Nancy Di Salvo on Amplifying Rare Disease Voices Through Partnership
Nancy Di Salvo, Director of International Affairs at GBS-CIDP Foundation International, reposted from PPTA Europe on LinkedIn:
”A sincere thank you to PPTA Europe for bringing together patients and volunteers from the GBS|CIDP Foundation International with plasma donors and, just as importantly, for truly listening to the rare disease stories.
Creating space for patients to be heard, understood, and connected makes a real difference.
Thank you for your commitment to collaboration and to the people whose lives are directly affected.”
Quoting PPTA Europe‘s post:
”Ahead of Rare Disease Day next month, Micaela, a patient advocate with GBS|CIDP Foundation International shares advice that helped her embrace a rare disease diagnosis.”
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