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bleeding disorders

WFH PACT Program Identifies 27,000+ New Bleeding Disorder Patients in 2024 Impact Report
Jul 11, 2025, 15:14 | Organizations
WFH PACT Program Identifies 27,000+ New Bleeding Disorder Patients in 2024 Impact Report
The World Federation of Hemophilia (WFH) recently shared a post on X: ”The WFH PACT…
From Protocol to Practice: EuroIntervention's Role in ESC Hot Line 7
Jul 11, 2025, 15:10 | Drugs
From Protocol to Practice: EuroIntervention's Role in ESC Hot Line 7
Davide Capodanno, Professor of Cardiology at University of Catania, Italy has posted on X: “To…
Thrombosis with Thrombocytopenia, Post Vaccination Syndrome
Jul 11, 2025, 14:53 | Science
Thrombosis with Thrombocytopenia, Post Vaccination Syndrome
Thrombosis UK shared a post on X: “Thrombosis UK led patient involvement in the thrombosis…
EHC: Recognizing Von Willebrand Factor as a Critical Medicine in Bleeding Care
Jul 10, 2025, 18:11 | Organizations
EHC: Recognizing Von Willebrand Factor as a Critical Medicine in Bleeding Care
The European Haemophilia Consortium (EHC) recently shared a post on X: ''Von Willebrand Disease affects 1:1000…
Free Webinar - Anticoagulation and Heavy Menstrual Bleeding in Women
Jul 10, 2025, 11:15 | Science
Free Webinar - Anticoagulation and Heavy Menstrual Bleeding in Women
Thrombosis UK shared a post on X: “Thursday 10 July - Free! Prof B Hunt…
EAHAD e-Module: Your 1-Stop Guide to Understanding Factor VII Deficiency
Jul 8, 2025, 18:22 | Organizations
EAHAD e-Module: Your 1-Stop Guide to Understanding Factor VII Deficiency
The European Association for Haemophilia and Allied Disorders (EAHAD) recently shared a post on X:…
Start the Journey to EAHAD 2026 in Dublin – Message from President Prof. Niamh O’Connell
Jul 8, 2025, 08:41 | Insight
Start the Journey to EAHAD 2026 in Dublin – Message from President Prof. Niamh O’Connell
The European Association for Haemophilia and Allied Disorders (EAHAD), has shared a post on X:…
Optimal Timing of Anticoagulation after Ischaemic Stroke and Atrial Fibrillation
Jul 8, 2025, 08:04 | Science
Optimal Timing of Anticoagulation after Ischaemic Stroke and Atrial Fibrillation
The Lancet medical journal shared a post on X: “ICYMI Collaboration on the optimal timing…
Preparing for School Vaccinations with a Bleeding Disorder
Jul 7, 2025, 17:47 | Drugs
Preparing for School Vaccinations with a Bleeding Disorder
Hemophilia of Georgia recently shared a post on vaccinations on X: ''As the new school…
Haemophilia Society Thanks Jeans for Genes for Supporting First-Ever Haemophilia Society Sports Day
Jul 7, 2025, 11:53 | Insight
Haemophilia Society Thanks Jeans for Genes for Supporting First-Ever Haemophilia Society Sports Day
Haemophilia Society shared a post on X: “A huge thanks to Jeans for Genes for…
Hemophilia Federation of America Celebrates Member Organizations Supporting Bleeding Disorders
Jul 7, 2025, 11:49 | Insight
Hemophilia Federation of America Celebrates Member Organizations Supporting Bleeding Disorders
Hemophilia Federation of America (HFA), shared a post on X:   “Today, we’re celebrating all…
Anticoagulation Timing After Decompressive Surgery for Cerebral Venous Thrimbosis
Jul 7, 2025, 11:46 | Science
Anticoagulation Timing After Decompressive Surgery for Cerebral Venous Thrimbosis
