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WFH 2024 Annual Report: A Significant Progress
Jul 25, 2025, 16:26 | Organizations
WFH 2024 Annual Report: A Significant Progress
The World Federation of Hemophilia (WFH) shared a proud post on X: ''In 2024, the…
WFH Cornerstone Initiative: Rwanda Marks 3 Years of Participation
Jul 25, 2025, 16:22 | Organizations
WFH Cornerstone Initiative: Rwanda Marks 3 Years of Participation
The World Federation of Hemophilia (WFH) shared a proud post on X: ''The WFH recently…
Why Is Gene Therapy Uptake in Hemophilia Slower Than Expected
Jul 25, 2025, 05:40 | Science
Why Is Gene Therapy Uptake in Hemophilia Slower Than Expected
Brian O Mahony, Former President of WFH, shared a post on X: “Our paper on Why…
Dr. Bridget Freeman Explains Why Sleep Is Crucial for Chronic Care
Jul 25, 2025, 04:50 | Insight
Dr. Bridget Freeman Explains Why Sleep Is Crucial for Chronic Care
Hemophilia Outreach of Wisconsin Inc shared some noteworthy insights from Dr Bridget Freeman on Linkedin:…
Back-to-School Toolkit for Girls and Women with Bleeding Disorders – Download Now!
Jul 24, 2025, 17:40 | Organizations
Back-to-School Toolkit for Girls and Women with Bleeding Disorders – Download Now!
Bleeding Disorders Council of California recently shared a post on X: “As teens and preteens…
Uncovering the Hidden Signs of von Willebrand Disease
Jul 23, 2025, 15:42 | Insight
Uncovering the Hidden Signs of von Willebrand Disease
Hemophilia Federation of America (HFA) published on X: “Did you know? von Willebrand Disease (vWD) is…
Don't Miss the Hemophilia B Virtual Event on July 29 – Sign Up Now!
Jul 23, 2025, 15:34 | Voices
Don't Miss the Hemophilia B Virtual Event on July 29 – Sign Up Now!
Hemophilia Federation of America (HFA) shared a post on X: “Living with Hemophilia B: From…
EHC Warns of Severe Impact from Von Willebrand Factor Supply Delays
Jul 23, 2025, 10:59 | Organizations
EHC Warns of Severe Impact from Von Willebrand Factor Supply Delays
  The European Haemophilia Consortium (EHC) shared a post on X: “Supply delays of Von…
3 Powerful Days: WFH Champions Bleeding Disorders at 78th World Health Assembly
Jul 22, 2025, 16:31 | Organizations
3 Powerful Days: WFH Champions Bleeding Disorders at 78th World Health Assembly
The World Federation of Hemophilia (WFH) shared a proud post on X: ''The WFH proudly…
Register Now! NBDF Hosts Its 77th Bleeding Disorders Conference
Jul 21, 2025, 16:43 | Organizations
Register Now! NBDF Hosts Its 77th Bleeding Disorders Conference
The National Bleeding Disorders Foundation (NBDF) shared an inviting post on X: ''Join us for…
Jessica Hernandez Garcia: Honored to Become 2025 HTRS/Novo Nordisk Clinical Scholar Awardee
Jul 18, 2025, 18:12 | Organizations
Jessica Hernandez Garcia: Honored to Become 2025 HTRS/Novo Nordisk Clinical Scholar Awardee
Jessica Hernandez Garcia, pediatric hematologist at UT Southwestern Medical Center, proudly reposted from HTRS on…
WFH Shares Powerful Patient Story on Access to Bleeding Disorders Treatment
Jul 18, 2025, 12:14 | Insight
WFH Shares Powerful Patient Story on Access to Bleeding Disorders Treatment
The World Federation of Hemophilia (WFH) shared a post on X: ”This powerful story highlights…
European Haemophilia Consortium Opens Applications for 2025 Health Economics Course
Jul 18, 2025, 11:29 | Organizations
European Haemophilia Consortium Opens Applications for 2025 Health Economics Course
The European Haemophilia Consortium (EHC), has shared a post on X: “Apply for our Health…
Advance Bleeding Disorder Expertise: Takeda Fellowship Now Accepting Applications
Jul 18, 2025, 11:27 | Organizations
Advance Bleeding Disorder Expertise: Takeda Fellowship Now Accepting Applications
National Bleeding Disorders Foundation shared a post on X: “Funded by Takeda, this fellowship offers…
Toward Hemophilia Gene Therapy for All? Insights from Prof. Flora Peyvandi in Blood Advances
Jul 16, 2025, 15:04 | Innovation
Toward Hemophilia Gene Therapy for All? Insights from Prof. Flora Peyvandi in Blood Advances
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
EAHAD Membership is Open – Join the Community and Access EAHAD 2026 Benefits!
