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Flora Peyvandi: Reappraising Hemostasis Testing in Cirrhosis
Sep 1, 2025, 07:39 | Science
Flora Peyvandi: Reappraising Hemostasis Testing in Cirrhosis
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
Avatrombopag Shows Promise for Pediatric Immune Thrombocytopenia in Late-Stage Global Trial: NBDF
Aug 31, 2025, 07:31 | Organizations
Avatrombopag Shows Promise for Pediatric Immune Thrombocytopenia in Late-Stage Global Trial: NBDF
National Bleeding Disorders Foundation shared on LinkedIn: "Promising news for children and adolescents living with…
Rishabh Singh Shares Enthusiasm for Blood Podcast on RNA Therapeutics in Hematology
Aug 31, 2025, 07:26 | Insight
Rishabh Singh Shares Enthusiasm for Blood Podcast on RNA Therapeutics in Hematology
  Rishabh Singh, an Heme/Onc fellow at Indiana University, posted on X: ''Listened to this…
BDCC Future Leaders ’26: Empowering Teens Like Sarada Venigalla to Share Their Stories
Aug 30, 2025, 14:42 | Insight
BDCC Future Leaders ’26: Empowering Teens Like Sarada Venigalla to Share Their Stories
  Bleeding Disorders Council of California posted on X: ''BDCC Future Leaders Speak Up. Sarada…
Michael Makris Shares French Regulatory Update: Marstacimab (Hympavzi) Not Recommended for Severe Haemophilia A or B
Aug 30, 2025, 14:39 | Insight
Michael Makris Shares French Regulatory Update: Marstacimab (Hympavzi) Not Recommended for Severe Haemophilia A or B
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, UK. Editor-in-Chief…
Wolfgang Miesbach on Transforming Care for Women and Girls with Bleeding Disorders: Key Guidelines 2021–2024
Aug 29, 2025, 19:18 | Insight
Wolfgang Miesbach on Transforming Care for Women and Girls with Bleeding Disorders: Key Guidelines 2021–2024
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on LinkedIn: “Advancing…
Emicizumab in Acquired Haemophilia A: Insights from Dutch Case Series Published by Haemnet
Aug 27, 2025, 17:20 | Insight
Emicizumab in Acquired Haemophilia A: Insights from Dutch Case Series Published by Haemnet
  Haemnet posted on X: ''New in The Journal of Haemophilia Practice: a case series…
Professor Michael Makris Shares Albert Farrugia’s Commentary on the UK Infected Blood Inquiry
Aug 27, 2025, 17:18 | Insight
Professor Michael Makris Shares Albert Farrugia’s Commentary on the UK Infected Blood Inquiry
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, UK. Editor-in-Chief…
Women’s Equality Day: HFA Recognizes Women with Bleeding Disorders
Aug 26, 2025, 10:02 | Insight
Women’s Equality Day: HFA Recognizes Women with Bleeding Disorders
Hemophilia Federation of America (HFA) published on X: “Today is Womens Equality Day As we honor…
New EHC Report: Strengthening Bleeding Disorder Registries for Better Care
Aug 26, 2025, 09:27 | Insight
New EHC Report: Strengthening Bleeding Disorder Registries for Better Care
The European Haemophilia Consortium (EHC), has shared a post on X: “EHC Think Tank releases…
4th WFH Global Summit on Women and Girls with Bleeding Disorders! Register Now
Aug 25, 2025, 09:57 | Organizations
4th WFH Global Summit on Women and Girls with Bleeding Disorders! Register Now
World Federation of Hemophilia (WFH) shared on LinkedIn: ”The full program for the 4th WFH…
World Federation of Hemophilia – Celebrating the Chapter Challenge Partnership
Aug 25, 2025, 09:10 | Organizations
World Federation of Hemophilia – Celebrating the Chapter Challenge Partnership
