Addressing Underdiagnosis and Care Inequities in Women and Girls with Bleeding Disorders – WFH
World Federation of Hemophilia shared a post on LinkedIn about a recent article by Donna Coffin et al, published in Haemophilia:
“Women and girls with bleeding disorders are still underdiagnosed and underserved
New research published in Haemophilia, based on a global survey of WFH National Member Organizations, reveals persistent gaps in diagnosis, access to care, and specialized services for women and girls worldwide.
Delayed diagnosis, limited data, and socioeconomic and cultural barriers continue to stand in the way of equitable care.
The findings underline the need for stronger awareness, better data, and expanded multidisciplinary services to close these gaps.”
Title: Key Findings From the World Federation of Haemophilia National Member Organization Survey on Women and Girls With Bleeding Disorders
Authors: Donna Coffin, Yannick Collé, Roshni Kulkarni, Salome Mekhuzla, Cassie Osejo, Anupama Pattiyeri, Lauren Phillips, Dawn Rotellini, Ellia Tootoonchian, Andreina Tovar, Tahira Zafar, Baiba Ziemele
Read the Full Article on Haemophilia.
Roshni Kulkarni, Professor Emeritus at Michigan State University, shared this post adding:
“So honored to be a coauthor on this most important paper.
Thanks to all the NMOs and thanks to WFH for supporting Women and Girls with bleeding disorders across the world.
The WFH annual global survey across the years has shown a steady increase in the number of women who are served”
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