Wolfgang Miesbach։ Highlighting the Social and Psychological Impact of Factor VII Deficiency
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on LinkedIn:
”Living with rare bleeding disorders often means living with uncertainty – and the poster ‘Living with Factor VII deficiency: Data from the FVIID 360 study‘ at EAHAD 2026 makes that reality visible.
Kate Khair, together with Simon Fletcher, Matthew Boyton and Michael Holland, led the FVIID 360 project, which captured detailed data from 100 people with FVII deficiency using validated bleeding assessment tools and QoL measures. Their results show frequent mucosal and joint bleeds, heavier menstrual bleeding in women, under‑use of prophylaxis and clear links between higher bleed rates and worse self‑reported well‑being.
What stands out is how strongly patients describe the social and psychological impact: lost work or education, limits on physical activity, pain, and feelings of isolation, even when factor levels appear ‘mild.’ These insights underline the need for individualized prophylaxis and for future therapies to target not just clotting times but everyday life with FVII deficiency.
Huge congratulations to Kate Khair and colleagues for bringing this under‑represented community into the spotlight and for having this scientific work ranked among the top posters at EAHAD 2026.”
Find more posts featuring Wolfgang Miesbach on Hemostasis Today.
-
Apr 22, 2026, 17:19Ralf Ludwig: Bridging Population Data and Immunology in Inflammatory Diseases
-
Apr 22, 2026, 17:15Giacomo Rossi: Genetic Study Reveals 10 Genes in Hyperemesis Gravidarum
-
Apr 22, 2026, 17:06Maura Boerio: Quantifying Barriers to Care in Vascular Ehlers-Danlos Syndrome
-
Apr 22, 2026, 17:05Kausik Ray։ Metabolically Healthy Obesity Is Being Re-Evaluated as a High-Risk Condition Needing Closer Attention
-
Apr 22, 2026, 16:58Baba-Jallah Epega: Sickle Cell Resilience Through Patient Voices and Clinical Insight
-
Apr 22, 2026, 16:44Francisco Chacón-Lozsán: Cytokine Storm Is Not Just Inflammation, It Is Organ Failure in Motion
-
Apr 22, 2026, 16:29CBTH 2026 Opens with First Workshop in Germany – European Hematology Association
-
Apr 22, 2026, 16:16Christopher Pittman: Superficial Venous Disease Needs Arterial-Level Follow-Up
-
Apr 22, 2026, 15:47Mohammed Alo: Being Fit Does Not Protect You from High LDL