World Federation of Hemophilia shared an honoring post on X: "Since 2016, the Chapter Challenge…
BDC2025 Wrap-Up: Bleeding Disorders Council of California Plans Next Year’s Orlando Event
Aug 25, 2025, 09:05 | Insight
BDC2025 Wrap-Up: Bleeding Disorders Council of California Plans Next Year’s Orlando Event
   Bleeding Disorders Council of California posted on X: ''Headed home after a busy week…
Women and Girls with Bleeding Disorders: WFH Reveals Full Agenda for Global Summit
Aug 25, 2025, 09:02 | Insight
Women and Girls with Bleeding Disorders: WFH Reveals Full Agenda for Global Summit
  The World Federation of Hemophilia (WFH) posted on X: ''The full program for the…
Wolfgang Miesbach on AAV5 Antibodies in Hemophilia B Gene Therapy
Aug 25, 2025, 08:16 | Science
Wolfgang Miesbach on AAV5 Antibodies in Hemophilia B Gene Therapy
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on LinkedIn: “New…
World Federation of Hemophilia Celebrates Glenn Pierce’s Lifetime Achievement Award from NBDF
Aug 24, 2025, 08:39 | Insight
World Federation of Hemophilia Celebrates Glenn Pierce’s Lifetime Achievement Award from NBDF
  World Federation of Hemophilia (WFH) shared on X: ''Congratulations to WFH’s VP Medical, Glenn…
Hemophilia Doesn’t Define Me—Skyler Tulley’s 100-Mile Challenge
Aug 23, 2025, 16:06 | Insight
Hemophilia Doesn’t Define Me—Skyler Tulley’s 100-Mile Challenge
Hemophilia Federation of America (HFA) published on X: ”Skyler Tulley, born with severe Hemophilia B, refuses…
Don’t Miss WFH at BDC2025: Learn About Worldwide Initiatives and Special WFHCongress2026 Discount
Aug 23, 2025, 08:23 | Insight
Don’t Miss WFH at BDC2025: Learn About Worldwide Initiatives and Special WFHCongress2026 Discount
World Federation of Hemophilia (WFH) shared on X: “At BCD2025? Come see us! Visit the…
Wolfgang Miesbach Discusses AAV Gene Therapy Safety in Hemophilia B: NEJM Correspondence Highlights Cancer Monitoring
Aug 22, 2025, 14:52 | Insight
Wolfgang Miesbach Discusses AAV Gene Therapy Safety in Hemophilia B: NEJM Correspondence Highlights Cancer Monitoring
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on Linkedin: “Happy…
WFH President Cesar Garrido Expresses Gratitude to the National Bleeding Disorders Foundation at BDC 2025
Aug 22, 2025, 03:56 | Organizations
WFH President Cesar Garrido Expresses Gratitude to the National Bleeding Disorders Foundation at BDC 2025
World Federation of Hemophilia (WFH) shared on LinkedIn: ''WFH President, Cesar Garrido thanked the National…
Lupus Anticoagulant-Hypoprothrombinemia Syndrome: Review by Doris Barcellona and Colleagues
Aug 22, 2025, 03:37 | Science
Lupus Anticoagulant-Hypoprothrombinemia Syndrome: Review by Doris Barcellona and Colleagues
Maria Filomena Ruberto, Biologist specialized in Clinical Pathology and Clinical Biochemistry and II Level Master's…
EHC 2025: Young Voices Shaping the Future of Bleeding Disorders
Aug 19, 2025, 14:23 | Insight
EHC 2025: Young Voices Shaping the Future of Bleeding Disorders
The European Haemophilia Consortium (EHC), has shared a post on X: “Amplifying young voices at…
Wolfgang Miesbach on Lifelong Monitoring and Therapy Trends in Female Hemophilia Carriers
Aug 19, 2025, 14:16 | Insight
Wolfgang Miesbach on Lifelong Monitoring and Therapy Trends in Female Hemophilia Carriers
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on Linkedin: “New…
EAHAD 2026 Dublin: Join Leading Haemophilia Experts for Research Insights and Networking
Aug 17, 2025, 15:26 | Insight