Jul 16, 2025, 14:51 | Insight
EAHAD Membership is Open – Join the Community and Access EAHAD 2026 Benefits!
The European Association for Haemophilia and Allied Disorders (EAHAD) has shared a post onX: “Join…
Apply Now to The Susan Skinner Memorial Fund Scholarship: Advancing Women’s Leadership in the Bleeding Disorders Field
Jul 15, 2025, 18:58 | Organizations
Apply Now to The Susan Skinner Memorial Fund Scholarship: Advancing Women’s Leadership in the Bleeding Disorders Field
The World Federation of Hemophilia (WFH) recently shared an announcement post on X: ''Applications for…
EHC 2025 in Vienna: Women's Health and Bleeding Disorders Session – Register Now for October 3–5!
Jul 15, 2025, 11:45 | Insight
EHC 2025 in Vienna: Women's Health and Bleeding Disorders Session – Register Now for October 3–5!
The European Haemophilia Consortium (EHC), has shared a post on X: “Breaking barriers at the…
Global Forum on Bleeding Disorders Returns: WFH Announces 14th Edition in 2025
Jul 14, 2025, 16:56 | Organizations
Global Forum on Bleeding Disorders Returns: WFH Announces 14th Edition in 2025
The World Federation of Hemophilia (WFH) shared an inviting post on X: ''Save the Date!…
GPAS 2025: Global Strategies to Integrate Bleeding Disorders into Health Systems
Jul 12, 2025, 16:01 | Organizations
GPAS 2025: Global Strategies to Integrate Bleeding Disorders into Health Systems
The World Federation of Hemophilia (WFH) shared an insightful post on X: ''During GPAS 2025,…
EHC Launches Survey on Rare Bleeding Disorders and BDUC Needs
Jul 11, 2025, 18:19 | Organizations
EHC Launches Survey on Rare Bleeding Disorders and BDUC Needs
The European Haemophilia Consortium (EHC) shared an encouraging post on X: ''Help shape the future…
GPAS 2025: Shaping the Future of Bleeding Disorder Care
Jul 11, 2025, 16:48 | Insight
GPAS 2025: Shaping the Future of Bleeding Disorder Care
The World Federation of Hemophilia (WFH) recently shared an insightful post on X: ''At GPAS…
WFH PACT Program Identifies 27,000+ New Bleeding Disorder Patients in 2024 Impact Report
Jul 11, 2025, 15:14 | Organizations
WFH PACT Program Identifies 27,000+ New Bleeding Disorder Patients in 2024 Impact Report
The World Federation of Hemophilia (WFH) recently shared a post on X: ”The WFH PACT…
From Protocol to Practice: EuroIntervention's Role in ESC Hot Line 7
Jul 11, 2025, 15:10 | Drugs
From Protocol to Practice: EuroIntervention's Role in ESC Hot Line 7
Davide Capodanno, Professor of Cardiology at University of Catania, Italy has posted on X: “To…
Thrombosis with Thrombocytopenia, Post Vaccination Syndrome
Jul 11, 2025, 14:53 | Science
Thrombosis with Thrombocytopenia, Post Vaccination Syndrome
Thrombosis UK shared a post on X: “Thrombosis UK led patient involvement in the thrombosis…
EHC: Recognizing Von Willebrand Factor as a Critical Medicine in Bleeding Care
Jul 10, 2025, 18:11 | Organizations
EHC: Recognizing Von Willebrand Factor as a Critical Medicine in Bleeding Care
The European Haemophilia Consortium (EHC) recently shared a post on X: ''Von Willebrand Disease affects 1:1000…
Free Webinar - Anticoagulation and Heavy Menstrual Bleeding in Women
Jul 10, 2025, 11:15 | Science
Free Webinar - Anticoagulation and Heavy Menstrual Bleeding in Women
Thrombosis UK shared a post on X: “Thursday 10 July - Free! Prof B Hunt…
EAHAD e-Module: Your 1-Stop Guide to Understanding Factor VII Deficiency
Jul 8, 2025, 18:22 | Organizations
EAHAD e-Module: Your 1-Stop Guide to Understanding Factor VII Deficiency
The European Association for Haemophilia and Allied Disorders (EAHAD) recently shared a post on X:…
Start the Journey to EAHAD 2026 in Dublin – Message from President Prof. Niamh O’Connell
Jul 8, 2025, 08:41 | Insight
Start the Journey to EAHAD 2026 in Dublin – Message from President Prof. Niamh O’Connell
