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New EHC Report: Strengthening Bleeding Disorder Registries for Better Care
Aug 26, 2025, 09:27 | Insight
New EHC Report: Strengthening Bleeding Disorder Registries for Better Care
The European Haemophilia Consortium (EHC), has shared a post on X: “EHC Think Tank releases…
4th WFH Global Summit on Women and Girls with Bleeding Disorders! Register Now
Aug 25, 2025, 09:57 | Organizations
4th WFH Global Summit on Women and Girls with Bleeding Disorders! Register Now
World Federation of Hemophilia (WFH) shared on LinkedIn: ”The full program for the 4th WFH…
Enhao Li on Key Immune Differences Between HA and HB Patients with Inhibitors: B Cells Versus T Cells Dominance
Aug 24, 2025, 07:47 | Science
Enhao Li on Key Immune Differences Between HA and HB Patients with Inhibitors: B Cells Versus T Cells Dominance
Blood Journals Portfolio shared on X: "B cells dominate in patients with HA with inhibitors, whereas…
Hemophilia Doesn’t Define Me—Skyler Tulley’s 100-Mile Challenge
Aug 23, 2025, 16:06 | Insight
Hemophilia Doesn’t Define Me—Skyler Tulley’s 100-Mile Challenge
Hemophilia Federation of America (HFA) published on X: ”Skyler Tulley, born with severe Hemophilia B, refuses…
WFH Announces 4th Global Summit on Women and Girls with Bleeding Disorders
Aug 23, 2025, 07:54 | Organizations
WFH Announces 4th Global Summit on Women and Girls with Bleeding Disorders
World Federation of Hemophilia (WFH) shared an inviting post on LinkedIn: "You're invited! Join us…
Protecting Heart and Brain Health: Stroke Prevention in Women with Bleeding Disorders: NBDF
Aug 23, 2025, 07:48 | Voices
Protecting Heart and Brain Health: Stroke Prevention in Women with Bleeding Disorders: NBDF
National Bleeding Disorders Foundation shared an important post on LinkedIn: "Women with bleeding disorders face…
Diego Butera: Insights on Anti-FVIII Antibodies and Their Selective Binding
Aug 22, 2025, 14:48 | Insight
Diego Butera: Insights on Anti-FVIII Antibodies and Their Selective Binding
Blood Journals Portfolio shared a post on X: "Patient-derived anti-FVIII antibodies bind preferentially to a…
World Federation of Hemophilia on Inhibitors in Treatment
Aug 21, 2025, 15:48 | Science
World Federation of Hemophilia on Inhibitors in Treatment
World Federation of Hemophilia shared an insightful post on LinkedIn: "Inhibitors are a serious complication…
Antoine Francis: LIFE - The Only Metric
Aug 20, 2025, 15:36 | Insight
Antoine Francis: LIFE - The Only Metric
Antoine Francis, Founder of Global Plasma Supply LTD, shared an insightful post on LinkedIn: ''From…
EHC 2025: Young Voices Shaping the Future of Bleeding Disorders
Aug 19, 2025, 14:23 | Insight
EHC 2025: Young Voices Shaping the Future of Bleeding Disorders
The European Haemophilia Consortium (EHC), has shared a post on X: “Amplifying young voices at…
Join the 14th World Federation of Hemophilia Global Forum in Montreal
Aug 19, 2025, 14:05 | Insight
Join the 14th World Federation of Hemophilia Global Forum in Montreal
World Federation of Hemophilia (WFH) shared a post on Linkedin: “Registration is now open for…
EAHAD 2026 Dublin: Join Leading Haemophilia Experts for Research Insights and Networking
Aug 17, 2025, 15:26 | Insight
EAHAD 2026 Dublin: Join Leading Haemophilia Experts for Research Insights and Networking
European Association for Haemophilia and Allied Disorders (EAHAD) posted on X: “Connect with leading voices…
Share Your Perspective: EAHAD Survey on Gene Therapy in Haemophilia Care
Aug 16, 2025, 17:16 | Organizations
Share Your Perspective: EAHAD Survey on Gene Therapy in Haemophilia Care
European Association for Haemophilia and Allied Disorders (EAHAD) shared an inviting post on LinkedIn: "Gene…
Cathy Harrison: Launching A Journal Club from EAHAD and WFH
Aug 15, 2025, 23:29 | Insight
Cathy Harrison: Launching A Journal Club from EAHAD and WFH