EAHAD 2026 Dublin: Join Leading Haemophilia Experts for Research Insights and Networking
European Association for Haemophilia and Allied Disorders (EAHAD) posted on X: “Connect with leading voices…
HFA Addressing Iron Deficiency in Females With Bleeding Disorders
Aug 16, 2025, 16:50 | Organizations
HFA Addressing Iron Deficiency in Females With Bleeding Disorders
Hemophilia Federation of America (HFA) has recently shared a post on X: “Iron deficiency is…
Join Florida’s 18th Annual Superhero Walk – Register Now and Form Your Team for a Cause
Aug 15, 2025, 23:31 | Organizations
Join Florida’s 18th Annual Superhero Walk – Register Now and Form Your Team for a Cause
Bleeding Disorders Foundation of Florida posted on X: ''Pack your cape, supersuit, and your sunscreen…
Call for Global Action on Bleeding Disorders from Baumann, Christoforou and Klamroth
Aug 15, 2025, 03:44 | Voices
Call for Global Action on Bleeding Disorders from Baumann, Christoforou and Klamroth
Kedrion Biopharma shared an insightful post on LiknedIn: “Global voices on bleeding disorders: from awareness…
Health-related Quality of Life in Children with von Willebrand Disease
Aug 14, 2025, 23:47 | Science
Health-related Quality of Life in Children with von Willebrand Disease
Journal of Thrombosis and Haemostasis (JTH) shared on LinkedIn: ''Health-related quality of life in children…
Giuseppe Lippi on Laboratory Diagnostics for Immediate Management of Acute Bleeding
Aug 13, 2025, 16:24 | Science
Giuseppe Lippi on Laboratory Diagnostics for Immediate Management of Acute Bleeding
Giuseppe Lippi, Full Professor of Clinical Biochemistry and Molecular Biology and Dean of Medicine at…
Watch Now: NBDF Debuts ‘'Women’s Wellness in Bleeding Disorders’'
Aug 13, 2025, 09:44 | Organizations
Watch Now: NBDF Debuts ‘'Women’s Wellness in Bleeding Disorders’'
National Bleeding Disorders Foundation (NBDF) shared an inviting post on LinkedIn: ''Our latest Collaborative Learning…
VELORA Discover Study Now Enrolling: Advancing Care for Type 1 Von Willebrand Disease
Aug 13, 2025, 09:21 | Insight
VELORA Discover Study Now Enrolling: Advancing Care for Type 1 Von Willebrand Disease
Hemab Therapeutics shared an inviting post on X: ''Now enrolling people living with Type 1…
Save the Date: WFH 2026 World Congress in Kuala Lumpur
Aug 13, 2025, 07:58 | Organizations
Save the Date: WFH 2026 World Congress in Kuala Lumpur
The World Federation of Haemophilia (WFH) shared an inviting post on X: “Save the date!…
NBDF: Think You Know Bleeding Disorders? Prove It on August 21!
Aug 12, 2025, 16:01 | Organizations
NBDF: Think You Know Bleeding Disorders? Prove It on August 21!
National Bleeding Disorders Foundation (NBDF) shared an inviting post on LinekedIn: ''Think you know bleeding…
WFH Humanitarian Aid Program Hosts Workshop on Hemophilia Diagnosis and Management in Türkiye
Aug 11, 2025, 13:20 | Insight
WFH Humanitarian Aid Program Hosts Workshop on Hemophilia Diagnosis and Management in Türkiye
World Federation of Hemophilia recently shared on Linkedin: “The WFH Humanitarian Aid Program hosted a workshop…
Move Smart Hurt Less, Physical Therapy Tips: Join NBDF Interactive Session
Aug 11, 2025, 00:52 | Organizations
Move Smart Hurt Less, Physical Therapy Tips: Join NBDF Interactive Session
National Bleeding Disorders Foundation (NBDF) shared an inviting post on LinkedIn: ''Protect your joints and…
CRH: Hereditary Combined Deficiency of the Vitamin K-Dependent Coagulation Factors
Aug 10, 2025, 06:33 | Science
