The Gap Between Clinical Assessment and Patient Experience in VTE – RPTH Journal
RPTH Journal shared a post on LinkedIn about a recent article by Anette Arbjerg Højen et al., published in RPTH Journal, adding:
“After VTE, what happens to patients that clinical scores don’t capture?
Venous thromboembolism (VTE) is increasingly recognised as a chronic condition.
Many patients continue to experience pain, dyspnoea, fatigue, anxiety, and reduced quality of life long after the acute event, yet these long-term complications are rarely addressed systematically in routine practice.
A state-of-the-art review in RPTH Journal based on a lecture presented at the International Society on Thrombosis and Haemostasis (ISTH) 2025 Congress in Washington, DC makes the case for integrating patient-reported outcome measures (PROMs) into VTE follow-up care.
Key insights:
- Post-thrombotic syndrome and post-pulmonary embolism syndrome, including chronic thromboembolic pulmonary hypertension, are common but underappreciated sequelae
- PROMs provide a structured framework to capture symptoms, quality of life, and functional impact that clinical assessments miss
- Integrating PROMs into follow-up care could support a more holistic, patient-centred approach to VTE management
Challenges remain, including lack of standardisation across PROMs used in VTE, and barriers to routine implementation in clinical practice.
This review outlines which PROMs are most relevant, why late complications should be systematically captured, and what opportunities exist to close the gap between what clinicians measure and what patients actually experience.”
Title: Capturing the late complications of venous thromboembolism
Authors: Anette Arbjerg Højen, Elin Baddeley, Stine Foged Lindegaard, Stian Ingemann-Molden, Frederikus A. Klok
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