
Marstacimab Shows 93% Reduction in Treated Bleeds in its Phase 3 Trial
Sep 11, 2025, 13:37 | Drugs
Marstacimab Shows 93% Reduction in Treated Bleeds in its Phase 3 Trial
National Bleeding Disorders Foundation shared on LinkedIn: ''Promising news for the hemophilia community! Pfizer’s HYMPAVZI™…
NBDF Launches Tools to Support Students with Bleeding Disorders in School
Sep 1, 2025, 08:06 | Organizations
NBDF Launches Tools to Support Students with Bleeding Disorders in School
The National Bleeding Disorders Foundation (NBDF) shared a post on X: ”Back to school? No…
Honoring Leadership: Neil Frick Resource Center Launches at NBDF
Sep 1, 2025, 07:51 | Organizations
Honoring Leadership: Neil Frick Resource Center Launches at NBDF
The National Bleeding Disorders Foundation (NBDF) shared a post on X: We’re proud to announce…
Slow Uptake of Hemophilia Gene Therapies: Challenges in Access and Adoption
Aug 31, 2025, 09:45 | Insight
Slow Uptake of Hemophilia Gene Therapies: Challenges in Access and Adoption
National Bleeding Disorders Foundation  (NBDF) shared on X: ”A new forum piece in Research and…
World Federation of Hemophilia Celebrates Glenn Pierce’s Lifetime Achievement Award from NBDF
Aug 24, 2025, 08:39 | Insight
World Federation of Hemophilia Celebrates Glenn Pierce’s Lifetime Achievement Award from NBDF
  World Federation of Hemophilia (WFH) shared on X: ''Congratulations to WFH’s VP Medical, Glenn…
Len Valentino Named Researcher of the Year at BDC 2025
Aug 23, 2025, 08:28 | Insight
Len Valentino Named Researcher of the Year at BDC 2025
World Federation of Hemophilia (WFH) shared on X: ”Congratulations to Len Valentino for winning the…
Protecting Heart and Brain Health: Stroke Prevention in Women with Bleeding Disorders: NBDF
Aug 23, 2025, 07:48 | Voices
Protecting Heart and Brain Health: Stroke Prevention in Women with Bleeding Disorders: NBDF
National Bleeding Disorders Foundation shared an important post on LinkedIn: "Women with bleeding disorders face…
WFH President Cesar Garrido Expresses Gratitude to the National Bleeding Disorders Foundation at BDC 2025
Aug 22, 2025, 03:56 | Organizations
WFH President Cesar Garrido Expresses Gratitude to the National Bleeding Disorders Foundation at BDC 2025
World Federation of Hemophilia (WFH) shared on LinkedIn: ''WFH President, Cesar Garrido thanked the National…
National Research Blueprint Evolves into Bleeding Disorders Research Collaborative
Aug 17, 2025, 07:14 | Insight
National Research Blueprint Evolves into Bleeding Disorders Research Collaborative
The National Bleeding Disorders Foundation (NBDF) shared a post on X: ''The National Research Blueprint…
Watch Now: NBDF Debuts ‘'Women’s Wellness in Bleeding Disorders’'
Aug 13, 2025, 09:44 | Organizations
Watch Now: NBDF Debuts ‘'Women’s Wellness in Bleeding Disorders’'
National Bleeding Disorders Foundation (NBDF) shared an inviting post on LinkedIn: ''Our latest Collaborative Learning…
NBDF: Think You Know Bleeding Disorders? Prove It on August 21!
Aug 12, 2025, 16:01 | Organizations
NBDF: Think You Know Bleeding Disorders? Prove It on August 21!
National Bleeding Disorders Foundation (NBDF) shared an inviting post on LinekedIn: ''Think you know bleeding…
Move Smart Hurt Less, Physical Therapy Tips: Join NBDF Interactive Session
Aug 11, 2025, 00:52 | Organizations
Move Smart Hurt Less, Physical Therapy Tips: Join NBDF Interactive Session
National Bleeding Disorders Foundation (NBDF) shared an inviting post on LinkedIn: ''Protect your joints and…
WFH Throwback: WHO 25th Expert Committee Meeting on Selection and Use of Essential Medicines
Aug 10, 2025, 06:59 | Organizations
WFH Throwback: WHO 25th Expert Committee Meeting on Selection and Use of Essential Medicines
World Federation of Hemophilia (WFH) recently shared on LinkedIn: ''Today, the WFH is participating in…
Join the Bleeding Disorders Community at BDC 2025!
Aug 7, 2025, 05:02 | Organizations
Join the Bleeding Disorders Community at BDC 2025!
