ERIN Summit Brought Together Patients and Their Families, Offering a Space to Learn, Connect, Feel Supported
EHC – European Haemophilia Consortium shared a post on LinkedIn:
“From 5 to 7 December, we proudly hosted the ERIN Summit in Berlin, Germany. This annual event brings together patients with extremely rare bleeding disorders and their families, offering a unique, family-friendly space to learn, connect, and feel supported.
This year’s programme focused on treatment updates, unmet needs, and lived experiences. Through open discussions and interactive workshops, we strengthened knowledge within the community and built a foundation for continued learning and collaboration.

The tradition of the ERIN summit reflects a long-standing dedication to empowering this community with practical information and advocacy tools. A heartfelt thank-you goes to the ERIN Committee for their ongoing commitment to making patients with extremely rare bleeding disorders more visible and heard. By sharing knowledge and amplifying patient stories, we aim to ensure no one is left behind!
Learn more about the EHC ERIN here”
Get the latest updates with Hemostasis Today.
-
Aug 10, 2026, 16:09Preetie Shetty Akkunje: Making Stroke Rehabilitation Accessible in Low-Resource Settings
-
Aug 10, 2026, 15:50The Next Antithrombotic Frontier: GPVI Inhibitors Beyond Aspirin
-
Aug 10, 2026, 15:47Edward Lee Carter: 61% of Patients on Reduced-Dose Apixaban Did Not Meet Label Criteria
-
Aug 10, 2026, 15:45Vrushali Lad: What Living With DVT Taught Me About Lifestyle and Movement
-
Aug 10, 2026, 15:42Wolfgang Miesbach: Cognitive Impairment in aPL-Positive Patients
-
Aug 10, 2026, 15:39Iftikhar Khan: What Is the Optimal Antithrombotic Strategy After Left Atrial Appendage Closure?
-
Aug 10, 2026, 15:36Anas Hamad: Medication Adherence and Treatment Persistence Following the Switch From VKAs to DOACs
-
Aug 10, 2026, 15:11Shazmah Shaikh: How Does a Thrombus Actually Form?
-
Aug 10, 2026, 15:01William Wallace: Is Your Cholesterol Test Missing Your Biggest Inherited Risk?