Cathy Harrison, WFH nurses committee Chair, shared a post on X: ”The latest collaborative webinar…
Thrombin Generation Assay to Guide Factor Therapy With Fitusiran
Aug 14, 2025, 13:09 | Science
Thrombin Generation Assay to Guide Factor Therapy With Fitusiran
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
Cedric Hermans Shares His Vision for the Use of APCC During Emicizumab Prophylaxis
Aug 13, 2025, 23:32 | Science
Cedric Hermans Shares His Vision for the Use of APCC During Emicizumab Prophylaxis
Cedric Hermans, Head of Haemophilia Centre at the Cliniques Universitaires Saint-Luc in Brussels, recently shared…
Chokri Ben Lamine: Causes and Diagnostic Approach to PTT Prolongation
Aug 13, 2025, 06:44 | Insight
Chokri Ben Lamine: Causes and Diagnostic Approach to PTT Prolongation
Chokri Ben Lamine, Adult Hematology and Stem Cell Transplantation Assistant Consultant at Oncology Center of…
Lindsey George on Gene Therapy Transforming Hemophilia Care
Aug 13, 2025, 04:13 | Science
Lindsey George on Gene Therapy Transforming Hemophilia Care
The World Federation of Haemophilia (WFH) shared a post on X: “Gene Therapy is changing…
Radoslaw Kaczmarek: Challenges Limiting Gene Therapy Use in Hemophilia
Aug 13, 2025, 01:39 | Insight
Radoslaw Kaczmarek: Challenges Limiting Gene Therapy Use in Hemophilia
Radoslaw Kaczmarek, Researcher at IU School of Medicine and Hirszfeld Institute, shared an insightful review…
WFH Humanitarian Aid Program Hosts Workshop on Hemophilia Diagnosis and Management in Türkiye
Aug 11, 2025, 13:20 | Insight
WFH Humanitarian Aid Program Hosts Workshop on Hemophilia Diagnosis and Management in Türkiye
World Federation of Hemophilia recently shared on Linkedin: “The WFH Humanitarian Aid Program hosted a workshop…
WFH Throwback: WHO 25th Expert Committee Meeting on Selection and Use of Essential Medicines
Aug 10, 2025, 06:59 | Organizations
WFH Throwback: WHO 25th Expert Committee Meeting on Selection and Use of Essential Medicines
World Federation of Hemophilia (WFH) recently shared on LinkedIn: ''Today, the WFH is participating in…
CRH: Hereditary Combined Deficiency of the Vitamin K-Dependent Coagulation Factors
Aug 10, 2025, 06:33 | Science
CRH: Hereditary Combined Deficiency of the Vitamin K-Dependent Coagulation Factors
CRH French Reference Center for Hemophilia, Lyon shared an insightful post on LinkedIn: ''New publication…
HFA Shares Past Experiences and Invites You to Join Australian Bleeding Disorders Conference 2025
Aug 10, 2025, 05:33 | Organizations
HFA Shares Past Experiences and Invites You to Join Australian Bleeding Disorders Conference 2025
Haemophilia Foundation Australia (HFA) shared an inviting post on LinkedIn: ''The Australian Bleeding Disorders Conference…
Sara García Barcenilla: High-Quality Care for People with Hemophilia and Congenital Bleeding Disorders
Aug 10, 2025, 04:39 | Science
Sara García Barcenilla: High-Quality Care for People with Hemophilia and Congenital Bleeding Disorders
Sara García Barcenilla, Nurse in the Thrombosis and Hemostasis Unit, La Paz-IdiPAZ University Hospital, shared…
Safety Profile of Eptacog Beta Confirmed in New Haemophilia Journal Article
Aug 9, 2025, 15:03 | Science
Safety Profile of Eptacog Beta Confirmed in New Haemophilia Journal Article
European Association of Haemophilia and Allied Disorders (EAHAD) shared and insightful post on X: ''Check…
Hemophilia Alliance during Tennessee Hemophilia and Bleeding Disorders Foundation Annual Meeting 2025
Aug 8, 2025, 18:33 | Voices
Hemophilia Alliance during Tennessee Hemophilia and Bleeding Disorders Foundation Annual Meeting 2025
Hemophilia Alliance shared a proud post on LinkedIn: ''Hemophilia Alliance attended the Tennessee Hemophilia and…
Wolfgang Miesbach on Frailty in Hemophilia: New Data Shows 3x Higher Risk
Aug 8, 2025, 11:59 | Insight
Wolfgang Miesbach on Frailty in Hemophilia: New Data Shows 3x Higher Risk
