Toyosi Onwuemene: Are We Measuring the Outcomes That Matter Most to Patients With TTP?
Toyosi Onwuemene, Associate Professor with tenure Duke University School of Medicine, shared a post on LinkedIn:
“What if the outcomes we celebrate aren’t the ones that matter most to the people living with the disease?
We celebrate our success in helping most patients survive TTP.
But our patients tell us survival is no longer enough.
They want to think clearly, return to work, and remain engaged with their loved ones.
Yet they experience cognitive changes—brain fog, memory lapses, and slowed thinking.
In response, Dr. Theresa Coles and I set out to answer a simple question:
‘How do we measure cognitive changes in TTP?’
Our patients challenged us with a better question:
‘How do you measure what we’re actually experiencing?’
That question became the foundation of the THINK-TTP study.
The THINK-TTP study reinforces an important lesson: listening to patients isn’t just part of the research process. It shapes the research itself.
If we want truly patient-centered research, we start by asking patients what outcomes matter most to them.”
Find more posts featuring Toyosi Onwuemene on Hemostasis Today.
-
Sep 17, 2026, 20:38Konstantinos Bistas: Reduced Circulating Tregs in Pediatric Chronic Neutropenia
-
Sep 17, 2026, 15:33Gopal Patidar: Honoured to Contribute to the ASFA 2026 Guidelines for Therapeutic Apheresis
-
Sep 17, 2026, 20:36Cosima C. Hoch: Developing a 3D Organotypic Co-Culture Model for Pleomorphic Adenoma
-
Sep 17, 2026, 20:19Riten Kumar: Boston Children’s Hospital Ranked No. 1 in Seven Pediatric Specialties
-
Sep 17, 2026, 20:17Katrina Snow: Whole Blood or Component Therapy – Which Would You Choose?
-
Sep 17, 2026, 16:30Daria Camilli: Empowering Bleeding Disorder Advocacy Through Health Economics
-
Sep 17, 2026, 16:17Mehran Ghasemzadeh: Platelet NK Cell Crosstalk in Advanced Coronary Artery Disease
-
Sep 17, 2026, 16:16Barbara Adams Krolak: Do GLP-1s Affect Blood Clot Risk?
-
Sep 17, 2026, 15:46Heghine Khachatryan: Clinical Context at the Core of Thrombosis and Thrombophilia Management