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The World Federation of Hemophilia

Cathy Harrison: Hemophilia Nurses Advocating for People Living With Bleeding Disorders
Mar 11, 2026, 14:26 | Voices
Cathy Harrison: Hemophilia Nurses Advocating for People Living With Bleeding Disorders
Cathy Harrison, WFH nurses committee Chair, shared a post on LinkedIn: "This weekend was our annual UK…
Clear Recommendations for Daily Management and Family Support in Hemophilia A - WFH
Feb 20, 2026, 16:27 | Voices
Clear Recommendations for Daily Management and Family Support in Hemophilia A - WFH
World Federation of Hemophilia - WFH shared a post on LinkedIn: "New Egyptian national guidelines…
Hope, Independence and Dignity for People with Bleeding Disorders Through the WFH Humanitarian Aid Program
Feb 3, 2026, 16:52 | Organizations
Hope, Independence and Dignity for People with Bleeding Disorders Through the WFH Humanitarian Aid Program
World Federation of Hemophilia (WFH) posted on LinkedIn: ''In 2025, lives continued to change across…
Support Yousha and Thousands Like Him - WFH Calls for GivingTuesday Action
Dec 5, 2025, 03:32 | Voices
Support Yousha and Thousands Like Him - WFH Calls for GivingTuesday Action
World Federation of Hemophilia/Fédération mondiale de l'hémophilie posted on LinkedIn: ''Meet Yousha, 11, from Syria.…
Brian O’Mahony Discusses Hemophilia Progress and Challenges in Kazakhstan with WFH
Oct 30, 2025, 07:53 | Blog
Brian O’Mahony Discusses Hemophilia Progress and Challenges in Kazakhstan with WFH
  Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC,…
The World Federation of Hemophilia Celebrates WHO Approval of Essential Medicines List Updates
Sep 7, 2025, 14:03 | Organizations
The World Federation of Hemophilia Celebrates WHO Approval of Essential Medicines List Updates
  The World Federation of Hemophilia (WFH) posted on X: ''The global Bleeding Disorders community…
New Study Featured by Rare Disease Advisor Reveals Quality-of-Life Challenges in Hemophilia
Sep 5, 2025, 10:59 | Insight
New Study Featured by Rare Disease Advisor Reveals Quality-of-Life Challenges in Hemophilia
  Rare Disease Advisor posted on LinkedIn: ''Regardless of treatment regimen or disease severity, patients…
WFH in Madagascar: Advancing National Bleeding Disorder Guidelines and Governance
Aug 2, 2025, 04:14 | Insight
WFH in Madagascar: Advancing National Bleeding Disorder Guidelines and Governance
The World Federation of Hemophilia (WFH) shared a post on X: ”The WFH recently visited…
Rucha Patil on WFH Humanitarian Aid Program in India
Jul 31, 2025, 16:18 | Organizations
Rucha Patil on WFH Humanitarian Aid Program in India
Rucha Patil, Scientist, Department of Haemostasis and Thrombosis, ICMR- National Institute of Immunohaematology, shared a…
AAV Gene Therapies for Hemophilia A and B: Current Perspectives
Jul 29, 2025, 13:12 | Science
AAV Gene Therapies for Hemophilia A and B: Current Perspectives
The World Federation of Haemophilia (WFH) shared a proud post on X: “Gene Therapy is…
Global Study Sheds Light on Low-Dose Prophylaxis in Hemophilia A
Jul 25, 2025, 05:11 | Science
Global Study Sheds Light on Low-Dose Prophylaxis in Hemophilia A
The World Federation of Hemophilia (WFH) shared  a post on X: “A new study using…
WFH Shares Yannick Collé’s Story: A Woman’s Decades-Long Fight for a Bleeding Disorder Diagnosis
Jul 24, 2025, 05:40 | Organizations
WFH Shares Yannick Collé’s Story: A Woman’s Decades-Long Fight for a Bleeding Disorder Diagnosis