The International Journal of Stroke recently shared a post on X: “Timing of anticoagulation following…
Patients as Experts: EHC Calls for Early Involvement in HTA Systems
Jul 6, 2025, 15:02 | Voices
Patients as Experts: EHC Calls for Early Involvement in HTA Systems
The European Haemophilia Consortium shared a post on X: “Time to make Patients critical to…
Bleeding Disorders in 2035: Michael Makris is Future-Focused at HABIT Summit 2025
Jul 5, 2025, 17:24 | Insight
Bleeding Disorders in 2035: Michael Makris is Future-Focused at HABIT Summit 2025
Brian O Mahony, CEO of Irish Haemophilia Society, posted in appreciation of Michael Makris on…
Calling Physiotherapists: Contribute to Shaping Care for Women with Bleeding Disorders by Sharing Insights on Physical Health and Physiotherapy
Jul 5, 2025, 16:30 | Insight
Calling Physiotherapists: Contribute to Shaping Care for Women with Bleeding Disorders by Sharing Insights on Physical Health and Physiotherapy
The Haemophilia Chartered Physiotherapists Association (HCPA) reposted the WOMEN Study's post on X: “Calling Physiotherapists…
Empowering Advocacy Through Regulatory Insight: EMA Training for Bleeding Disorders Community
Jul 4, 2025, 17:02 | Organizations
Empowering Advocacy Through Regulatory Insight: EMA Training for Bleeding Disorders Community
The European Haemophilia Consortium shared a thrilled post on advancing advocacy on X: ''Great to…
Honoring Excellence in Bleeding Disorders Care: Kathy Mulder Appointed to the Order of Canada
Jul 4, 2025, 16:32 | Organizations
Honoring Excellence in Bleeding Disorders Care: Kathy Mulder Appointed to the Order of Canada
The World Federation of Hemophilia (WFH) shared an honoring post for Kathy Mulder on X:…
Flora Peyvandi: Endothelial Heterogeneity Shapes Shear Stress Response via KLF2, KLF4, NOS3
Jul 4, 2025, 16:06 | Insight
Flora Peyvandi: Endothelial Heterogeneity Shapes Shear Stress Response via KLF2, KLF4, NOS3
Flora Peyvandi, Past-President of ISTH, shared a post on X: “Endothelial heterogeneity shapes shear stress…
1 Week Left: Join WFH Global Summit on Advancing Access for Bleeding Disorders Community
Jul 3, 2025, 16:48 | Organizations
1 Week Left: Join WFH Global Summit on Advancing Access for Bleeding Disorders Community
The World Federation of Hemophilia (WFH) shared an inviting post on X: ''Just 1 week…
Phil Gattone on ''One Big Beautiful Bill Act'': NBDF will continue to advocate vigorously
Jul 3, 2025, 16:09 | Organizations
Phil Gattone on ''One Big Beautiful Bill Act'': NBDF will continue to advocate vigorously
National Bleeding Disorders Foundation (NBDF) shared a statement post on X: ''Congress passed the 'One…
The Real Cost of Healthcare Cuts: HFA is Launching a Campaign | Advocate for Bleeding Disorders Community
Jul 2, 2025, 04:56 | Organizations
The Real Cost of Healthcare Cuts: HFA is Launching a Campaign | Advocate for Bleeding Disorders Community
Bleeding Disorders Council of California recently shared a post on X, urging to join the…
Project SHARE: Global Support, Real Impact | Calyx’s Hemophilia Journey Made Possible by Donations
Jul 1, 2025, 18:47 | Organizations
Project SHARE: Global Support, Real Impact | Calyx’s Hemophilia Journey Made Possible by Donations
Save One Life recently shared an encouraging post on X: This is Calyx, an 11…
5th EHC HTA Stakeholder Meeting: Driving Change for the Bleeding Disorders Community
