Nathan Connell: Achieving Equity in Hemophilia Care by Reframing the Disease as Affecting Both Sexes
Nathan Connell, Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital, shared a post on LinkedIn about a recent article by Alkistis Adramerina and Marina Economou, published in Journal of Clinical Medicine:
”Hemophilia is still often widely perceived as a ‘male disease,’ but this review challenges that paradigm.
Emerging data show that a substantial number of women and girls have clinically meaningful factor deficiencies and bleeding symptoms, yet remain underdiagnosed and undertreated.
The article highlights several critical gaps:
- Female patients are less likely to be followed in specialized hemophilia treatment centers
- Gynecologic and obstetric bleeding adds unique, underappreciated morbidity
- Evidence guiding management is limited due to underrepresentation in clinical trials and other types of studies
- Standard treatment principles apply, but care delivery is inconsistent
The authors argue for a shift toward proactive identification (including family-based screening), multidisciplinary care models, and intentional inclusion of women and girls in research.
Bottom line: Achieving equity in hemophilia care requires reframing the disease as affecting both sexes – and redesigning systems to reflect that reality.”
Title: Hemophilia’s Overlooked Female Face
Authors: Alkistis Adramerina, Marina Economou
Read the Full Article on Journal of Clinical Medicine
Stay updated on all scientific advances with Hemostasis Today.
-
Aug 14, 2026, 11:14Yohan Santin: How Lysosomal Dysfunction Drives Cardiac Aging
-
Aug 14, 2026, 11:06Nicolas Schommer: When Neutrophils Turn Metabolic Stress Into Organ Injury
-
Aug 14, 2026, 10:49Pablo Corral: Can One Infusion Lower LDL for Years
-
Aug 14, 2026, 08:17Maha Othman: Celebrating Research and Collaboration at the Sinclair Cancer Research Institute 2026 Annual Retreat
-
Aug 14, 2026, 06:26Delivering Gene Therapy in Hemophilia – ISTH
-
Aug 13, 2026, 18:39Lukas Röthlisberger: Real-World Evidence on Effectiveness and Safety of Rivaroxaban in Children
-
Aug 13, 2026, 18:36Soner Yilmaz: Blood Safety in Türkiye Through More Than 22.5 Million Blood Donations
-
Aug 13, 2026, 18:31Muthukumarasamy Raja: FDA Approval of EZPLAZ Marks a Breakthrough in Emergency Plasma Care
-
Aug 13, 2026, 18:29Peter Zdziarski: Protecting Our Community While Creating a Future Where We Are No Longer Needed