CRH: Hereditary Combined Deficiency of the Vitamin K-Dependent Coagulation Factors
CRH French Reference Center for Hemophilia, Lyon shared an insightful post on LinkedIn: ''New publication…
Karl Desch Shares Insights On a Recent Study on GWAS by Thibord et al
Aug 10, 2025, 06:01 | Science
Karl Desch Shares Insights On a Recent Study on GWAS by Thibord et al
Karl Desch, Associate Professor of Pediatrics at University of Michigan, shared an insightful post on…
HFA Shares Past Experiences and Invites You to Join Australian Bleeding Disorders Conference 2025
Aug 10, 2025, 05:33 | Organizations
HFA Shares Past Experiences and Invites You to Join Australian Bleeding Disorders Conference 2025
Haemophilia Foundation Australia (HFA) shared an inviting post on LinkedIn: ''The Australian Bleeding Disorders Conference…
Sara García Barcenilla: High-Quality Care for People with Hemophilia and Congenital Bleeding Disorders
Aug 10, 2025, 04:39 | Science
Sara García Barcenilla: High-Quality Care for People with Hemophilia and Congenital Bleeding Disorders
Sara García Barcenilla, Nurse in the Thrombosis and Hemostasis Unit, La Paz-IdiPAZ University Hospital, shared…
Educational Grants for Students with Bleeding Disorders – Apply by October 3
Aug 9, 2025, 17:50 | Organizations
Educational Grants for Students with Bleeding Disorders – Apply by October 3
The Irish Haemophilia Society posted on X: ''Students, don't miss the chance to apply for…
Hemophilia Alliance during Tennessee Hemophilia and Bleeding Disorders Foundation Annual Meeting 2025
Aug 8, 2025, 18:33 | Voices
Hemophilia Alliance during Tennessee Hemophilia and Bleeding Disorders Foundation Annual Meeting 2025
Hemophilia Alliance shared a proud post on LinkedIn: ''Hemophilia Alliance attended the Tennessee Hemophilia and…
Wolfgang Miesbach on Frailty in Hemophilia: New Data Shows 3x Higher Risk
Aug 8, 2025, 11:59 | Insight
Wolfgang Miesbach on Frailty in Hemophilia: New Data Shows 3x Higher Risk
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a proud post on Linkedin:…
Louise Bannon on WHO Global Guide to Advance Respectful Maternal and Newborn Care Launched
Aug 7, 2025, 11:19 | Organizations
Louise Bannon on WHO Global Guide to Advance Respectful Maternal and Newborn Care Launched
Louise Bannon, Global Communications Leader, University of North Carolina at Charlotte, reposted from World Health…
ISTH Claire McLintock Award: Deadline September 1
Aug 7, 2025, 11:00 | Organizations
ISTH Claire McLintock Award: Deadline September 1
International Society on Thrombosis and Haemostasis (ISTH) shared an encouraging post on LinkedIn: ''Now Accepting…
WFH Educational Platform Highlights the Broader Spectrum of Bleeding Disorders
Aug 7, 2025, 04:30 | Insight
WFH Educational Platform Highlights the Broader Spectrum of Bleeding Disorders
The World Federation of Haemophilia (WFH) shared a post on X: “Bleeding Disorders encompass more…
Dawn Rotellini Champions Women’s Health in Bleeding Disorders
Aug 6, 2025, 17:21 | Organizations
Dawn Rotellini Champions Women’s Health in Bleeding Disorders
Dawn Rotellini, Chief Operating Officer at National Bleeding Disorders Foundation, shared reposting from NBDF on…
Heghine Khachatryan Acknowledges WFH Medical Board’s Insightful Lectures on Bleeding Disorders
Aug 6, 2025, 01:59 | Insight
Heghine Khachatryan Acknowledges WFH Medical Board’s Insightful Lectures on Bleeding Disorders
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, has shared…
Yara Dixon Shares Interesting Study on Heavy Menstrual Bleeding in Young Women
