Megan Adediran/ LinkedIn
Mar 3, 2026, 08:48
Megan Adediran: Redefining Rare Diseases in Nigeria’s Healthcare System
Megan Adediran, Executive Director of the Haemophilia Foundation of Nigeria, shared a post on LinkedIn:
“How Rare Is Rare?
A disease is called rare when it affects a small number of people. But there are over 7,000 rare diseases.
Together, they affect more than 300 million people worldwide.
That is not rare. That is a movement.
In Nigeria, rare often means:
- Late diagnosis.
- Limited treatment.
- High costs.
- Silent suffering.
For people living with haemophilia and other rare conditions, awareness can mean the difference between disability and dignity.
Rare is not invisible. Rare is not insignificant. Rare is someone’s child. Rare should never mean forgotten.”
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