EHC/LinkedIn
Apr 7, 2026, 16:44
A Call to Get the Biotech Act Right for The Millions Living with Bleeding Disorders – EHC
EHC – European Haemophilia Consortium shared on LinkedIn:
”Innovation without access is not progress.
On World Health Day, the EHC is calling on EU policymakers to get the Biotech Act right for the millions living with bleeding disorders who cannot afford to wait.
Science is moving fast.
Regulation and access must keep up.
The EHC demands:
- Patients at the table, not as an afterthought, but at every stage of research, trials, and regulatory decisions
- Real-world evidence that counts, because clinical trial data alone do not capture the full picture of patients’ lives
- Cross-border clinical trials to break down barriers and bring innovation to patients across Europe, no matter where they live
The theme of World Health Day 2026 is ‘Together for health: stand with science’.
Standing with science means ensuring that science stands for patients.
The EU Biotech Act is an opportunity. Let’s not waste it.
Stay updated with Hemostasis Today.
-
Oct 10, 2026, 17:58Archo Farzana Batool: Exploring Medical Writing Through an Article on Iron Deficiency Anemia
-
Oct 10, 2026, 17:53Assessing Frailty in Adults With Hemophilia – JTH
-
Oct 10, 2026, 17:52Fatma Sadeghi: Reducing Maternal Health Inequalities Through Nursing Advocacy
-
Oct 10, 2026, 17:50Grzegorz Hensler: How Apheresis Transformed Blood Cell Separation and Collection
-
Oct 10, 2026, 17:47Hemant K Sharma: Japan’s Universal Artificial Blood Research – A Potential Breakthrough in Transfusion Medicine
-
Oct 10, 2026, 17:40John Strouse: Learning About Bleeding Disorders and Sickle Cell Disease at FWGBD
-
Oct 10, 2026, 17:34Mae Caime: Speaking at the Annual Women’s Retreat for the Hemophilia Community in Florida
-
Oct 10, 2026, 17:30Chokri Ben Lamine: PNH beyond the Textbook Triad
-
Oct 10, 2026, 17:29Ruah Alyamany: Thrombosis and Anticoagulation in Hematological Malignancies at SOHO KSA 2026