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Rob Maloney: A Bruise that Did Not Go Away...
Jan 8, 2026, 05:42 | Voices
Rob Maloney: A Bruise that Did Not Go Away...
Rob Maloney, Chief Executive Officer of Hemophilia of Georgia, shared on LinkedIn: ''A bruise that…
Hurry to Join EHC Youth Leadership Workshop 2026
Jan 6, 2026, 09:45 | Insight
Hurry to Join EHC Youth Leadership Workshop 2026
EHC - European Haemophilia Consortium shared on LinkedIn: ''Applications NOW OPEN for our Youth Leadership…
World Federation of Hemophilia Announces 2026 Congress in Kuala Lumpur
Jan 6, 2026, 08:00 | Insight
World Federation of Hemophilia Announces 2026 Congress in Kuala Lumpur
World Federation of Hemophilia shared on LinkedIn: ''What makes the WFH 2026 World Congress truly…
WFH Released New Evidence-Based Guidelines on AAV Gene Therapy for Hemophilia
Jan 5, 2026, 09:10 | Insight
WFH Released New Evidence-Based Guidelines on AAV Gene Therapy for Hemophilia
World Federation of Hemophilia shared on LinkedIn: ''The WFH has released new evidence-based guidelines on…
Oğuzhan Işılay on Stabilizing Human Blood Clotting Factor VIII
Jan 4, 2026, 17:02 | Science
Oğuzhan Işılay on Stabilizing Human Blood Clotting Factor VIII
Oğuzhan Işılay, Bioinformatics Intern at Mersin Üniversity, shared on LinkedIn: ''I recently read and analyzed…
Olga L on Blood Diseases and Heredity
Jan 3, 2026, 20:46 | Insight
Olga L on Blood Diseases and Heredity
Olga L, Geneticist at State Hospital in Ukraine, shared on LinkedIn: ''Blood Diseases and Heredity…
Raza Ur Rehman on Fitusiran as a First-in-Class RNAi Therapy in Hemophilia A and B
Jan 2, 2026, 08:47 | Science
Raza Ur Rehman on Fitusiran as a First-in-Class RNAi Therapy in Hemophilia A and B
Raza Ur Rehman, Bachelor of Medicine and Surgery at Shaikh Khalifa bin Zayed Al Nahyan…
2026 Resolution from Varun Bafna: To Make Routine Inhibitor Screening for Hemophilia a Reality in India
Jan 1, 2026, 09:11 | Voices
2026 Resolution from Varun Bafna: To Make Routine Inhibitor Screening for Hemophilia a Reality in India
Varun Bafna, Hematologist, Hemato-Oncologist and BMT Physician at Dr. Bafna Star Superspeciality Clinics, shared on…
Diaz Mora Prameyllawati on Going Beyond the Price Tag for Gene Therapies in Hemophilia
Dec 30, 2025, 08:22 | Science
Diaz Mora Prameyllawati on Going Beyond the Price Tag for Gene Therapies in Hemophilia
Diaz Mora Prameyllawati, PhD Candidate at Erasmus MC, shared on LinkedIn: ''Beyond the price tag…
Balqees M Al Rafayah: What is Hemophilia?
Dec 29, 2025, 07:07 | Insight
Balqees M Al Rafayah: What is Hemophilia?