Aug 6, 2025, 01:46 | Science
Yara Dixon Shares Interesting Study on Heavy Menstrual Bleeding in Young Women
Yara Dixon, MD and PhD candidate in pediatric hematology and sociology at Erasmus MC, has…
WFH Humanitarian Aid Program Brings Hope to Cambodian Families with Hemophilia
Aug 6, 2025, 01:35 | Insight
WFH Humanitarian Aid Program Brings Hope to Cambodian Families with Hemophilia
The World Federation of Haemophilia (WFH) shared a  post on X: “Thanks to the treatment…
Heghine Khachatryan: Honored to Be Part of The WFH Regional Workshop 2025
Aug 5, 2025, 17:59 | Voices
Heghine Khachatryan: Honored to Be Part of The WFH Regional Workshop 2025
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Personalized Perioperative Management in Hemophilia: Key Insights from Heghine Khachatryan
Aug 5, 2025, 02:28 | Insight
Personalized Perioperative Management in Hemophilia: Key Insights from Heghine Khachatryan
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Heghine Khachatryan Shares Highlights from WFH on PROBE and WBDR Impact
Aug 5, 2025, 00:15 | Insight
Heghine Khachatryan Shares Highlights from WFH on PROBE and WBDR Impact
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
MADD: First Causal Gene for Quantitative Von Willebrand Disease Discovered
Aug 4, 2025, 17:29 | Science
MADD: First Causal Gene for Quantitative Von Willebrand Disease Discovered
Isabel Bär, PhD candidate at Erasmus MC, shared a proud post on LinkedIn: ''Unraveling the…
Honoring Visionary Leadership in Hemophilia Care: A Tribute to Drs. Cesar Garrido and Assad Haffar
Aug 4, 2025, 16:44 | Insight
Honoring Visionary Leadership in Hemophilia Care: A Tribute to Drs. Cesar Garrido and Assad Haffar
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Thomas Reiser Invites You to Join the ISTH Academy Industry Portal: Be at the Forefront
Aug 4, 2025, 15:24 | Organizations
Thomas Reiser Invites You to Join the ISTH Academy Industry Portal: Be at the Forefront
Thomas Reiser, Executive Director of International Society on Thrombosis and Haemostasis (ISTH), shared an invitation,…
Women with Inherited Bleeding Disorders: Overcoming Diagnostic and Clinical Challenge
Aug 4, 2025, 04:58 | Insight
Women with Inherited Bleeding Disorders: Overcoming Diagnostic and Clinical Challenge
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Michael Makris Posts Haemophilia Journal Article Reassessing UK Blood Inquiry
Aug 4, 2025, 01:59 | Science
Michael Makris Posts Haemophilia Journal Article Reassessing UK Blood Inquiry
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, UK. Editor-in-Chief…
EAHAD Launches Italian Booklet to Support Young Girls With Bleeding Disorders During Their First Period
Aug 4, 2025, 01:37 | Insight
EAHAD Launches Italian Booklet to Support Young Girls With Bleeding Disorders During Their First Period
EAHAD posted on X: ''The EAHAD WG+BD WG has just released the Italian version of…
Andrew Agwunobi Congrats Dr. Oladipo Cole and The Whole Team at the Connecticut Bleeding Disorder Center
Aug 3, 2025, 18:10 | Voices
Andrew Agwunobi Congrats Dr. Oladipo Cole and The Whole Team at the Connecticut Bleeding Disorder Center
Andrew Agwunobi, Executive Vice President of Health Affairs and CEO of the University of Connecticut…
Nathan Connell: What Is The "Mild Equivalent" For Hemophilia A That Is Achieved While on Emicizumab?
Aug 3, 2025, 17:48 | Science
Nathan Connell: What Is The "Mild Equivalent" For Hemophilia A That Is Achieved While on Emicizumab?
