Nandini Pethe: How Digital Logs Help Recognize Pediatric von Willebrand Disease
Nandini Pethe, Community Digital Advocate at Microhealth (digital hematology), shared ISTH’s post on LinkedIn:
“‘Recurrent nose bleeds, Easy bruising, heavy menstrual bleeding.
Prolonged bleeding after minor procedures.
These symptoms are often considered in isolation, making pediatric VWD difficult to recognize early.’
A simple way to show collective symptoms rather than isolated incidents is by tracking them with the Microhealth app.
Events logged with detailed notes, and photos can capture the true symptom burden, and its impact on one’s quality of life.
Overtime logs can present patterns that may go unnoticed if not tracked.
Get in the habit of logging for self or a loved one.
International Society on Thrombosis and Haemostasis (ISTH) shared a post on LinkedIn:
“Not every child with von Willebrand disease presents the same way.
Recurrent nosebleeds. Easy bruising. Heavy menstrual bleeding. Prolonged bleeding after minor procedures.
These symptoms are often considered in isolation, making pediatric VWD difficult to recognize early.
Delayed diagnosis can postpone appropriate treatment and prolong the burden of bleeding symptoms.
We developed an educational activity in collaboration with The France Foundation to help pediatric hematology teams recognize abnormal bleeding patterns, improve diagnostic confidence, and individualize patient care.
Earn free CE credit while learning practical strategies for recognizing pediatric VWD and translating evidence into clinical practice.”
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