Balqees M Al Rafayah, Lab supervisor at Mutah University, shared on LinkedIn: ''What is hemophilia?…
Sruti Shiva Appointed Scientific Director of the Hemophilia Center of Western Pennsylvania
Dec 27, 2025, 18:40 | Voices
Sruti Shiva Appointed Scientific Director of the Hemophilia Center of Western Pennsylvania
University of Pittsburgh School of Medicine shared on LinkedIn: ''We’re proud to share that Sruti…
Rucha Patil on Hemophilia in the Era of Non-Factor Therapies
Dec 27, 2025, 12:47 | Voices
Rucha Patil on Hemophilia in the Era of Non-Factor Therapies
Rucha Patil, Scientist at Department of Haemostasis and Thrombosis, ICMR- National Institute of Immunohaematology, shared…
WFH Recently Completed Visits to Togo and Madagascar
Dec 27, 2025, 09:25 | Insight
WFH Recently Completed Visits to Togo and Madagascar
World Federation of Hemophilia shared on LinkedIn: ''The WFH recently completed visits to Togo and…
Ahmed Bahi on Qatar's Self-Infusion Program for Hemophilia Patients
Dec 27, 2025, 09:17 | Insight
Ahmed Bahi on Qatar's Self-Infusion Program for Hemophilia Patients
Ahmed Bahi, Critical Care Pharmacist Specialist in Trauma Services at Hamad Medical Corporation, shared on…
Mohammad Alashqar Shares Fitusiran Review for Hemophilia A and B, With or Without Inhibitors
Dec 26, 2025, 13:58 | Science
Mohammad Alashqar Shares Fitusiran Review for Hemophilia A and B, With or Without Inhibitors
Mohammad Alashqar, Postdoctoral Pharmacotherapy Research Fellow at The Ohio State University College of Pharmacy, shared…
Miguel Crato Reflects on 2025 for EHC
Dec 25, 2025, 17:49 | Voices
Miguel Crato Reflects on 2025 for EHC
EHC Haemophilia shared on X: ''EHC President Miguel Crato reflects on 2025: a year of…
Blood Disorders: More Than Just a Diagnosis - Malaika Mehboob
Dec 25, 2025, 17:21 | Insight
Blood Disorders: More Than Just a Diagnosis - Malaika Mehboob
Malaika Mehboob, Student Ambassador of Physiogic, shared on LinkedIn: ''Blood Disorders: More Than Just a…
“Hemophilia Update” in Goa: From Diagnosis to Global Perspectives and Latest Developments
Dec 24, 2025, 12:37 | Insight
“Hemophilia Update” in Goa: From Diagnosis to Global Perspectives and Latest Developments
Hemophilia Goa shared on LinkedIn: ''A Continuing Medical Education (CME) programme titled “Hemophilia Update” was…
Leigh Anne Siino on The Spherix Global's Translation of ASH25 Insights Into Actionable Intelligence
Dec 23, 2025, 12:56 | Insight
Leigh Anne Siino on The Spherix Global's Translation of ASH25 Insights Into Actionable Intelligence
Leigh Anne Siino, Chief Revenue Officer at Spherix Global Insights, shared on LinkedIn: ''The Spherix…
Toong Youttananukorn on WFH's New Educational Series on Gene Editing for Hemophilia
Dec 23, 2025, 12:05 | Insight
Toong Youttananukorn on WFH's New Educational Series on Gene Editing for Hemophilia
Toong Youttananukorn, Data Quality Manager at World Federation of Hemophilia, reposted from WFH on LinkedIn:…
Stroke-Associated Letal Outcome with Hympavzi: Michael Makris on Pfizer's Announcement
Dec 23, 2025, 05:14 | Drugs
Stroke-Associated Letal Outcome with Hympavzi: Michael Makris on Pfizer's Announcement
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of…
Raza Ur Rehman's Commentary on Fitusiran for the Management of Hemophilia A and B To Be Published
Dec 22, 2025, 16:06 | Voices
Raza Ur Rehman's Commentary on Fitusiran for the Management of Hemophilia A and B To Be Published
