Awa Babington-Ashaye: WFH Congress Reflections on Access AI and Patient Care
Awa Babington-Ashaye, Digital Health Advisor at Geneva Digital Health Hub, shared a post on LinkedIn about a recent article by Cedric Hermans, published in Haemophilia:
“I recently had the privilege of speaking at the World Federation of Hemophilia (WFH) World Congress in Kuala Lumpur, a unique global gathering bringing together people living with haemophilia, clinicians, researchers and advocates from around the world.
I am deeply grateful to the World Federation of Hemophilia for the kind invitation and for convening such an important and impactful congress.
One strong message has stayed with me since I came back:
‘A life with haemophilia begins with a crisis – not with a diagnosis.’
These powerful words from James L. Damasin, former President of the Hemophilia Association of Davao (Philippines), are a reminder of the reality many still face especially in resource-constrained settings.
So many insights to draw on, just sharing a few:
- Science is advancing rapidly
Genetic therapies are transforming what is possible. Yet equity remains the defining challenge – an estimated 75% of people with haemophilia worldwide remain undiagnosed.
- Women and girls bleed too:Their challenges are real, from maternal and pregnancy care, menstrual health management, evaluation of at-risk carriers, and the realities of living with severe factor deficiency. Their needs deserve more focused attention, support and care.
- Mental health matters
Living with a rare chronic condition carries an invisible burden that must be addressed through structured psychosocial support.
- AI and haemophilia care
As Prof. Cédric Hermans powerfully highlighted, AI hold a strong potential to support more personalised, data-driven care, from predicting bleeding risk to optimising treatment decisions but must remain guided by rigour, ethics, and real-world evidence.
If you want to know more, worth reading.
To support education, our work on Saytù Haemophilia, the first educative chatbot using local languages (Wolof), continues.
Born in Senegal, expanding across Africa, our aim is to increase access and adoption, include other bleeding and rare disorders and languages, improve the performance leveraging LLMs, and generate real-world evidence with lessons learned as our compass.
It remains, I have to say, a humbling and collaborative journey with people living with haemophilia across countries and the team Baamtu Technologies, Certainly.
It was a pleasure to meet, reflect with members of this community, reconnect with partners and colleagues, including Philippe de Moerloose, Novo Nordisk Haemophilia and Haemoglobinopathies Foundation, Abdoulaye Loum, Prof. Diop and Dr Diary Sy.
These conversations on Responsible AI will continue at the Geneva Digital Health Day 2026, that we organized Geneva Digital Health Hub (gdhub).
Secure your spot, seats remain available.
May 21 – Campus Biotech and Online.
Looking forward to continuing this shared effort to improve care and outcomes for people living with bleeding disorders and rare diseases.”
Title: Artificial Intelligence in Haemophilia Care: A Narrative Review of Current Evidence and Future Opportunities
Author: Cedric Hermans
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