Nathan Connell, MD, MPH, FACP, Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital,…
Cedric Hermans on the Inspiring Impact of the WFH Humanitarian Aid Program Worldwide
Aug 3, 2025, 03:54 | Science
Cedric Hermans on the Inspiring Impact of the WFH Humanitarian Aid Program Worldwide
Cedric Hermans, Head of Haemophilia Centre at the Cliniques Universitaires Saint-Luc in Brussels, recently shared…
Hunter with Severe Hemophilia B: Vote for Athlete of the Year
Aug 2, 2025, 16:33 | Insight
Hunter with Severe Hemophilia B: Vote for Athlete of the Year
Hemophilia Federation of America (HFA) published on X: ”Meet Hunter – a 12-year-old community member living…
WFH in Madagascar: Advancing National Bleeding Disorder Guidelines and Governance
Aug 2, 2025, 04:14 | Insight
WFH in Madagascar: Advancing National Bleeding Disorder Guidelines and Governance
The World Federation of Hemophilia (WFH) shared a post on X: ”The WFH recently visited…
FDA Approves Novo Nordisk Prophylactic Treatment for Hemophilia A and B
Aug 2, 2025, 03:50 | Insight
FDA Approves Novo Nordisk Prophylactic Treatment for Hemophilia A and B
Novo Nordisk US has shared a proud post on X: “PRESS: Novo Nordisk receives US…
Glenn Pierce on Overcoming Barriers to Gene Therapy in Hemophilia Care
Aug 2, 2025, 03:40 | Insight
Glenn Pierce on Overcoming Barriers to Gene Therapy in Hemophilia Care
Glenn Pierce,Vice President Medical of WFH and member of the WFH USA Board of Directors…
William McKeown: Once or Twice Weekly Altuvoct? Insights
Jul 31, 2025, 16:28 | Insight
William McKeown: Once or Twice Weekly Altuvoct? Insights
William McKeown, an EHC Steering Committee Member, has recently posted on X: “Altuvoct is now…
Wolfgang Miesbach: Protecting Liver Health in Bleeding Disorders
Jul 31, 2025, 15:12 | Science
Wolfgang Miesbach: Protecting Liver Health in Bleeding Disorders
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a proud post on LinkedIn:…
Robert Sidonio on the Role of aPCC in Patients Receiving Emicizumab Prophylaxis
Jul 30, 2025, 15:53 | Science
Robert Sidonio on the Role of aPCC in Patients Receiving Emicizumab Prophylaxis
Robert Sidonio, Professor of Pediatrics at Emory University Hospital, shared a post on LinkedIn: ''It…
Leonard Valentino On The Bleeding Disorders Research Collaborative
Jul 30, 2025, 14:04 | Science
Leonard Valentino On The Bleeding Disorders Research Collaborative
Leonard Valentino, Former President and CEO of NBDF, President of WFH USA, recenlty shared a…
Investigational Therapies for VWD and Glanzmann Thrombasthenia Unveiled at ISTH 2025: 2 Promising Paths Forward
Jul 28, 2025, 15:18 | Science
Investigational Therapies for VWD and Glanzmann Thrombasthenia Unveiled at ISTH 2025: 2 Promising Paths Forward
National Bleeding Disorders Foundation (NBDF) shared a post on LinkedIn: ''Big strides in bleeding disorders…
NBDF Presents Resilience Across Borders: Stories of Strength and Hope
Jul 28, 2025, 13:42 | Organizations
NBDF Presents Resilience Across Borders: Stories of Strength and Hope
National Bleeding Disorders Foundation (NBDF) shared an encouraging post on X: ''Join us for an…
Novo Nordisk and HFA Collaboration: Hopeful Future for Hemophilia B
Jul 28, 2025, 13:18 | Organizations
Novo Nordisk and HFA Collaboration: Hopeful Future for Hemophilia B
Hemophilia Federation of America (HFA) shared a reminder post on X: ''Time is running out…
