Maia Meier: Are Women With Bleeding Disorders Being Underdiagnosed?
Maia Meier, Clinical Exercise Physiologist at Maia Letitia Fitness, shared a post on LinkedIn:
“Earlier this week, EHC – European Haemophilia Consortium shared an important perspective on the diagnosis gap for women with bleeding disorders – and why it matters.
Is the diagnosis gap accidental?
No – and it has a history.
For decades, haemophilia was understood as a condition affecting men only.
Women were labelled ‘carriers’ – relevant to family history, but not patients in their own right.
That framing shaped medical education, clinical pathways, and treatment centres.
Its effects are still felt today.
1 in 5 women who see a gynaecologist for heavy menstrual bleeding have a bleeding disorder – yet many remain underdiagnosed, because the question is often never asked.
The barriers are well known:
- Symptoms are normalised
- Family history is often missed
- Testing isn’t guaranteed
- Awareness is inconsistent across specialities
Change is happening – slowly.
In 2021, the ISTH updated classification, recognising women based on their own bleeding history – not just the label of ‘carrier.’
Long overdue.
When women are identified and followed, 94% of pregnancies can be managed with known carrier status before conception.
That outcome is possible – it’s just not yet the norm.
In June, I climb Mont Blanc – the first step in a journey across all seven summits, using each climb as a platform to raise awareness for earlier diagnosis and better care.
In partnership with EHC – European Haemophilia Consortium , we’ll be sharing stories and perspectives from across Europe.
Follow, donate and learn more on Project Elevate Her.
Data and insights in collaboration with European Haemophilia Consortium.”
Stay updated with Hemostasis Today.
-
Jul 13, 2026, 11:25Luisa Müller: Advancing Anticoagulation Strategies for VITT at ISTH 2026
-
Jul 13, 2026, 10:49Joshua Zeidner: Advancing Menin Inhibitor Therapy in MD Education AML-ALL US Focus 2026
-
Jul 13, 2026, 10:25Flora Peyvandi: A Practical Approach to ALT Elevation After Gene Therapy at ISTH 2026
-
Jul 13, 2026, 10:02Jessica Garcia: Where Science and Community Come Together at ISTH 2026
-
Jul 13, 2026, 09:46Fabrice Cognasse: Is There Such a Thing as the Perfect Platelet Product?
-
Jul 13, 2026, 09:42Cancer-Associated Arterial Thromboembolism: Redefining the Thrombotic Burden in Oncology
-
Jul 13, 2026, 05:59Connecting and Collaborating at ISTH 2026 – NNHF
-
Jul 13, 2026, 05:58Lara Monica: Back at ISTH – Looking Forward to Science and Reconnections!
-
Jul 13, 2026, 05:57Barbara Adams Krolak: Exciting Updates From the ISTH 2026 Regulatory Session