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a proud post on Linkedin:…
WFH Educational Platform Highlights the Broader Spectrum of Bleeding Disorders
Aug 7, 2025, 04:30 | Insight
WFH Educational Platform Highlights the Broader Spectrum of Bleeding Disorders
The World Federation of Haemophilia (WFH) shared a post on X: “Bleeding Disorders encompass more…
Conquering Factor VIII Inhibitors: New Insights Into the ‘Devil’ of Hemophilia A Treatment Resistance
Aug 6, 2025, 10:47 | Science
Conquering Factor VIII Inhibitors: New Insights Into the ‘Devil’ of Hemophilia A Treatment Resistance
Flora Peyvandi posted on X: ''Exorcizing the devil of factor VIII inhibitors'' “For the Devil is…
Heghine Khachatryan Acknowledges WFH Medical Board’s Insightful Lectures on Bleeding Disorders
Aug 6, 2025, 01:59 | Insight
Heghine Khachatryan Acknowledges WFH Medical Board’s Insightful Lectures on Bleeding Disorders
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, has shared…
WFH Humanitarian Aid Program Brings Hope to Cambodian Families with Hemophilia
Aug 6, 2025, 01:35 | Insight
WFH Humanitarian Aid Program Brings Hope to Cambodian Families with Hemophilia
The World Federation of Haemophilia (WFH) shared a  post on X: “Thanks to the treatment…
Heghine Khachatryan: Honored to Be Part of The WFH Regional Workshop 2025
Aug 5, 2025, 17:59 | Voices
Heghine Khachatryan: Honored to Be Part of The WFH Regional Workshop 2025
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Personalized Perioperative Management in Hemophilia: Key Insights from Heghine Khachatryan
Aug 5, 2025, 02:28 | Insight
Personalized Perioperative Management in Hemophilia: Key Insights from Heghine Khachatryan
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Irish Haemophilia Society Hosts Info Day for Parents of Young Children on Sep 6
Aug 5, 2025, 00:27 | Insight
Irish Haemophilia Society Hosts Info Day for Parents of Young Children on Sep 6
The Irish Haemophilia Society shared a post on X: “Taking place in the Grand Hotel…
Heghine Khachatryan Shares Highlights from WFH on PROBE and WBDR Impact
Aug 5, 2025, 00:15 | Insight
Heghine Khachatryan Shares Highlights from WFH on PROBE and WBDR Impact
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Thomas Reiser Invites You to Join the ISTH Academy Industry Portal: Be at the Forefront
Aug 4, 2025, 15:24 | Organizations
Thomas Reiser Invites You to Join the ISTH Academy Industry Portal: Be at the Forefront
Thomas Reiser, Executive Director of International Society on Thrombosis and Haemostasis (ISTH), shared an invitation,…
Genotype–Phenotype Understanding in Hemophilia B: Commentary on Factor IX Missense Variants
Aug 4, 2025, 06:00 | Insight
Genotype–Phenotype Understanding in Hemophilia B: Commentary on Factor IX Missense Variants
Ben Samelson-Jones, Assistant Professor of Pediatrics (Hematology) at the Children's Hospital of Philadelphia, posted on…
National Health Center Week – Recognizing the Vital Role of HTCs in Specialized Care
Aug 4, 2025, 05:47 | Insight
National Health Center Week – Recognizing the Vital Role of HTCs in Specialized Care
National Bleeding Disorders Foundation (NBDF) shared a post on X: “This week we celebrate National…
Women with Hemophilia Finally Heard: “DISMISSED” Premieres August 22
Aug 4, 2025, 05:33 | Insight
Women with Hemophilia Finally Heard: “DISMISSED” Premieres August 22
Patrick James Lynch, the CEO of Believe Limited, recently posted on Linkedin: “Women with hemophilia have…
Women with Inherited Bleeding Disorders: Overcoming Diagnostic and Clinical Challenge
Aug 4, 2025, 04:58 | Insight
Women with Inherited Bleeding Disorders: Overcoming Diagnostic and Clinical Challenge
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Nathan Connell: What Is The "Mild Equivalent" For Hemophilia A That Is Achieved While on Emicizumab?