World Hepatitis Day: Prioritizing Liver Health in Bleeding Disorders
Jul 28, 2025, 12:19 | Science
World Hepatitis Day: Prioritizing Liver Health in Bleeding Disorders
The European Haemophilia Consortium (EHC) shared a post on X: “1M+ lives lost yearly to…
WFH, Sanofi and Sobi for Armenia: Unprecedented Commitment to Build the Humanitarian Aid Program
Jul 27, 2025, 15:23 | Organizations
WFH, Sanofi and Sobi for Armenia: Unprecedented Commitment to Build the Humanitarian Aid Program
Scott Williams, VP and Head, Global Public Affairs at Sanofi, shared an honoring post on…
ADA Anniversary 2025: HFA Recognizes Equity and Accessibility Milestone
Jul 27, 2025, 05:36 | Organizations
ADA Anniversary 2025: HFA Recognizes Equity and Accessibility Milestone
Hemophilia Federation of America (HFA) recently posted on X: “Today we honor the anniversary of the…
Join ATHN's Glanzmann Thrombasthenia Research: Help Advance Bleeding Disorder Care
Jul 26, 2025, 14:58 | Insight
Join ATHN's Glanzmann Thrombasthenia Research: Help Advance Bleeding Disorder Care
The American Thrombosis and Hemostasis Network (ATHN), has posted on X: “ATHN Transcends: Glanzmann Thrombasthenia…
Dr. William Aird on Diagnosing ITP: Key Clinical Clues
Jul 26, 2025, 13:16 | Insight
Dr. William Aird on Diagnosing ITP: Key Clinical Clues
 Dr. William Aird, Professor of Medicine at Harvard Medical School, has posted on X: “DIAGNOSING ITP…
Disability Pride Month: Honoring the Strength of the Bleeding Disorders Community
Jul 25, 2025, 16:33 | Organizations
Disability Pride Month: Honoring the Strength of the Bleeding Disorders Community
Hemophilia Federation of America (HFA) shared a post on X: “This Disability Pride Month, we…
WFH 2024 Annual Report: A Significant Progress
Jul 25, 2025, 16:26 | Organizations
WFH 2024 Annual Report: A Significant Progress
The World Federation of Hemophilia (WFH) shared a proud post on X: ''In 2024, the…
WFH Cornerstone Initiative: Rwanda Marks 3 Years of Participation
Jul 25, 2025, 16:22 | Organizations
WFH Cornerstone Initiative: Rwanda Marks 3 Years of Participation
The World Federation of Hemophilia (WFH) shared a proud post on X: ''The WFH recently…
Why Is Gene Therapy Uptake in Hemophilia Slower Than Expected
Jul 25, 2025, 05:40 | Science
Why Is Gene Therapy Uptake in Hemophilia Slower Than Expected
Brian O Mahony, Former President of WFH, shared a post on X: “Our paper on Why…
Dr. Bridget Freeman Explains Why Sleep Is Crucial for Chronic Care
Jul 25, 2025, 04:50 | Insight
Dr. Bridget Freeman Explains Why Sleep Is Crucial for Chronic Care
Hemophilia Outreach of Wisconsin Inc shared some noteworthy insights from Dr Bridget Freeman on Linkedin:…
Back-to-School Toolkit for Girls and Women with Bleeding Disorders – Download Now!
Jul 24, 2025, 17:40 | Organizations
Back-to-School Toolkit for Girls and Women with Bleeding Disorders – Download Now!
Bleeding Disorders Council of California recently shared a post on X: “As teens and preteens…
Uncovering the Hidden Signs of von Willebrand Disease
Jul 23, 2025, 15:42 | Insight
Uncovering the Hidden Signs of von Willebrand Disease
Hemophilia Federation of America (HFA) published on X: “Did you know? von Willebrand Disease (vWD) is…
Don't Miss the Hemophilia B Virtual Event on July 29 – Sign Up Now!
Jul 23, 2025, 15:34 | Voices
Don't Miss the Hemophilia B Virtual Event on July 29 – Sign Up Now!
