ERIN Summit Brought Together Patients and Their Families, Offering a Space to Learn, Connect, Feel Supported
EHC – European Haemophilia Consortium shared a post on LinkedIn:
“From 5 to 7 December, we proudly hosted the ERIN Summit in Berlin, Germany. This annual event brings together patients with extremely rare bleeding disorders and their families, offering a unique, family-friendly space to learn, connect, and feel supported.
This year’s programme focused on treatment updates, unmet needs, and lived experiences. Through open discussions and interactive workshops, we strengthened knowledge within the community and built a foundation for continued learning and collaboration.
The tradition of the ERIN summit reflects a long-standing dedication to empowering this community with practical information and advocacy tools. A heartfelt thank-you goes to the ERIN Committee for their ongoing commitment to making patients with extremely rare bleeding disorders more visible and heard. By sharing knowledge and amplifying patient stories, we aim to ensure no one is left behind!
Learn more about the EHC ERIN here”
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