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Shadi Tabibian: Living With Unexplained Bleeding – Insights From the Vienna Bleeding Biobank
Shadi Tabibian/LinkedIn
Jun 10, 2026, 15:30

Shadi Tabibian: Living With Unexplained Bleeding – Insights From the Vienna Bleeding Biobank

Shadi Tabibian, Deputy of research at Blood Diseases Research Centers in Iran University of Medical Sciences, shared on LinkedIn:

”Bleeding Disorder of Unknown Cause (BDUC) is not a reassuring diagnosis.

It is an honest one.

It means our best available tests run correctly, interpreted carefully, cannot identify the cause of a real, documented, clinically significant bleeding tendency.

  • It affects 40–70% of everyone referred to a haemostasis specialist.
  • It is more common than VWD.
  • 69% are women ، most of them waiting years for someone to take their symptoms seriously.
  • And when they reach the delivery room without a plan, 77% will haemorrhage.

The quality of life data from the Vienna Bleeding Biobank are not surprising once you understand this.

Mental health scores in BDUC patients: 43/100.

Lower than VWD patients. Lower than the general population.

Driven not only by the bleeding, but by years of being dismissed, discharged, and told that normal tests mean a normal life.

They do not.”

Shadi Tabibian: Living With Unexplained Bleeding - Insights From the Vienna Bleeding Biobank

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