Hemophilia Federation of America (HFA) shared a post on X: “Living with Hemophilia B: From…
EHC Warns of Severe Impact from Von Willebrand Factor Supply Delays
Jul 23, 2025, 10:59 | Organizations
EHC Warns of Severe Impact from Von Willebrand Factor Supply Delays
  The European Haemophilia Consortium (EHC) shared a post on X: “Supply delays of Von…
3 Powerful Days: WFH Champions Bleeding Disorders at 78th World Health Assembly
Jul 22, 2025, 16:31 | Organizations
3 Powerful Days: WFH Champions Bleeding Disorders at 78th World Health Assembly
The World Federation of Hemophilia (WFH) shared a proud post on X: ''The WFH proudly…
Register Now! NBDF Hosts Its 77th Bleeding Disorders Conference
Jul 21, 2025, 16:43 | Organizations
Register Now! NBDF Hosts Its 77th Bleeding Disorders Conference
The National Bleeding Disorders Foundation (NBDF) shared an inviting post on X: ''Join us for…
Jessica Hernandez Garcia: Honored to Become 2025 HTRS/Novo Nordisk Clinical Scholar Awardee
Jul 18, 2025, 18:12 | Organizations
Jessica Hernandez Garcia: Honored to Become 2025 HTRS/Novo Nordisk Clinical Scholar Awardee
Jessica Hernandez Garcia, pediatric hematologist at UT Southwestern Medical Center, proudly reposted from HTRS on…
WFH Shares Powerful Patient Story on Access to Bleeding Disorders Treatment
Jul 18, 2025, 12:14 | Insight
WFH Shares Powerful Patient Story on Access to Bleeding Disorders Treatment
The World Federation of Hemophilia (WFH) shared a post on X: ”This powerful story highlights…
European Haemophilia Consortium Opens Applications for 2025 Health Economics Course
Jul 18, 2025, 11:29 | Organizations
European Haemophilia Consortium Opens Applications for 2025 Health Economics Course
The European Haemophilia Consortium (EHC), has shared a post on X: “Apply for our Health…
Advance Bleeding Disorder Expertise: Takeda Fellowship Now Accepting Applications
Jul 18, 2025, 11:27 | Organizations
Advance Bleeding Disorder Expertise: Takeda Fellowship Now Accepting Applications
National Bleeding Disorders Foundation shared a post on X: “Funded by Takeda, this fellowship offers…
Toward Hemophilia Gene Therapy for All? Insights from Prof. Flora Peyvandi in Blood Advances
Jul 16, 2025, 15:04 | Innovation
Toward Hemophilia Gene Therapy for All? Insights from Prof. Flora Peyvandi in Blood Advances
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
EAHAD Membership is Open – Join the Community and Access EAHAD 2026 Benefits!
Jul 16, 2025, 14:51 | Insight
EAHAD Membership is Open – Join the Community and Access EAHAD 2026 Benefits!
The European Association for Haemophilia and Allied Disorders (EAHAD) has shared a post onX: “Join…
Apply Now to The Susan Skinner Memorial Fund Scholarship: Advancing Women’s Leadership in the Bleeding Disorders Field
Jul 15, 2025, 18:58 | Organizations
Apply Now to The Susan Skinner Memorial Fund Scholarship: Advancing Women’s Leadership in the Bleeding Disorders Field
The World Federation of Hemophilia (WFH) recently shared an announcement post on X: ''Applications for…
EHC 2025 in Vienna: Women's Health and Bleeding Disorders Session – Register Now for October 3–5!
Jul 15, 2025, 11:45 | Insight
EHC 2025 in Vienna: Women's Health and Bleeding Disorders Session – Register Now for October 3–5!
The European Haemophilia Consortium (EHC), has shared a post on X: “Breaking barriers at the…
Global Forum on Bleeding Disorders Returns: WFH Announces 14th Edition in 2025
Jul 14, 2025, 16:56 | Organizations
Global Forum on Bleeding Disorders Returns: WFH Announces 14th Edition in 2025
The World Federation of Hemophilia (WFH) shared an inviting post on X: ''Save the Date!…
GPAS 2025: Global Strategies to Integrate Bleeding Disorders into Health Systems
Jul 12, 2025, 16:01 | Organizations
GPAS 2025: Global Strategies to Integrate Bleeding Disorders into Health Systems
The World Federation of Hemophilia (WFH) shared an insightful post on X: ''During GPAS 2025,…
EHC Launches Survey on Rare Bleeding Disorders and BDUC Needs
Jul 11, 2025, 18:19 | Organizations
EHC Launches Survey on Rare Bleeding Disorders and BDUC Needs
The European Haemophilia Consortium (EHC) shared an encouraging post on X: ''Help shape the future…
GPAS 2025: Shaping the Future of Bleeding Disorder Care
Jul 11, 2025, 16:48 | Insight
GPAS 2025: Shaping the Future of Bleeding Disorder Care
The World Federation of Hemophilia (WFH) recently shared an insightful post on X: ''At GPAS…
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