The European Association for Haemophilia and Allied Disorders (EAHAD), has shared a post on X:…
Optimal Timing of Anticoagulation after Ischaemic Stroke and Atrial Fibrillation
Jul 8, 2025, 08:04 | Science
Optimal Timing of Anticoagulation after Ischaemic Stroke and Atrial Fibrillation
The Lancet medical journal shared a post on X: “ICYMI Collaboration on the optimal timing…
Preparing for School Vaccinations with a Bleeding Disorder
Jul 7, 2025, 17:47 | Drugs
Preparing for School Vaccinations with a Bleeding Disorder
Hemophilia of Georgia recently shared a post on vaccinations on X: ''As the new school…
Haemophilia Society Thanks Jeans for Genes for Supporting First-Ever Haemophilia Society Sports Day
Jul 7, 2025, 11:53 | Insight
Haemophilia Society Thanks Jeans for Genes for Supporting First-Ever Haemophilia Society Sports Day
Haemophilia Society shared a post on X: “A huge thanks to Jeans for Genes for…
Hemophilia Federation of America Celebrates Member Organizations Supporting Bleeding Disorders
Jul 7, 2025, 11:49 | Insight
Hemophilia Federation of America Celebrates Member Organizations Supporting Bleeding Disorders
Hemophilia Federation of America (HFA), shared a post on X:   “Today, we’re celebrating all…
Anticoagulation Timing After Decompressive Surgery for Cerebral Venous Thrimbosis
Jul 7, 2025, 11:46 | Science
Anticoagulation Timing After Decompressive Surgery for Cerebral Venous Thrimbosis
The International Journal of Stroke recently shared a post on X: “Timing of anticoagulation following…
Patients as Experts: EHC Calls for Early Involvement in HTA Systems
Jul 6, 2025, 15:02 | Voices
Patients as Experts: EHC Calls for Early Involvement in HTA Systems
The European Haemophilia Consortium shared a post on X: “Time to make Patients critical to…
Bleeding Disorders in 2035: Michael Makris is Future-Focused at HABIT Summit 2025
Jul 5, 2025, 17:24 | Insight
Bleeding Disorders in 2035: Michael Makris is Future-Focused at HABIT Summit 2025
Brian O Mahony, CEO of Irish Haemophilia Society, posted in appreciation of Michael Makris on…
Calling Physiotherapists: Contribute to Shaping Care for Women with Bleeding Disorders by Sharing Insights on Physical Health and Physiotherapy
Jul 5, 2025, 16:30 | Insight
Calling Physiotherapists: Contribute to Shaping Care for Women with Bleeding Disorders by Sharing Insights on Physical Health and Physiotherapy
The Haemophilia Chartered Physiotherapists Association (HCPA) reposted the WOMEN Study's post on X: “Calling Physiotherapists…
Empowering Advocacy Through Regulatory Insight: EMA Training for Bleeding Disorders Community
Jul 4, 2025, 17:02 | Organizations
Empowering Advocacy Through Regulatory Insight: EMA Training for Bleeding Disorders Community
The European Haemophilia Consortium shared a thrilled post on advancing advocacy on X: ''Great to…
Honoring Excellence in Bleeding Disorders Care: Kathy Mulder Appointed to the Order of Canada
Jul 4, 2025, 16:32 | Organizations
Honoring Excellence in Bleeding Disorders Care: Kathy Mulder Appointed to the Order of Canada
The World Federation of Hemophilia (WFH) shared an honoring post for Kathy Mulder on X:…
Flora Peyvandi: Endothelial Heterogeneity Shapes Shear Stress Response via KLF2, KLF4, NOS3
Jul 4, 2025, 16:06 | Insight
Flora Peyvandi: Endothelial Heterogeneity Shapes Shear Stress Response via KLF2, KLF4, NOS3
Flora Peyvandi, Past-President of ISTH, shared a post on X: “Endothelial heterogeneity shapes shear stress…
1 Week Left: Join WFH Global Summit on Advancing Access for Bleeding Disorders Community
Jul 3, 2025, 16:48 | Organizations
1 Week Left: Join WFH Global Summit on Advancing Access for Bleeding Disorders Community
The World Federation of Hemophilia (WFH) shared an inviting post on X: ''Just 1 week…
Phil Gattone on ''One Big Beautiful Bill Act'': NBDF will continue to advocate vigorously