The World Federation of Hemophilia (WFH) shared an encouraging post on X: “No one thought…
From Wheelchair to Walking: Rida Hadle’s Hemophilia A Inspiring Comeback Through Global Collaboration
Jul 24, 2025, 05:18 | Organizations
From Wheelchair to Walking: Rida Hadle’s Hemophilia A Inspiring Comeback Through Global Collaboration
The World Federation of Hemophilia (WFH) shared a post on X: ”After years in a…
3 Powerful Days: WFH Champions Bleeding Disorders at 78th World Health Assembly
Jul 22, 2025, 16:31 | Organizations
3 Powerful Days: WFH Champions Bleeding Disorders at 78th World Health Assembly
The World Federation of Hemophilia (WFH) shared a proud post on X: ''The WFH proudly…
What’s Slowing Down Gene Therapy Uptake in Hemophilia? Brian O’Mahony Explains the Real-World Barriers
Jul 21, 2025, 13:10 | Voices
What’s Slowing Down Gene Therapy Uptake in Hemophilia? Brian O’Mahony Explains the Real-World Barriers
Brian O’Mahony, CEO of Irish Haemophilia Society,former President of WFH and EHC, highlights several key…
WFH Shares Powerful Patient Story on Access to Bleeding Disorders Treatment
Jul 18, 2025, 12:14 | Insight
WFH Shares Powerful Patient Story on Access to Bleeding Disorders Treatment
The World Federation of Hemophilia (WFH) shared a post on X: ”This powerful story highlights…
WFH PACT Program Empowers a New Generation of Advocates for Equitable Bleeding Disorder Care
Jul 12, 2025, 16:35 | Organizations
WFH PACT Program Empowers a New Generation of Advocates for Equitable Bleeding Disorder Care
The World Federation of Hemophilia (WFH) shared an encouraging post on X: ''At GPAS2025, the…
GPAS 2025: Global Strategies to Integrate Bleeding Disorders into Health Systems
Jul 12, 2025, 16:01 | Organizations
GPAS 2025: Global Strategies to Integrate Bleeding Disorders into Health Systems
The World Federation of Hemophilia (WFH) shared an insightful post on X: ''During GPAS 2025,…
GPAS 2025 Closes with Vision for a Sustainable Future in Bleeding Disorders Care
Jul 12, 2025, 15:37 | Organizations
GPAS 2025 Closes with Vision for a Sustainable Future in Bleeding Disorders Care
The World Federation of Hemophilia (WFH) shared an insightul post on X: ''Global experts closed…
WFH PACT Program Identifies 27,000+ New Bleeding Disorder Patients in 2024 Impact Report
Jul 11, 2025, 15:14 | Organizations
WFH PACT Program Identifies 27,000+ New Bleeding Disorder Patients in 2024 Impact Report
The World Federation of Hemophilia (WFH) recently shared a post on X: ”The WFH PACT…
Final Call to Join GPAS 2025: A Crucial Dialogue on Global Access to Medicines
Jul 9, 2025, 16:28 | Drugs
Final Call to Join GPAS 2025: A Crucial Dialogue on Global Access to Medicines
The World Federation of Hemophilia (WFH) recently shared an inviting post on X: ''This is…
WFH e-Learning Platform: Discover the Chaotic Science Behind All 13 Clotting Factors
Jul 8, 2025, 18:47 | Organizations
WFH e-Learning Platform: Discover the Chaotic Science Behind All 13 Clotting Factors
The World Federation of Hemophilia (WFH) recently shared a post on X: ''Did You Know:…
Report on Systemic Gaps in Care for Women and Girls with Bleeding Disorders: Underserved, Overlooked
Jul 8, 2025, 17:48 | Organizations
Report on Systemic Gaps in Care for Women and Girls with Bleeding Disorders: Underserved, Overlooked
The World Federation of Hemophilia (WFH) reposted from UK Haemophilia Society on X: ''The WFH…
WFH Bleeding Disorders Registry: 10,000 New Patients Targeted by 2025
Jul 5, 2025, 16:33 | Organizations
WFH Bleeding Disorders Registry: 10,000 New Patients Targeted by 2025