Raza Ur Rehman, Bachelor of Medicine and Surgery at Shaikh Khalifa bin Zayed Al Nahyan…
Andreas Tiede: The Most Important Things for Hemophilia Practice
Dec 21, 2025, 23:09 | Insight
Andreas Tiede: The Most Important Things for Hemophilia Practice
Andreas Tiede, Professor, Department of Hematology, Hemostasis, Oncology and Stem Cell Transplantation at Hannover Medical…
Strengthening Hematology Field: Livingstone Dogara's Experience in the ASH Visitor Training Program
Dec 21, 2025, 14:24 | Insight
Strengthening Hematology Field: Livingstone Dogara's Experience in the ASH Visitor Training Program
American Society of Hematology shared on LinkedIn: ''Improving labs, advancing care, making a difference: Dr.…
Jessica Herzig on CD86 Expression Correlation with Immune Cell Activation
Dec 21, 2025, 13:54 | Science
Jessica Herzig on CD86 Expression Correlation with Immune Cell Activation
RPTH Journal shared on LinkedIn: ''Why do some hemophilia A patients develop inhibitors? This study…
Aboubacar Sidiki Doukoure on The WFH Hemophilia Care Training in Guinea
Dec 21, 2025, 13:13 | Voices
Aboubacar Sidiki Doukoure on The WFH Hemophilia Care Training in Guinea
Aboubacar Sidiki Doukoure, Assistant Clinical Director in Hematology at Gamal Abdel Nasser University, shared on…
Heghine Khachatryan: World Federation of Hemophilia Is Far More Than An Organization
Dec 21, 2025, 07:24 | Voices
Heghine Khachatryan: World Federation of Hemophilia Is Far More Than An Organization
Heghine Khachatryan, Editor-in-Chief of Hemostasis Today, Head of Hemophilia and Thrombosis Center at Yeolyan Hematology…
Gene Therapy for Hemophilia: New WFH Booklet and Webinar Released
Dec 19, 2025, 11:00 | Science
Gene Therapy for Hemophilia: New WFH Booklet and Webinar Released
World Federation of Hemophilia/Fédération mondiale de l'hémophilie posted on LinkedIn: ''Just released. The WFH’s new…
The "Normal" FVIII Level Trap in Females with Haemophilia
Dec 18, 2025, 23:14 | Science
The "Normal" FVIII Level Trap in Females with Haemophilia
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, posted on LinkedIn: ''The "Normal" FVIII…
WFH Expands Multidisciplinary Bleeding Disorder Training in Vietnam
Dec 18, 2025, 23:11 | Organizations
WFH Expands Multidisciplinary Bleeding Disorder Training in Vietnam
World Federation of Hemophilia/Fédération mondiale de l'hémophilie posted on LinkedIn: '' The WFH team visited…
Daria Camilli on EuroBloodNet and EHC Collaboration for Bleeding Disorders
Dec 18, 2025, 17:13 | Insight
Daria Camilli on EuroBloodNet and EHC Collaboration for Bleeding Disorders
Daria Camilli, Education and Communication Manager at EHC - European Haemophilia Consortium, reposted from ERN-EuroBloodNet…
Plasma-Derived Therapy for Hemophilia in The Updated European Medicines Agency’s Union List
Dec 18, 2025, 14:15 | Drugs
Plasma-Derived Therapy for Hemophilia in The Updated European Medicines Agency’s Union List
Deborah Hibbett, Senior Vice President, Head of Global Corporate Affairs and Sustainability, Plasma-Derived Therapies at…
Eric Topol: A Single Infusion That Erases Decades of Hemophilia
Dec 18, 2025, 04:03 | Insight
Eric Topol: A Single Infusion That Erases Decades of Hemophilia
Eric Topol, Founder and Director of Scripps Research Translational Institute, shared on X: " 'I had hemophilia…
Sunil Kumar: Top 10 Drugs Driving Revenue in Rare Disease Therapeutics (2024)
Dec 17, 2025, 23:37 | Insight
