Alessandra Bosch: Women and Girls With Bleeding Disorders and the DACH Registries at HHS 2026
Alessandra Bosch, Clinician Scientist at University of Zurich, shared a post on LinkedIn:
“The 57th Hamburg Haemophilia Symposion was an inspiring event!
Maria Elisa Mancuso‘s talk on women and girls with Bleeding Disorders was definitely a highlight. This is a topic that is finally receiving the attention it deserves.
The session on the DACH Registries highlighted VWD and Rare Bleeding Disorders. Seeing the Austrian, German and Swiss registries side by side showed how much we can learn from each other on data quality, on capturing VWD and Rare Bleeding Disorders and on turning registry data into better care.
Many thanks to Prof. Ingrid Pabinger and Dr. Martin Olivieri for the excellent exchange.
And of course to Robert Klamroth and Christoph Königs for the invitation and Takeda in Deutschland for hosting this fantastic meeting HHS 2026!”
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