Jul 3, 2025, 16:09 | Organizations
Phil Gattone on ''One Big Beautiful Bill Act'': NBDF will continue to advocate vigorously
National Bleeding Disorders Foundation (NBDF) shared a statement post on X: ''Congress passed the 'One…
The Real Cost of Healthcare Cuts: HFA is Launching a Campaign | Advocate for Bleeding Disorders Community
Jul 2, 2025, 04:56 | Organizations
The Real Cost of Healthcare Cuts: HFA is Launching a Campaign | Advocate for Bleeding Disorders Community
Bleeding Disorders Council of California recently shared a post on X, urging to join the…
Project SHARE: Global Support, Real Impact | Calyx’s Hemophilia Journey Made Possible by Donations
Jul 1, 2025, 18:47 | Organizations
Project SHARE: Global Support, Real Impact | Calyx’s Hemophilia Journey Made Possible by Donations
Save One Life recently shared an encouraging post on X: This is Calyx, an 11…
5th EHC HTA Stakeholder Meeting: Driving Change for the Bleeding Disorders Community
Jul 1, 2025, 18:13 | Organizations
5th EHC HTA Stakeholder Meeting: Driving Change for the Bleeding Disorders Community
The European Haemophilia Consortium recently shared a post on X: ''We had a meaningful day…
What Is Hemophilia? Learn More About the Rare Bleeding Disorder Explained By WFH
Jul 1, 2025, 07:53 | Insight
What Is Hemophilia? Learn More About the Rare Bleeding Disorder Explained By WFH
The World Federation of Hemophilia (WFH), shared on X: “What is hemophilia and what does…
Mark Your Calendar: EAHAD 2026 in Dublin From 3–6 February 2026
Jul 1, 2025, 07:23 | Insight
Mark Your Calendar: EAHAD 2026 in Dublin From 3–6 February 2026
EAHAD, the  European Association for Haemophilia and Allied Disorders, just posted on X: “The 19th…
EHC Youth Fellowship 2025 – Paid Internship in Brussels for NMO Members
Jun 29, 2025, 13:51 | Insight
EHC Youth Fellowship 2025 – Paid Internship in Brussels for NMO Members
EHC Haemophilia (The European Haemophilia Consortium) shared a post on X: “Join our EHC Youth…
Patricia Liaw Thanks ISTH SSC on Platelet Immunology
Jun 27, 2025, 16:09 | Insight
Patricia Liaw Thanks ISTH SSC on Platelet Immunology
Patricia Liaw, Professor at McMaster University, posted on X: “Thank you to ISTH SSC on Platelet…
Kazakhstan Joins EHC Haemophilia as 49th Member to Advance Hemophilia Care
Jun 27, 2025, 16:02 | Insight
Kazakhstan Joins EHC Haemophilia as 49th Member to Advance Hemophilia Care
EHC Haemophilia (The European Haemophilia Consortium) has recently shared a post on X: “Welcome, Kazakhstan…
Is the Glanzmann Era Finally Over? Flora Peyvandi on Latest Bispecific Antibodies: ISTH 2025
Jun 25, 2025, 15:23 | Science
Is the Glanzmann Era Finally Over? Flora Peyvandi on Latest Bispecific Antibodies: ISTH 2025
Flora Peyvandi, Professor of Internal Medicine at the University of Milan and former President of…
Rewriting Your DNA in Childhood: Because Why Wait to Cure Hemophilia? | ISTH 2025 Breakthrough
Jun 24, 2025, 22:08 | Science
Rewriting Your DNA in Childhood: Because Why Wait to Cure Hemophilia? | ISTH 2025 Breakthrough
Ben Samelson-Jones, Assistant Professor of Pediatrics at University of Pennsylvania School of Medicine, posted on…
Synovitis in Hemophilia: Prognostic Biomarkers Could Guide Future Therapy
Jun 23, 2025, 11:54 | Insight
Synovitis in Hemophilia: Prognostic Biomarkers Could Guide Future Therapy
Flora Peyvandi, the previous president of ISTH, recently posted on X:  “Is clear now several…
ISTH Announces the Collaboration Agreement with EAHAD to Support Global Bleeding Disorders
Jun 23, 2025, 11:13 | Insight
ISTH Announces the Collaboration Agreement with EAHAD to Support Global Bleeding Disorders
International Society on Thrombosis and Haemostasis (ISTH) — shared on Facebook: "Signed, sealed, delivered! We’re…
Learn About the Latest Treatment Innovations at GPAS 2025 - WFH