Sunil Kumar: Top 10 Drugs Driving Revenue in Rare Disease Therapeutics (2024)
Sunil Kumar, Entrepreneur of Medifit Devices LLP, shared a post on LinkedIn: "Top 10 Drugs…
May Guo About mRNA Based in Vivo MG1113 Antibody Production as a Potential Therapeutic Approach for Hemophilia
Dec 16, 2025, 10:02 | Science
May Guo About mRNA Based in Vivo MG1113 Antibody Production as a Potential Therapeutic Approach for Hemophilia
May Guo, Vice President of Business Development at Biomay AG and Founder and CEO of…
Deborah Ebert Long on Hemophilia Care: Progress, Possibility, and the Power of Listening
Dec 15, 2025, 12:46 | Voices
Deborah Ebert Long on Hemophilia Care: Progress, Possibility, and the Power of Listening
Deborah Ebert Long, Senior Vice President, Medical Affairs at CSL, shared on LinkedIn: ''Hemophilia Care:…
Nathan Connell on Conversion from Eptacog Alfa to Beta
Dec 15, 2025, 12:34 | Science
Nathan Connell on Conversion from Eptacog Alfa to Beta
Nathan Connell, Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital, shared on LinkedIn:…
How WFH Support Is Transforming Healthcare in Armenia
Dec 14, 2025, 15:06 | Organizations
How WFH Support Is Transforming Healthcare in Armenia
WFH shared a post on LinkedIn:  'When my son was seven, he was diagnosed with…
Minoo Ahmadinejad Explores Emicizumab
Dec 13, 2025, 15:51 | Insight
Minoo Ahmadinejad Explores Emicizumab
Minoo Ahmadinejad, Laboratory Director at Iranian Blood Transfusion Organization, shared on LinkedIn: ''Advances in hemophilia…
World Federation of Hemophilia: Eptacog Beta in Severe Bleeds - Insights From PERSEPT Trials
Dec 13, 2025, 08:59 | Science
World Federation of Hemophilia: Eptacog Beta in Severe Bleeds - Insights From PERSEPT Trials
World Federation of Hemophilia shared on LinkedIn: ”Severe bleeds in hemophilia with inhibitors remain a major challenge.…
Alyssa George on Clinical and Economic Impact of a Eptacog Beta
Dec 12, 2025, 10:17 | Science
Alyssa George on Clinical and Economic Impact of a Eptacog Beta
Alyssa George, Clinical Pharmacist at Henry Ford Health, shared on LinkedIn: ''I am excited to…
Denise Braendgaard: NNHF Marks Defining Moment at ASH2025
Dec 11, 2025, 23:30 | Insight
Denise Braendgaard: NNHF Marks Defining Moment at ASH2025
Denise Braendgaard, General Manager of  Novo Nordisk Haemophilia & Haemoglobinopathies Foundation, posted on  LinkedIn: ''A…
Roula Farah: Discussing Rare Bleeding Disorders in Abu Dhabi
Dec 11, 2025, 12:27 | Insight
Roula Farah: Discussing Rare Bleeding Disorders in Abu Dhabi
Roula Farah, Full Professor of Clinical Medicine at Lebanese American University, shared a post on…
12 Posts Not to Miss From the ASH 2025 – Wolfgang Miesbach
Dec 10, 2025, 22:02 | Insight
12 Posts Not to Miss From the ASH 2025 – Wolfgang Miesbach
The American Society of Hematology Congress 2025 (ASH25) is officially underway in Orlando, Florida, from…
WFH and Takeda Extend Humanitarian Aid Partnership Through 2030
Dec 10, 2025, 05:34 | Organizations
WFH and Takeda Extend Humanitarian Aid Partnership Through 2030
World Federation of Hemophilia/Fédération mondiale de l'hémophilie posted on LinkedIn: ''The WFH and WFH USA…
Cesar Garrido: Let’s Unite to Strengthen Diagnostic Capabilities and Raise Awareness on World Hemophilia Day 2026
Dec 10, 2025, 05:13 | Organizations
Cesar Garrido: Let’s Unite to Strengthen Diagnostic Capabilities and Raise Awareness on World Hemophilia Day 2026