Aug 3, 2025, 17:48 | Science
Nathan Connell: What Is The "Mild Equivalent" For Hemophilia A That Is Achieved While on Emicizumab?
Nathan Connell, MD, MPH, FACP, Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital,…
Cedric Hermans on the Inspiring Impact of the WFH Humanitarian Aid Program Worldwide
Aug 3, 2025, 03:54 | Science
Cedric Hermans on the Inspiring Impact of the WFH Humanitarian Aid Program Worldwide
Cedric Hermans, Head of Haemophilia Centre at the Cliniques Universitaires Saint-Luc in Brussels, recently shared…
WFH Workshop Highlights: Advancing ITI Success and FVIII Optimization in Hemophilia Care
Aug 2, 2025, 19:15 | Insight
WFH Workshop Highlights: Advancing ITI Success and FVIII Optimization in Hemophilia Care
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently posted…
Chromogenic Assays Underused in Females with Hemophilia A
Aug 2, 2025, 16:50 | Insight
Chromogenic Assays Underused in Females with Hemophilia A
The World Federation of Hemophilia (WFH) shared a post on X: ”A global survey of…
WFH in Madagascar: Advancing National Bleeding Disorder Guidelines and Governance
Aug 2, 2025, 04:14 | Insight
WFH in Madagascar: Advancing National Bleeding Disorder Guidelines and Governance
The World Federation of Hemophilia (WFH) shared a post on X: ”The WFH recently visited…
Cesar Garrido: Continued WFH Support Secured in Ecuador
Aug 2, 2025, 04:03 | Insight
Cesar Garrido: Continued WFH Support Secured in Ecuador
Cesar Garrido, The President of World Federation of Hemophilia (WFH), recently posted on X: “We…
Glenn Pierce on Overcoming Barriers to Gene Therapy in Hemophilia Care
Aug 2, 2025, 03:40 | Insight
Glenn Pierce on Overcoming Barriers to Gene Therapy in Hemophilia Care
Glenn Pierce,Vice President Medical of WFH and member of the WFH USA Board of Directors…
Susie Shapiro: New Review on Frailty in Haemophilia to Improve Screening
Aug 2, 2025, 02:34 | Insight
Susie Shapiro: New Review on Frailty in Haemophilia to Improve Screening
Susie Shapiro, consultant haematologist at Oxford University Hospitals, shared a post on X: “Link to…
Melissa Leichter Announces The Newly FDA Approved Subcutaneous Prophylactic Treatment for Hemophilia A or B
Aug 1, 2025, 17:31 | Insight
Melissa Leichter Announces The Newly FDA Approved Subcutaneous Prophylactic Treatment for Hemophilia A or B
Melissa Leichter, Rare Disease Executive, Novo Nordisk, shared a proud announcement post on LinkedIn: ''Today…
Michael Makris Shares Peter Foster's Letter To The Editor on Infected Blood Inquiry in the UK
Aug 1, 2025, 14:13 | Insight
Michael Makris Shares Peter Foster's Letter To The Editor on Infected Blood Inquiry in the UK
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, UK. Editor-in-Chief…
William McKeown: Once or Twice Weekly Altuvoct? Insights
Jul 31, 2025, 16:28 | Insight
William McKeown: Once or Twice Weekly Altuvoct? Insights