Jul 1, 2025, 18:13 | Organizations
5th EHC HTA Stakeholder Meeting: Driving Change for the Bleeding Disorders Community
The European Haemophilia Consortium recently shared a post on X: ''We had a meaningful day…
What Is Hemophilia? Learn More About the Rare Bleeding Disorder Explained By WFH
Jul 1, 2025, 07:53 | Insight
What Is Hemophilia? Learn More About the Rare Bleeding Disorder Explained By WFH
The World Federation of Hemophilia (WFH), shared on X: “What is hemophilia and what does…
Mark Your Calendar: EAHAD 2026 in Dublin From 3–6 February 2026
Jul 1, 2025, 07:23 | Insight
Mark Your Calendar: EAHAD 2026 in Dublin From 3–6 February 2026
EAHAD, the  European Association for Haemophilia and Allied Disorders, just posted on X: “The 19th…
EHC Youth Fellowship 2025 – Paid Internship in Brussels for NMO Members
Jun 29, 2025, 13:51 | Insight
EHC Youth Fellowship 2025 – Paid Internship in Brussels for NMO Members
EHC Haemophilia (The European Haemophilia Consortium) shared a post on X: “Join our EHC Youth…
Patricia Liaw Thanks ISTH SSC on Platelet Immunology
Jun 27, 2025, 16:09 | Insight
Patricia Liaw Thanks ISTH SSC on Platelet Immunology
Patricia Liaw, Professor at McMaster University, posted on X: “Thank you to ISTH SSC on Platelet…
Kazakhstan Joins EHC Haemophilia as 49th Member to Advance Hemophilia Care
Jun 27, 2025, 16:02 | Insight
Kazakhstan Joins EHC Haemophilia as 49th Member to Advance Hemophilia Care
EHC Haemophilia (The European Haemophilia Consortium) has recently shared a post on X: “Welcome, Kazakhstan…
Is the Glanzmann Era Finally Over? Flora Peyvandi on Latest Bispecific Antibodies: ISTH 2025
Jun 25, 2025, 15:23 | Science
Is the Glanzmann Era Finally Over? Flora Peyvandi on Latest Bispecific Antibodies: ISTH 2025
Flora Peyvandi, Professor of Internal Medicine at the University of Milan and former President of…
Rewriting Your DNA in Childhood: Because Why Wait to Cure Hemophilia? | ISTH 2025 Breakthrough
Jun 24, 2025, 22:08 | Science
Rewriting Your DNA in Childhood: Because Why Wait to Cure Hemophilia? | ISTH 2025 Breakthrough
Ben Samelson-Jones, Assistant Professor of Pediatrics at University of Pennsylvania School of Medicine, posted on…
Synovitis in Hemophilia: Prognostic Biomarkers Could Guide Future Therapy
Jun 23, 2025, 11:54 | Insight
Synovitis in Hemophilia: Prognostic Biomarkers Could Guide Future Therapy
Flora Peyvandi, the previous president of ISTH, recently posted on X:  “Is clear now several…
ISTH Announces the Collaboration Agreement with EAHAD to Support Global Bleeding Disorders
Jun 23, 2025, 11:13 | Insight
ISTH Announces the Collaboration Agreement with EAHAD to Support Global Bleeding Disorders
International Society on Thrombosis and Haemostasis (ISTH) — shared on Facebook: "Signed, sealed, delivered! We’re…
Learn About the Latest Treatment Innovations at GPAS 2025 - WFH
Jun 20, 2025, 07:19 | Organizations
Learn About the Latest Treatment Innovations at GPAS 2025 - WFH
The World Federation of Hemophilia (WFH) shared a post on X: "Learn about the latest…
WFH Shared Decision-Making Tool: Help Improve Hemophilia Care
Jun 15, 2025, 09:44 | Insight
WFH Shared Decision-Making Tool: Help Improve Hemophilia Care
The World Federation of Hemophilia (WFH) posted on X: “Help improve hemophilia care! The WFH…