World Federation of Hemophilia shared a post on LinkedIn: “Around the world, more than three-quarters…
ASH25: Wolfgang Miesbach on Why No Single Haemophilia Therapy Is the “Winner”
Dec 10, 2025, 05:09 | Science
ASH25: Wolfgang Miesbach on Why No Single Haemophilia Therapy Is the “Winner”
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared on LinkedIn: The "Paradox of…
ASH25 Day 4: Don’t Miss The Highlights
Dec 9, 2025, 23:21 | Insight
ASH25 Day 4: Don’t Miss The Highlights
The American Society of Hematology Congress 2025 (ASH25) is officially underway in Orlando, Florida, from…
Riten Kumar: Highlights From Day 2 of ASH25
Dec 9, 2025, 13:27 | Insight
Riten Kumar: Highlights From Day 2 of ASH25
Riten Kumar, Associate Professor of Pediatrics at Harvard Medical School and Director of Thrombosis and…
Michael Dunn Reflects on all ASH25 Represents for the Bleeding Disorders Community
Dec 9, 2025, 03:26 | Voices
Michael Dunn Reflects on all ASH25 Represents for the Bleeding Disorders Community
Michael Dunn, Vice President - Head of Rare Disease Portfolio at Genentech, shared on LinkedIn:…
ASH25 Day 3: Don’t Miss The Highlights
Dec 8, 2025, 22:24 | Insight
ASH25 Day 3: Don’t Miss The Highlights
The American Society of Hematology Congress 2025 (ASH25) is officially underway in Orlando, Florida, from…
The Arosenius Lecture at EAHAD 2026 Marks 100 Years of Progress in VWD
Dec 5, 2025, 06:09 | Organizations
The Arosenius Lecture at EAHAD 2026 Marks 100 Years of Progress in VWD
European Association for Haemophilia and Allied Disorders (EAHAD) posted on LinkedIn: ''The Arosenius Lecture at…
First Italian Gene Therapy for Hemophilia B at the Polyclinic of Milan
Dec 5, 2025, 06:08 | Blog
First Italian Gene Therapy for Hemophilia B at the Polyclinic of Milan
Polyclinic of Milan (Ospedale Policlinico di Milano) posted on LinkedIn: ''The first gene therapy in…
Denise Braendgaard: We are Now the Novo Nordisk Haemophilia and Haemoglobinopathies Foundation
Dec 5, 2025, 06:07 | Organizations
Denise Braendgaard: We are Now the Novo Nordisk Haemophilia and Haemoglobinopathies Foundation
Denise Braendgaard, General Manager of Novo Nordisk Haemophilia Foundation, shared a post by Novo Nordisk…
Support Yousha and Thousands Like Him - WFH Calls for GivingTuesday Action
Dec 5, 2025, 03:32 | Voices
Support Yousha and Thousands Like Him - WFH Calls for GivingTuesday Action
World Federation of Hemophilia/Fédération mondiale de l'hémophilie posted on LinkedIn: ''Meet Yousha, 11, from Syria.…
Cedric Hermans: Share Your Haemophilia Knowledge, Experience and Passion
Nov 30, 2025, 14:56 | Organizations
Cedric Hermans: Share Your Haemophilia Knowledge, Experience and Passion
Cedric Hermans, Head of Haemophilia Centre at the Cliniques Universitaires Saint-Luc in Brussels, recently shared on LinkedIn:…
Deferral of Immunosuppression in Acquired Hemophilia
Nov 29, 2025, 16:35 | Science
Deferral of Immunosuppression in Acquired Hemophilia
Andreas Tiede, Professor in the Department of Hematology, Hemostasis, Oncology, and Stem Cell Transplantation at…
ASH is Continuing Its Advocacy to Protect Vulnerable Children
Nov 28, 2025, 16:21 | Organizations
ASH is Continuing Its Advocacy to Protect Vulnerable Children
American Society of Hematology (ASH) shared a post on LinkedIn: "The American Society of Hematology is…
Giulia Simini Receives the 2025 ASH–BSH Achievement Award!
Nov 26, 2025, 16:03 | Voices
Giulia Simini Receives the 2025 ASH–BSH Achievement Award!