William McKeown, an EHC Steering Committee Member, has recently posted on X: “Altuvoct is now…
Robert Sidonio on the Role of aPCC in Patients Receiving Emicizumab Prophylaxis
Jul 30, 2025, 15:53 | Science
Robert Sidonio on the Role of aPCC in Patients Receiving Emicizumab Prophylaxis
Robert Sidonio, Professor of Pediatrics at Emory University Hospital, shared a post on LinkedIn: ''It…
Zambia’s Hemophilia Prophylaxis Success
Jul 28, 2025, 12:53 | Voices
Zambia’s Hemophilia Prophylaxis Success
The World Federation of Hemophilia (WFH) shared a post on X: ”In Zambia, access to…
WFH, Sanofi and Sobi for Armenia: Unprecedented Commitment to Build the Humanitarian Aid Program
Jul 27, 2025, 15:23 | Organizations
WFH, Sanofi and Sobi for Armenia: Unprecedented Commitment to Build the Humanitarian Aid Program
Scott Williams, VP and Head, Global Public Affairs at Sanofi, shared an honoring post on…
ADA Anniversary 2025: HFA Recognizes Equity and Accessibility Milestone
Jul 27, 2025, 05:36 | Organizations
ADA Anniversary 2025: HFA Recognizes Equity and Accessibility Milestone
Hemophilia Federation of America (HFA) recently posted on X: “Today we honor the anniversary of the…
ISTH Leading the Biggest Global Initiative on Thrombosis Awareness During World Thrombosis Day Campaign
Jul 26, 2025, 16:43 | Organizations
ISTH Leading the Biggest Global Initiative on Thrombosis Awareness During World Thrombosis Day Campaign
The International Society on Thrombosis and Haemostasis (ISTH) recently shared a proud post on LinkedIn:…
WFH 2024 Annual Report: A Significant Progress
Jul 25, 2025, 16:26 | Organizations
WFH 2024 Annual Report: A Significant Progress
The World Federation of Hemophilia (WFH) shared a proud post on X: ''In 2024, the…
WFH Cornerstone Initiative: Rwanda Marks 3 Years of Participation
Jul 25, 2025, 16:22 | Organizations
WFH Cornerstone Initiative: Rwanda Marks 3 Years of Participation
The World Federation of Hemophilia (WFH) shared a proud post on X: ''The WFH recently…
Why Is Gene Therapy Uptake in Hemophilia Slower Than Expected
Jul 25, 2025, 05:40 | Science
Why Is Gene Therapy Uptake in Hemophilia Slower Than Expected
Brian O Mahony, Former President of WFH, shared a post on X: “Our paper on Why…
Global Study Sheds Light on Low-Dose Prophylaxis in Hemophilia A
Jul 25, 2025, 05:11 | Science
Global Study Sheds Light on Low-Dose Prophylaxis in Hemophilia A
The World Federation of Hemophilia (WFH) shared  a post on X: “A new study using…
Dr. Bridget Freeman Explains Why Sleep Is Crucial for Chronic Care
Jul 25, 2025, 04:50 | Insight
Dr. Bridget Freeman Explains Why Sleep Is Crucial for Chronic Care
Hemophilia Outreach of Wisconsin Inc shared some noteworthy insights from Dr Bridget Freeman on Linkedin:…
Don't Miss the Hemophilia B Virtual Event on July 29 – Sign Up Now!
Jul 23, 2025, 15:34 | Voices
Don't Miss the Hemophilia B Virtual Event on July 29 – Sign Up Now!
