Maia Meier: Are Women With Bleeding Disorders Being Underdiagnosed?
Maia Meier, Clinical Exercise Physiologist at Maia Letitia Fitness, shared a post on LinkedIn:
“Earlier this week, EHC – European Haemophilia Consortium shared an important perspective on the diagnosis gap for women with bleeding disorders – and why it matters.
Is the diagnosis gap accidental?
No – and it has a history.
For decades, haemophilia was understood as a condition affecting men only.
Women were labelled ‘carriers’ – relevant to family history, but not patients in their own right.
That framing shaped medical education, clinical pathways, and treatment centres.
Its effects are still felt today.
1 in 5 women who see a gynaecologist for heavy menstrual bleeding have a bleeding disorder – yet many remain underdiagnosed, because the question is often never asked.
The barriers are well known:
- Symptoms are normalised
- Family history is often missed
- Testing isn’t guaranteed
- Awareness is inconsistent across specialities
Change is happening – slowly.
In 2021, the ISTH updated classification, recognising women based on their own bleeding history – not just the label of ‘carrier.’
Long overdue.
When women are identified and followed, 94% of pregnancies can be managed with known carrier status before conception.
That outcome is possible – it’s just not yet the norm.
In June, I climb Mont Blanc – the first step in a journey across all seven summits, using each climb as a platform to raise awareness for earlier diagnosis and better care.
In partnership with EHC – European Haemophilia Consortium , we’ll be sharing stories and perspectives from across Europe.
Follow, donate and learn more on Project Elevate Her.
Data and insights in collaboration with European Haemophilia Consortium.”
Stay updated with Hemostasis Today.
-
Jul 13, 2026, 23:39Yaariv Khaykin: Whole-Person Care Can Strengthen Stroke Prevention in Patients With Atrial Fibrillation
-
Jul 13, 2026, 22:33ESOC 2026 recordings are now available on eSTEP – European Stroke Organisation
-
Jul 13, 2026, 20:17Julia R. Coleman: Fantastic First Day at ISTH 2026
-
Jul 13, 2026, 20:11Ruah Alyamany: Combination Therapy Improves Quality of Life in ITP
-
Jul 13, 2026, 19:47Brian O Mahony: Two-Year Results of BBM-H901 Gene Therapy Presented at ISTH 2026
-
Jul 13, 2026, 19:37Sara Zalghout: Connecting With Colleagues From All Over the World at ISTH 2026
-
Jul 13, 2026, 18:54Alfonso J. Tafur: New Evidence on Perioperative Anticoagulation in Cancer at ISTH 2026
-
Jul 13, 2026, 18:42Jessica Garcia: Thrombin Generation in Type 3 VWD With an Inhibitor on Emicizumab
-
Jul 13, 2026, 18:19Fionnuala Ní Áinle: High-Quality Evidence for DVT Diagnosis in Pregnancy at ISTH 2026