Giulia Simini, Resident doctor in Hematology at NHS England, shared on LinkedIn: ''Thrilled to announce…
Sara Sampietro Introduces The New HemosIL Chromogenic Factor IX
Nov 26, 2025, 10:32 | Voices
Sara Sampietro Introduces The New HemosIL Chromogenic Factor IX
Sara Sampietro, Product Manager - EEMEA at Werfen, shared on LinkedIn: ''Last week in Nyborg,…
WFH Supports Hemophilia Care Advancement in the Democratic Republic of the Congo
Nov 26, 2025, 04:52 | Organizations
WFH Supports Hemophilia Care Advancement in the Democratic Republic of the Congo
World Federation of Hemophilia (WFH) shared a post on X: “ The WFH recently traveled…
Amol Kadu on Joint Replacement Techniques in Hemophilia Arthropathy
Nov 24, 2025, 15:23 | Insight
Amol Kadu on Joint Replacement Techniques in Hemophilia Arthropathy
Amol Kadu, Senior Consultant and Joint Replacement Surgeon at AKtiv Centre for Joint Care, shared…
Jesse Landry on SeraGene Therapeutics: Rewriting the Rules of Blood and Bleeding Disorders
Nov 23, 2025, 14:57 | Insight
Jesse Landry on SeraGene Therapeutics: Rewriting the Rules of Blood and Bleeding Disorders
Jesse Landry, Founder at Jesse Landry, shared on LinkedIn: ''Most people only think about blood…
Finn Guo on China's Policy in Hemophilia Care: Patients Understand Patients Best
Nov 23, 2025, 14:21 | Insight
Finn Guo on China's Policy in Hemophilia Care: Patients Understand Patients Best
Finn Guo, Director of Information Research at Illness Challenge Foundation, shared on LinkedIn: ''Pleased to…
Eric Topol: A 45-Minute Infusion That Ended Decades of Hemophilia
Nov 23, 2025, 14:03 | Insight
Eric Topol: A 45-Minute Infusion That Ended Decades of Hemophilia
Eric Topol, Founder and Director of Scripps Research Translational Institute, shared on X: ”I had…
Nazish Saqlain on Strengthening Regulatory Functions for Enhanced Blood Transfusion Services in Pakistan
Nov 23, 2025, 13:55 | Insight
Nazish Saqlain on Strengthening Regulatory Functions for Enhanced Blood Transfusion Services in Pakistan
Nazish Saqlain, Professor of Pathology at Lahore General Hospital, shared on LinkedIn: ''Workshop on Strengthening…
Braudon Yeo Invites You to Secure Your Spot at WFH 2026 World Congress
Nov 23, 2025, 11:42 | Insight
Braudon Yeo Invites You to Secure Your Spot at WFH 2026 World Congress
Braudon Yeo, Senior Manager, Sponsorship and Exhibit Sales at International Conference Services (ICS), reposted from…
Harshal Kale: One of the Persons I Have Been Looking Upto from Last Decade is Assad Haffar!
Nov 22, 2025, 15:44 | Voices
Harshal Kale: One of the Persons I Have Been Looking Upto from Last Decade is Assad Haffar!
Harshal Kale, Regional Program Manager - South Asia and East Asia at World Federation of…
Maria Elisa Mancuso on WFH Global Forum: A New Vision for Global Bleeding Disorder Care
Nov 20, 2025, 13:57 | Insight
Maria Elisa Mancuso on WFH Global Forum: A New Vision for Global Bleeding Disorder Care
Maria Elisa Mancuso, Senior Hematology Consultant at Humanitas Research Hospital, shared on LinkedIn: ''On November…
Michael Makris Shares Insights from Global Forum Meeting of the WFH Meeting in Montreal
Nov 19, 2025, 17:32 | Insight
Michael Makris Shares Insights from Global Forum Meeting of the WFH Meeting in Montreal
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of…
Wolfgang Miesbach Shares Real-World Evidence on Eptacog Beta from Spain
Nov 19, 2025, 17:02 | Science
Wolfgang Miesbach Shares Real-World Evidence on Eptacog Beta from Spain
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared on LinkedIn: ''Eptacog Beta Beyond…
Celebrating 25+ Years of Impact: Dr. Assad Haffar’s Legacy in Bleeding Disorder Care
Nov 19, 2025, 13:43 | Organizations
Celebrating 25+ Years of Impact: Dr. Assad Haffar’s Legacy in Bleeding Disorder Care
World Federation of Hemophilia shared a post on X: “ For over 25 years, Assad…
Wolfgang Miesbach Explores the DosEmi Study's Interim Results on Emicizumab
Nov 18, 2025, 15:21 | Science
Wolfgang Miesbach Explores the DosEmi Study's Interim Results on Emicizumab
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared on LinkedIn: ''Cost-Effective Care Without…
HaemophiliaIRL Webinar Series․ Third Session on Rebalancing Agents
Nov 18, 2025, 08:54 | Voices
HaemophiliaIRL Webinar Series․ Third Session on Rebalancing Agents
Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC, reposted…
WFH Highlights International Education Week․ Explore the eLearning Platform
Nov 18, 2025, 08:49 | Organizations
WFH Highlights International Education Week․ Explore the eLearning Platform
World Federation of Hemophilia shared a post on X: “ It's International Education Week! Explore…
2024 WFH Survey Shows 489,000+ Identified Bleeding Disorder Patients
Nov 18, 2025, 02:42 | Organizations
2024 WFH Survey Shows 489,000+ Identified Bleeding Disorder Patients
World Federation of Hemophilia/Fédération mondiale de l'hémophilie posted on LinkedIn: ''Since 1999, the WFH has…
Rebecca Thompson on Caregiving Roles in Hemophilia Community
Nov 16, 2025, 21:40 | Voices
Rebecca Thompson on Caregiving Roles in Hemophilia Community
Rebecca Thompson, Writer at HarperCollins Publishers, Volunteer Physician at Special Olympics, shared on LinkedIn: ''What…
Katie Wilkes Shares Her Inspiring Experience with Hope for Hemophilia
Nov 16, 2025, 20:27 | Voices
Katie Wilkes Shares Her Inspiring Experience with Hope for Hemophilia
Katie Wilkes, Director of Sales, Marketing, and Logistics at George King Bio-Medical, reposted from George…
Dina Hussein: How Can We Strengthen Peer Support, Education, and Advocacy for WGBDs in Jordan?