Hemophilia Federation of America (HFA) shared a post on X: “Living with Hemophilia B: From…
Haemnet Gives Voice to Parents Facing the Challenges of Childhood Bleeding Disorders
Jul 23, 2025, 11:05 | Voices
Haemnet Gives Voice to Parents Facing the Challenges of Childhood Bleeding Disorders
Haemnet posted on X: ''Scary, stressful, traumatic… Taking control! Parents in our family-focused Haemnet blog…
Wolfgang Miesbach Shares Newly Released Gene Therapy Qualification Criteria Paper
Jul 22, 2025, 17:19 | Insight
Wolfgang Miesbach Shares Newly Released Gene Therapy Qualification Criteria Paper
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on X: “Exciting…
WFH Advances Hemophilia Care with EHL Workshop in India
Jul 22, 2025, 16:40 | Organizations
WFH Advances Hemophilia Care with EHL Workshop in India
The World Federation of Haemophilia (WFH) shared a proud post on X: 'The WFH recently…
‘The Best Decision I Ever Made’: Wolfgang Miesbach Marks 10 Years Since First Haemophilia B Gene Therapy Trial at Frankfurt
Jul 22, 2025, 08:27 | Insight
‘The Best Decision I Ever Made’: Wolfgang Miesbach Marks 10 Years Since First Haemophilia B Gene Therapy Trial at Frankfurt
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on X: “The Best…
What’s Slowing Down Gene Therapy Uptake in Hemophilia? Brian O’Mahony Explains the Real-World Barriers
Jul 21, 2025, 13:10 | Voices
What’s Slowing Down Gene Therapy Uptake in Hemophilia? Brian O’Mahony Explains the Real-World Barriers
Brian O’Mahony, CEO of Irish Haemophilia Society,former President of WFH and EHC, highlights several key…
Michael Makris Shares 2 Fascinating Lessons from Hemophilia Care in Japan
Jul 20, 2025, 17:17 | Voices
Michael Makris Shares 2 Fascinating Lessons from Hemophilia Care in Japan
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, UK. Editor-in-Chief…
Jessica Hernandez Garcia: Honored to Become 2025 HTRS/Novo Nordisk Clinical Scholar Awardee
Jul 18, 2025, 18:12 | Organizations
Jessica Hernandez Garcia: Honored to Become 2025 HTRS/Novo Nordisk Clinical Scholar Awardee
Jessica Hernandez Garcia, pediatric hematologist at UT Southwestern Medical Center, proudly reposted from HTRS on…
WFH Shares Powerful Patient Story on Access to Bleeding Disorders Treatment
Jul 18, 2025, 12:14 | Insight
WFH Shares Powerful Patient Story on Access to Bleeding Disorders Treatment
The World Federation of Hemophilia (WFH) shared a post on X: ”This powerful story highlights…
Advance Bleeding Disorder Expertise: Takeda Fellowship Now Accepting Applications
Jul 18, 2025, 11:27 | Organizations
Advance Bleeding Disorder Expertise: Takeda Fellowship Now Accepting Applications
National Bleeding Disorders Foundation shared a post on X: “Funded by Takeda, this fellowship offers…
A 200+ Year Historical Review of Women and Hemophilia: Shifting Perspectives
Jul 15, 2025, 16:42 | Voices
A 200+ Year Historical Review of Women and Hemophilia: Shifting Perspectives
National Bleeding Disorders Foundation (NBDF) recently posted on X: ''A new review traces 200+ years…
GPAS 2025: Shaping the Future of Bleeding Disorder Care
Jul 11, 2025, 16:48 | Insight
GPAS 2025: Shaping the Future of Bleeding Disorder Care
The World Federation of Hemophilia (WFH) recently shared an insightful post on X: ''At GPAS…
Wolfgang Miesbach: How to Better Understand and Explain Gene Therapy of Haemophilia?
Jul 11, 2025, 15:40 | Science
Wolfgang Miesbach: How to Better Understand and Explain Gene Therapy of Haemophilia?