Jun 20, 2025, 07:19 | Organizations
Learn About the Latest Treatment Innovations at GPAS 2025 - WFH
The World Federation of Hemophilia (WFH) shared a post on X: "Learn about the latest…
WFH Shared Decision-Making Tool: Help Improve Hemophilia Care
Jun 15, 2025, 09:44 | Insight
WFH Shared Decision-Making Tool: Help Improve Hemophilia Care
The World Federation of Hemophilia (WFH) posted on X: “Help improve hemophilia care! The WFH…
3-Year Outcomes of AAV Gene Therapy in Hemophilia B: Study Published in NEJM Shows Long-Term Factor IX Expression
Jun 13, 2025, 07:54 | Science
3-Year Outcomes of AAV Gene Therapy in Hemophilia B: Study Published in NEJM Shows Long-Term Factor IX Expression
The New England Journal of Medicine posted on X: “Liver-targeting adeno-associated virus–mediated gene therapy led…
Review of Factor IX Replacement Therapy in Hemophilia B with CSL Behring on June 22
Jun 12, 2025, 10:33 | Insight
Review of Factor IX Replacement Therapy in Hemophilia B with CSL Behring on June 22
International Society on Thrombosis and Haemostasis (ISTH) shared a post on X: “Join CSLBehring on…
At ISTH 2025, Novo Nordisk Will Share Phase 3 Hemophilia Study Results
Jun 11, 2025, 07:38 | Insight
At ISTH 2025, Novo Nordisk Will Share Phase 3 Hemophilia Study Results
Novo Nordisk US shared on X: “Novo Nordisk is presenting our latest hemophilia research data,…
Haemnet Invites Personal Stories to Support Bleeding Disorders Research
Jun 6, 2025, 16:57 | Organizations
Haemnet Invites Personal Stories to Support Bleeding Disorders Research
Haemnet — shared on X: "Individual stories really do matter when it comes to understanding…
Register Now: ERIN Webinar on Rare Bleeding Disorders – June 10, 18:00 CEST | For Patients and Healthcare Professionals
Jun 5, 2025, 05:32 | Insight
Register Now: ERIN Webinar on Rare Bleeding Disorders – June 10, 18:00 CEST | For Patients and Healthcare Professionals
The European Haemophilia Consortium (EHC) recently shared on X: “Next week join our ERIN Webinar…
Support Network for Hemophilia B Patients on the Path to Gene Therapy
Jun 3, 2025, 13:00 | Insight
Support Network for Hemophilia B Patients on the Path to Gene Therapy
The Coalition for Hemophilia B has published on X: “The Coalition for Hemophilia B proudly offers…
World Federation of Hemophilia (WFH) 2024 Annual Report: Major Advances in Global Care and Access for Bleeding Disorders
Jun 3, 2025, 08:58 | Insight
World Federation of Hemophilia (WFH) 2024 Annual Report: Major Advances in Global Care and Access for Bleeding Disorders
The World Federation of Hemophilia (WFH) just posted on X: “In 2024, the WFH: Increased WGBD…
Flora Peyvandi Shares New AVA-PED-301 Study on Avatrombopag in Pediatric ITP
May 28, 2025, 12:48 | Insight
Flora Peyvandi Shares New AVA-PED-301 Study on Avatrombopag in Pediatric ITP
Flora Peyvandi, recently posted on X: “Avatrombopag for the treatment of children and adolescents with…
Join the EHC ERIN Webinar on Addressing the Needs of People with Bleeding Disorders
May 27, 2025, 14:34 | Voices
Join the EHC ERIN Webinar on Addressing the Needs of People with Bleeding Disorders
EHC_Haemophilia — shared on X: "Join the EHC ERIN Webinar on Addressing the Needs of…
EHC to Host ERIN Webinar on Needs of People with Extremely Rare Bleeding Disorders
May 10, 2025, 12:49 | Voices
EHC to Host ERIN Webinar on Needs of People with Extremely Rare Bleeding Disorders
The European Haemophilia Consortium shared a post on X: "Join the EHC ERIN Webinar on…
Marius Tanase Joins Experts at WFH 2025 to Address Bleeding Disorders Care
May 10, 2025, 09:46 | Voices
Marius Tanase Joins Experts at WFH 2025 to Address Bleeding Disorders Care
The European Haemophilia Consortium (EHC) shared a post on X: "EHC Steering Committee Member Marius…
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