Nov 16, 2025, 18:00 | Insight
Dina Hussein: How Can We Strengthen Peer Support, Education, and Advocacy for WGBDs in Jordan?
Dina Hussein, Certified Assessor – SCPD, ID and Autism Services at Supreme Council for the…
Varun Bafna: Deeply Honored to Be Invited as Faculty Speaker at Haematocon 2025
Nov 13, 2025, 17:29 | Voices
Varun Bafna: Deeply Honored to Be Invited as Faculty Speaker at Haematocon 2025
Varun Bafna, Hematologist, Hemato-Oncologist and BMT Physician at Dr. Bafna Star Superspeciality Clinics, shared on…
2025 WFH Guidelines․ Advancing Safe and Informed AAV Gene Therapy Practice
Nov 12, 2025, 10:53 | Organizations
2025 WFH Guidelines․ Advancing Safe and Informed AAV Gene Therapy Practice
World Federation of Hemophilia shared on X: "The WFH Guidelines for the Management of Hemophilia:…
Juan Andrés De Pablo Moreno and Colleagues on Therapeutic FVIII Administration in Hemarthrosis in Mice
Nov 12, 2025, 04:50 | Science
Juan Andrés De Pablo Moreno and Colleagues on Therapeutic FVIII Administration in Hemarthrosis in Mice
Journal of Thrombosis and Haemostasis (JTH) shared on LinkedIn: ''Defective lymphangiogenesis and iron removal after…
Michael Makris on FDA Approval of GEVV-HEM Gene Therapy for Hemophilia
Nov 12, 2025, 04:42 | Drugs
Michael Makris on FDA Approval of GEVV-HEM Gene Therapy for Hemophilia
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of…
Dea Rojus Reflects on 4th International Conference on Hemophilia and Rare Bleeding Disorders
Nov 12, 2025, 04:38 | Voices
Dea Rojus Reflects on 4th International Conference on Hemophilia and Rare Bleeding Disorders
Dea Rojus, MBBS Student at University Of Sharjah, shared on LinkedIn: ''I recently attended the…
Shubham Khandve: Cell and Gene Therapy is No Longer the Future
Nov 8, 2025, 01:40 | Innovation
Shubham Khandve: Cell and Gene Therapy is No Longer the Future
Shubham Khandve, Manager at Spherical Insights LLP, shared on LinkedIn: ”Cell and gene therapy is…
Insights on Rebalancing Agents in Hemophilia from Cédric Hermans and Quentin Van Thillo
Nov 7, 2025, 03:20 | Science
Insights on Rebalancing Agents in Hemophilia from Cédric Hermans and Quentin Van Thillo
World Federation of Hemophilia (WFH) shared on LinkedIn: ''Rebalancing agents are reshaping hemophilia treatment—but key…
Andreas Tiede: Treating our First Hemophilia B Patient with Gene Therapy
Nov 7, 2025, 01:35 | Innovation
Andreas Tiede: Treating our First Hemophilia B Patient with Gene Therapy
Andreas Tiede, Professor in the Department of Hematology, Hemostasis, Oncology and Stem Cell Transplantation at…
Hemophilia of Georgia at the Southeast Region Hemophilia Network 2025 Meeting
Nov 7, 2025, 01:35 | Organizations
Hemophilia of Georgia at the Southeast Region Hemophilia Network 2025 Meeting
Hemophilia of Georgia shared on LinkedIn: ”Hemophilia of Georgia staff represented our organization at the Southeast…
HTC Twinning Between Semarang and Utrecht Concludes with Success
Nov 6, 2025, 04:53 | Organizations
HTC Twinning Between Semarang and Utrecht Concludes with Success