National Bleeding Disorders Foundation (NBDF) shared a post on X: “It’s not too late to…
Dawn Rotellini Champions Women’s Health in Bleeding Disorders
Aug 6, 2025, 17:21 | Organizations
Dawn Rotellini Champions Women’s Health in Bleeding Disorders
Dawn Rotellini, Chief Operating Officer at National Bleeding Disorders Foundation, shared reposting from NBDF on…
National Health Center Week – Recognizing the Vital Role of HTCs in Specialized Care
Aug 4, 2025, 05:47 | Insight
National Health Center Week – Recognizing the Vital Role of HTCs in Specialized Care
National Bleeding Disorders Foundation (NBDF) shared a post on X: “This week we celebrate National…
Women with Hemophilia Finally Heard: “DISMISSED” Premieres August 22
Aug 4, 2025, 05:33 | Insight
Women with Hemophilia Finally Heard: “DISMISSED” Premieres August 22
Patrick James Lynch, the CEO of Believe Limited, recently posted on Linkedin: “Women with hemophilia have…
Leonard Valentino On The Bleeding Disorders Research Collaborative
Jul 30, 2025, 14:04 | Science
Leonard Valentino On The Bleeding Disorders Research Collaborative
Leonard Valentino, Former President and CEO of NBDF, President of WFH USA, recenlty shared a…
Investigational Therapies for VWD and Glanzmann Thrombasthenia Unveiled at ISTH 2025: 2 Promising Paths Forward
Jul 28, 2025, 15:18 | Science
Investigational Therapies for VWD and Glanzmann Thrombasthenia Unveiled at ISTH 2025: 2 Promising Paths Forward
National Bleeding Disorders Foundation (NBDF) shared a post on LinkedIn: ''Big strides in bleeding disorders…
NBDF Presents Resilience Across Borders: Stories of Strength and Hope
Jul 28, 2025, 13:42 | Organizations
NBDF Presents Resilience Across Borders: Stories of Strength and Hope
National Bleeding Disorders Foundation (NBDF) shared an encouraging post on X: ''Join us for an…
Register Now! NBDF Hosts Its 77th Bleeding Disorders Conference
Jul 21, 2025, 16:43 | Organizations
Register Now! NBDF Hosts Its 77th Bleeding Disorders Conference
The National Bleeding Disorders Foundation (NBDF) shared an inviting post on X: ''Join us for…
A 200+ Year Historical Review of Women and Hemophilia: Shifting Perspectives
Jul 15, 2025, 16:42 | Voices
A 200+ Year Historical Review of Women and Hemophilia: Shifting Perspectives
National Bleeding Disorders Foundation (NBDF) recently posted on X: ''A new review traces 200+ years…
2025 ASH ISTH NBDF WFH monitoring report Confirms Strength of 2021 VWD Diagnosis and Management Guidelines
Jul 13, 2025, 18:18 | Science
2025 ASH ISTH NBDF WFH monitoring report Confirms Strength of 2021 VWD Diagnosis and Management Guidelines
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of ISTH,…
FDA Approves ConcizuTrace™ ELISA Companion Diagnostic for 2024 Concizumab Therapy in Hemophilia
Jul 10, 2025, 17:59 | Drugs
FDA Approves ConcizuTrace™ ELISA Companion Diagnostic for 2024 Concizumab Therapy in Hemophilia
The National Bleeding Disorders Foundation (NBDF) shared a post on X: ''The FDA has approved…
A Game-Changer by Roche and Chugai | NXT007: For Hemophilia A, Without Inhibitors
Jul 5, 2025, 17:47 | Drugs
A Game-Changer by Roche and Chugai | NXT007: For Hemophilia A, Without Inhibitors
The National Bleeding Disorders Foundation (NBDF) posted in appreciation of Roche and Chugai on X:…
Phil Gattone on ''One Big Beautiful Bill Act'': NBDF will continue to advocate vigorously
Jul 3, 2025, 16:09 | Organizations
Phil Gattone on ''One Big Beautiful Bill Act'': NBDF will continue to advocate vigorously
National Bleeding Disorders Foundation (NBDF) shared a statement post on X: ''Congress passed the 'One…
Do Not Miss NBDF ExpertTalk! Pediatric Bleeding Disorders: Insights from the Frontlines
Jul 3, 2025, 15:27 | Organizations
Do Not Miss NBDF ExpertTalk! Pediatric Bleeding Disorders: Insights from the Frontlines
National Bleeding Disorders Foundation recently shared an inviting post on X: ''Join us as experts…
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