The World Federation of Hemophilia (WFH) shared on X: “The WBDR provides a web-based data…
WGBDs in Focus: Driving Global Change for Women and Girls with Bleeding Disorders
Jul 4, 2025, 16:51 | Organizations
WGBDs in Focus: Driving Global Change for Women and Girls with Bleeding Disorders
The World Federation of Hemophilia (WFH) recently shared an encouraging post concerning WGBDs on X:…
Honoring Excellence in Bleeding Disorders Care: Kathy Mulder Appointed to the Order of Canada
Jul 4, 2025, 16:32 | Organizations
Honoring Excellence in Bleeding Disorders Care: Kathy Mulder Appointed to the Order of Canada
The World Federation of Hemophilia (WFH) shared an honoring post for Kathy Mulder on X:…
1 Week Left: Join WFH Global Summit on Advancing Access for Bleeding Disorders Community
Jul 3, 2025, 16:48 | Organizations
1 Week Left: Join WFH Global Summit on Advancing Access for Bleeding Disorders Community
The World Federation of Hemophilia (WFH) shared an inviting post on X: ''Just 1 week…
Sukesh Nair: A Wonder Volunteer Making Global Waves in Laboratory Diagnostics
Jun 29, 2025, 13:36 | Organizations
Sukesh Nair: A Wonder Volunteer Making Global Waves in Laboratory Diagnostics
The World Federation of Hemophilia recently posted on X: ''Meet Sukesh Nair, MD, a WFH…
Rewriting Your DNA in Childhood: Because Why Wait to Cure Hemophilia? | ISTH 2025 Breakthrough
Jun 24, 2025, 22:08 | Science
Rewriting Your DNA in Childhood: Because Why Wait to Cure Hemophilia? | ISTH 2025 Breakthrough
Ben Samelson-Jones, Assistant Professor of Pediatrics at University of Pennsylvania School of Medicine, posted on…
Learn About the Latest Treatment Innovations at GPAS 2025 - WFH
Jun 20, 2025, 07:19 | Organizations
Learn About the Latest Treatment Innovations at GPAS 2025 - WFH
The World Federation of Hemophilia (WFH) shared a post on X: "Learn about the latest…
WFH - The New Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual
Jun 7, 2025, 12:35 | Insight
WFH - The New Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual
WFH (The World Federation of Hemophilia) shared a post on X: "The new Diagnosis of…
WFH attends the meeting of member states in the South-South sector
May 26, 2025, 12:48 | Organizations
WFH attends the meeting of member states in the South-South sector
Cesar A. Garrido, The President of World Federation of Hemophilia (WFH), recently posted on X:…
Kate Khair Highlights Shared Experience and Ongoing Learning in Haemophilia at wfhCCS
May 10, 2025, 16:27 | Voices
Kate Khair Highlights Shared Experience and Ongoing Learning in Haemophilia at wfhCCS
Kate Khair shared a post by The World Federation of Hemophilia on X, adding: "Great session…
Thank You to All Speakers, Attendees, Volunteers and Partners Who Made It Unforgettable - WFH
May 10, 2025, 15:32 | Voices
Thank You to All Speakers, Attendees, Volunteers and Partners Who Made It Unforgettable - WFH
The World Federation of Hemophilia shared a post on X: “That’s a wrap on WFH…
There was no treatment at all – Nurbek Rozaliev
May 10, 2025, 14:50 | Science
There was no treatment at all – Nurbek Rozaliev
The World Federation of Hemophilia shared a post on X: "'There was no treatment at all.'…
Mastering Hemophilia Literature Searches: EAHAD Hosts Expert Webinar
May 10, 2025, 14:37 | Voices
Mastering Hemophilia Literature Searches: EAHAD Hosts Expert Webinar
EAHAD shared a post on X: "Discover how to master literature searches with Wichor Bramer,…
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