World Federation of Hemophilia shared on LinkedIn: ”The Hemophilia Treatment Centre (HTC) twins of Semarang (Indonesia) and…
Maria Elisa Mancuso Reflects on 2025 Annual Congress of the Italian Association of Hemophilia Centres
Nov 3, 2025, 06:57 | Voices
Maria Elisa Mancuso Reflects on 2025 Annual Congress of the Italian Association of Hemophilia Centres
Maria Elisa Mancuso, Senior Hematology Consultant at Humanitas Research Hospital, shared on LinkedIn: ''On October…
European Haemophilia Consortium: New Technologies Conference 2025
Nov 2, 2025, 14:12 | Organizations
European Haemophilia Consortium: New Technologies Conference 2025
European Haemophilia Consortium (EHC) posted on LinkedIn: ”The EHC New Technologies Conference 2025 is now underway in…
Michael Makris Shares 2024 Annual Global Survey from the WFH
Nov 1, 2025, 17:19 | Insight
Michael Makris Shares 2024 Annual Global Survey from the WFH
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of…
World Federation of Hemophilia: WFH Annual Global Survey 2024 Published
Nov 1, 2025, 02:26 | Organizations
World Federation of Hemophilia: WFH Annual Global Survey 2024 Published
World Federation of Hemophilia shared on LinkedIn: ”Just published: the WFH Annual Global Survey 2024!…
Brian O’Mahony Discusses Hemophilia Progress and Challenges in Kazakhstan with WFH
Oct 30, 2025, 07:53 | Blog
Brian O’Mahony Discusses Hemophilia Progress and Challenges in Kazakhstan with WFH
  Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC,…
Michael Makris on Biomarin's Decision to Divest Roctavian
Oct 30, 2025, 03:53 | Insight
Michael Makris on Biomarin's Decision to Divest Roctavian
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of…
World Federation of Hemophilia: Women’s Care in Bleeding Disorders
Oct 29, 2025, 06:52 | Organizations
World Federation of Hemophilia: Women’s Care in Bleeding Disorders
World Federation of Hemophilia shared on LinkedIn: ”At the 14th WFH Global Forum, experts from…
Ilja Oomen on Immune Tolerance Induction Failure and Hemophilia A
Oct 29, 2025, 01:36 | Science
Ilja Oomen on Immune Tolerance Induction Failure and Hemophilia A
Ilja Oomen, PhD candidate in Pediatric Hematology at AMC - Academic Medical Center, shared on…
Fadwa Said Abdelazim: Accurate Diagnosis Is the Foundation of Hematology Care
Oct 25, 2025, 07:44 | Insight
Fadwa Said Abdelazim: Accurate Diagnosis Is the Foundation of Hematology Care
Fadwa Said Abdelazim, Consultant of Hematopathology and Specialist in Hematology at the University of Teaching…
Melissa Glasner on Integration of Gene Therapy Into Hemophilia Care
Oct 24, 2025, 12:03 | Science
Melissa Glasner on Integration of Gene Therapy Into Hemophilia Care
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, reposted from  on LinkedIn: ''Thank you…
Stanislas Conseiller: Every Second, the Coagulation Cascade Protects Us
Oct 24, 2025, 10:20 | Insight
Stanislas Conseiller: Every Second, the Coagulation Cascade Protects Us
Stanislas Conseiller, Philanthropy and Fundraising Development Officer at the Paris-Saclay School of Medicine, shared a…
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