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on Linkedin: "How…
Dr. Carol Kasper: Honoring the Legacy
Jul 10, 2025, 18:25 | Voices
Dr. Carol Kasper: Honoring the Legacy
Brian O Mahony, CEO of Irish Haemophilia Society,former President of WFH and EHC, shared a…
FDA Approves ConcizuTrace™ ELISA Companion Diagnostic for 2024 Concizumab Therapy in Hemophilia
Jul 10, 2025, 17:59 | Drugs
FDA Approves ConcizuTrace™ ELISA Companion Diagnostic for 2024 Concizumab Therapy in Hemophilia
The National Bleeding Disorders Foundation (NBDF) shared a post on X: ''The FDA has approved…
Transforming FVIII Product Classification: AUC and TTR as Game-Changing Metrics for Next-Generation Hemophilia A Therapy
Jul 9, 2025, 16:53 | Drugs
Transforming FVIII Product Classification: AUC and TTR as Game-Changing Metrics for Next-Generation Hemophilia A Therapy
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, has recently shared a very informative…
With Great Sorrow We Announce the Passing of Prof. Parttaporn Isarangkura: A Pioneer in Hemophilia Care in Thailand and Beyond
Jul 7, 2025, 19:15 | Blog
With Great Sorrow We Announce the Passing of Prof. Parttaporn Isarangkura: A Pioneer in Hemophilia Care in Thailand and Beyond
Brian O Mahony, CEO of Irish Haemophilia Society, has shared a devastating news announcement about…
EHC and EUPATI Partner to Advance Patient Education and Engagement in Therapeutic Innovation
Jul 7, 2025, 18:36 | Organizations
EHC and EUPATI Partner to Advance Patient Education and Engagement in Therapeutic Innovation
The European Haemophilia Consortium (EHC) recently shared an announcement post on X: ''EHC has partnered…
Preparing for School Vaccinations with a Bleeding Disorder
Jul 7, 2025, 17:47 | Drugs
Preparing for School Vaccinations with a Bleeding Disorder
Hemophilia of Georgia recently shared a post on vaccinations on X: ''As the new school…
Detecting Anti-Drug Antibodies to Emicizumab: A French Center’s Remarkable Experience
Jul 7, 2025, 17:08 | Innovation
Detecting Anti-Drug Antibodies to Emicizumab: A French Center’s Remarkable Experience
Thrombosis & Haemostasis Journal (TH Open) has recently shared a promising data on Emicizumab efficacy…
Japan's Youth Engagement in Hemophilia Care: Where Even the Doctors Get It – HABIT Summit 2025
Jul 6, 2025, 11:48 | Voices
Japan's Youth Engagement in Hemophilia Care: Where Even the Doctors Get It – HABIT Summit 2025
Brian O Mahony, CEO of Irish Haemophilia Society, former President of WFH and EHC shared…
A Game-Changer by Roche and Chugai | NXT007: For Hemophilia A, Without Inhibitors
Jul 5, 2025, 17:47 | Drugs
A Game-Changer by Roche and Chugai | NXT007: For Hemophilia A, Without Inhibitors
The National Bleeding Disorders Foundation (NBDF) posted in appreciation of Roche and Chugai on X:…
WFH Bleeding Disorders Registry: 10,000 New Patients Targeted by 2025
Jul 5, 2025, 16:33 | Organizations
WFH Bleeding Disorders Registry: 10,000 New Patients Targeted by 2025
The World Federation of Hemophilia (WFH) shared on X: “The WBDR provides a web-based data…
1 Week Left: Join WFH Global Summit on Advancing Access for Bleeding Disorders Community
Jul 3, 2025, 16:48 | Organizations
1 Week Left: Join WFH Global Summit on Advancing Access for Bleeding Disorders Community
The World Federation of Hemophilia (WFH) shared an inviting post on X: ''Just 1 week…
The Real Cost of Healthcare Cuts: HFA is Launching a Campaign | Advocate for Bleeding Disorders Community
Jul 2, 2025, 04:56 | Organizations
The Real Cost of Healthcare Cuts: HFA is Launching a Campaign | Advocate for Bleeding Disorders Community
Bleeding Disorders Council of California recently shared a post on X, urging to join the…
Project SHARE: Global Support, Real Impact | Calyx’s Hemophilia Journey Made Possible by Donations
Jul 1, 2025, 18:47 | Organizations
Project SHARE: Global Support, Real Impact | Calyx’s Hemophilia Journey Made Possible by Donations
