Alessandra Bosch: First Comprehensive Swiss Haemophilia Registry Report Now Published
Alessandra Bosch, Clinician Scientist at University of Zurich, Attending Physician (Senior Consultant) at Kinderspital Zürich, shared a post on LinkedIn about a recent article she and her colleagues co-authored, published in Haemophilia:
“Incredibly proud to share a milestone for the Swiss Haemophilia Network: our first comprehensive registry report is now published in Haemophilia!
This has been a true team effort across 11 haemophilia treatment centres in Switzerland, made possible by hundreds of patients and their families, dedicated haemophilia nurses, clinical staff who have contributed data year after year since 2015, and of course funding from the industry.
With 929 patients and nearly 5,000 patient-years of follow-up, the Swiss Haemophilia Registry gives us a clear picture of how bleeding disorder care in Switzerland has evolved – and how much it has improved!
We still have work to do: expanding the registry to better represent women with bleeding disorders, VWD, and rare bleeding disorder patients is a key priority going forward.
Thank you to everyone who made this possible.”
Title: The Swiss Haemophilia Registry – Report From the First 8 Years
Authors: Alessandra Bosch, Lorenzo Alberio, Pierre Fontana, Lukas Graf, Johanna A. Kremer Hovinga, Nicolas von der Weid, Mattia Rizzi, Manuela Albisetti
Stay updated on all scientific advances with Hemostasis Today.
-
May 2, 2026, 10:24From Gene Mutation to Clot Risk in Factor V Leiden – ICHCC
-
May 2, 2026, 10:15Omid Seidizadeh: Enhancing Diagnostic Strategies for von Willebrand Disease Worldwide
-
May 2, 2026, 10:09Scott McLean: Fewer Bleeds Do Not Always Mean a Better Life in Bleeding Disorders
-
May 2, 2026, 10:01Islam Arid: A Practical Guide to ECMO in Modern Intensive Care
-
May 2, 2026, 09:54The West Virginia Department of Health Announces the Stroke Smart West Virginia Initiative
-
May 2, 2026, 09:38Kim Gannon: Stroke Is Treatable and Outcomes Are Dramatically Better When We Act Fast
-
May 2, 2026, 09:19Rajan Gadhia: Many Strokes Are Preventable with Awareness, Early Recognition, and Timely Action
-
May 2, 2026, 08:34Gary Kurdziel: Closing the Gap Between Onset and Insight in Stroke Care
-
May 2, 2026, 08:25Jackie P Hunter: Black Women, Stroke Risk, and a Very Real Awareness Gap