Nancy Di Salvo on Amplifying Rare Disease Voices Through Partnership
Nancy Di Salvo, Director of International Affairs at GBS-CIDP Foundation International, reposted from PPTA Europe on LinkedIn:
”A sincere thank you to PPTA Europe for bringing together patients and volunteers from the GBS|CIDP Foundation International with plasma donors and, just as importantly, for truly listening to the rare disease stories.
Creating space for patients to be heard, understood, and connected makes a real difference.
Thank you for your commitment to collaboration and to the people whose lives are directly affected.”
Quoting PPTA Europe‘s post:
”Ahead of Rare Disease Day next month, Micaela, a patient advocate with GBS|CIDP Foundation International shares advice that helped her embrace a rare disease diagnosis.”
Stay updated with Hemostasis Today.
-
May 10, 2026, 14:03Educational Grant Opportunities for Post–Secondary Students with Inherited Bleeding Disorders – Irish Haemophilia Society
-
May 10, 2026, 13:49Mona Alfaraj: What’s Special About Inherited Macrothrombocytopenia?
-
May 10, 2026, 12:14Ana Cláudia de Souza: Presenting ÁRTEMIS-Brasil at ESOC 2026
-
May 10, 2026, 12:11Umberto Pensato: SPOTMAP Project and ESCAPE-MeVO Analysis Honored with Awards at ESOC 2026
-
May 10, 2026, 12:05Purusotham Chippala: A Comprehensive Patient and Caregiver Education Guide to Make Stroke Easier
-
May 10, 2026, 11:57Mostafa Meshref: Find Our Research Contributions at ESOC 2026
-
May 10, 2026, 11:39Ruisheng Su: Stroke Timer Is an Early Accept at MICCAI 2026
-
May 10, 2026, 11:24Ali Ahmadi: The Immune Landscape After Ischemic Stroke and How to Advance Toward Effective Therapeutic Strategies
-
May 10, 2026, 11:05Yusra Iqbal: The Clinical Spectrum of Platelet Disorders