3-Year Outcomes of AAV Gene Therapy in Hemophilia B: Study Published in NEJM Shows Long-Term Factor IX Expression
Jun 13, 2025, 07:54 | Science
3-Year Outcomes of AAV Gene Therapy in Hemophilia B: Study Published in NEJM Shows Long-Term Factor IX Expression
The New England Journal of Medicine posted on X: “Liver-targeting adeno-associated virus–mediated gene therapy led…
Review of Factor IX Replacement Therapy in Hemophilia B with CSL Behring on June 22
Jun 12, 2025, 10:33 | Insight
Review of Factor IX Replacement Therapy in Hemophilia B with CSL Behring on June 22
International Society on Thrombosis and Haemostasis (ISTH) shared a post on X: “Join CSLBehring on…
At ISTH 2025, Novo Nordisk Will Share Phase 3 Hemophilia Study Results
Jun 11, 2025, 07:38 | Insight
At ISTH 2025, Novo Nordisk Will Share Phase 3 Hemophilia Study Results
Novo Nordisk US shared on X: “Novo Nordisk is presenting our latest hemophilia research data,…
Haemnet Invites Personal Stories to Support Bleeding Disorders Research
Jun 6, 2025, 16:57 | Organizations
Haemnet Invites Personal Stories to Support Bleeding Disorders Research
Haemnet — shared on X: "Individual stories really do matter when it comes to understanding…
Register Now: ERIN Webinar on Rare Bleeding Disorders – June 10, 18:00 CEST | For Patients and Healthcare Professionals
Jun 5, 2025, 05:32 | Insight
Register Now: ERIN Webinar on Rare Bleeding Disorders – June 10, 18:00 CEST | For Patients and Healthcare Professionals
The European Haemophilia Consortium (EHC) recently shared on X: “Next week join our ERIN Webinar…
Support Network for Hemophilia B Patients on the Path to Gene Therapy
Jun 3, 2025, 13:00 | Insight
Support Network for Hemophilia B Patients on the Path to Gene Therapy
The Coalition for Hemophilia B has published on X: “The Coalition for Hemophilia B proudly offers…
World Federation of Hemophilia (WFH) 2024 Annual Report: Major Advances in Global Care and Access for Bleeding Disorders
Jun 3, 2025, 08:58 | Insight
World Federation of Hemophilia (WFH) 2024 Annual Report: Major Advances in Global Care and Access for Bleeding Disorders
The World Federation of Hemophilia (WFH) just posted on X: “In 2024, the WFH: Increased WGBD…
Flora Peyvandi Shares New AVA-PED-301 Study on Avatrombopag in Pediatric ITP
May 28, 2025, 12:48 | Insight
Flora Peyvandi Shares New AVA-PED-301 Study on Avatrombopag in Pediatric ITP
Flora Peyvandi, recently posted on X: “Avatrombopag for the treatment of children and adolescents with…
Join the EHC ERIN Webinar on Addressing the Needs of People with Bleeding Disorders
May 27, 2025, 14:34 | Voices
Join the EHC ERIN Webinar on Addressing the Needs of People with Bleeding Disorders
EHC_Haemophilia — shared on X: "Join the EHC ERIN Webinar on Addressing the Needs of…
EHC to Host ERIN Webinar on Needs of People with Extremely Rare Bleeding Disorders
May 10, 2025, 12:49 | Voices
EHC to Host ERIN Webinar on Needs of People with Extremely Rare Bleeding Disorders
The European Haemophilia Consortium shared a post on X: "Join the EHC ERIN Webinar on…
Marius Tanase Joins Experts at WFH 2025 to Address Bleeding Disorders Care
May 10, 2025, 09:46 | Voices
Marius Tanase Joins Experts at WFH 2025 to Address Bleeding Disorders Care
The European Haemophilia Consortium (EHC) shared a post on X: "EHC Steering Committee Member Marius…
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