Save One Life recently shared an encouraging post on X: This is Calyx, an 11…
What Is Hemophilia? Learn More About the Rare Bleeding Disorder Explained By WFH
Jul 1, 2025, 07:53 | Insight
What Is Hemophilia? Learn More About the Rare Bleeding Disorder Explained By WFH
The World Federation of Hemophilia (WFH), shared on X: “What is hemophilia and what does…
Mark Your Calendar: EAHAD 2026 in Dublin From 3–6 February 2026
Jul 1, 2025, 07:23 | Insight
Mark Your Calendar: EAHAD 2026 in Dublin From 3–6 February 2026
EAHAD, the  European Association for Haemophilia and Allied Disorders, just posted on X: “The 19th…
Bezalel Hakkeem: Honored to be ISTH 2025 ''Reach the World Travel Award'' Recipient
Jun 30, 2025, 09:56 | Insight
Bezalel Hakkeem: Honored to be ISTH 2025 ''Reach the World Travel Award'' Recipient
Bezalel Hakkeem recently shared a proud post on X: ''Proud to have received the "Reach…
A Proud Milestone: Kazakhstan Becomes EHC’s 49th Member
Jun 30, 2025, 09:39 | Organizations
A Proud Milestone: Kazakhstan Becomes EHC’s 49th Member
The European Haemophilia Consortium shared a welcoming post on X: ''Welcome, Kazakhstan Association of Disabled…
Molecular Upgrade: 2025 Hemophilia Care Hits Next Level
Jun 29, 2025, 13:46 | Science
Molecular Upgrade: 2025 Hemophilia Care Hits Next Level
William McKeown recently posted on X: ''Beautiful slide from Maria Elisa Mancuso summarising the molecules…
Sukesh Nair: A Wonder Volunteer Making Global Waves in Laboratory Diagnostics
Jun 29, 2025, 13:36 | Organizations
Sukesh Nair: A Wonder Volunteer Making Global Waves in Laboratory Diagnostics
The World Federation of Hemophilia recently posted on X: ''Meet Sukesh Nair, MD, a WFH…
Journal Hemophilia on Bone Health | Vitamin D, DEXA Scans and Bleeding Disorders?
Jun 27, 2025, 16:13 | Science
Journal Hemophilia on Bone Health | Vitamin D, DEXA Scans and Bleeding Disorders?
National Bleeding Disorders Foundation recently shared a post on a peculiar topic on X: ''New…
Kazakhstan Joins EHC Haemophilia as 49th Member to Advance Hemophilia Care
Jun 27, 2025, 16:02 | Insight
Kazakhstan Joins EHC Haemophilia as 49th Member to Advance Hemophilia Care
EHC Haemophilia (The European Haemophilia Consortium) has recently shared a post on X: “Welcome, Kazakhstan…
Welcoming Opposition to ISTH 2025: EHC Highlights the Crucial Role of Modern Treatments in Hemophilia Management
Jun 26, 2025, 12:58 | Organizations
Welcoming Opposition to ISTH 2025: EHC Highlights the Crucial Role of Modern Treatments in Hemophilia Management
The European Haemophilia Consortium shared a post on X: ''The EHC attended ISTH 2025, where…
Rewriting Your DNA in Childhood: Because Why Wait to Cure Hemophilia? | ISTH 2025 Breakthrough
Jun 24, 2025, 22:08 | Science
Rewriting Your DNA in Childhood: Because Why Wait to Cure Hemophilia? | ISTH 2025 Breakthrough
Ben Samelson-Jones, Assistant Professor of Pediatrics at University of Pennsylvania School of Medicine, posted on…
A New Era in Hemophilia A Prophylaxis: Dr. Shima Presented Groundbreaking Phase I/II Results for NXT007
Jun 23, 2025, 12:40 | Insight
A New Era in Hemophilia A Prophylaxis: Dr. Shima Presented Groundbreaking Phase I/II Results for NXT007
NXT007 Hemophilia A Prophylaxis took center stage today when Wolfgang Miesbach, Professor of Medicine at…
Synovitis in Hemophilia: Prognostic Biomarkers Could Guide Future Therapy
Jun 23, 2025, 11:54 | Insight
Synovitis in Hemophilia: Prognostic Biomarkers Could Guide Future Therapy
Flora Peyvandi, the previous president of ISTH, recently posted on X:  “Is clear now several…
WFH Shared Decision-Making Tool: Help Improve Hemophilia Care
Jun 15, 2025, 09:44 | Insight
WFH Shared Decision-Making Tool: Help Improve Hemophilia Care
The World Federation of Hemophilia (WFH) posted on X: “Help improve hemophilia care! The WFH…
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