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Hemophilia

Novo Nordisk Haemophilia Foundation Partners Drive Global Progress in Low-Dose Prophylaxis and Carrier Awareness
Sep 20, 2025, 13:58 | Organizations
Novo Nordisk Haemophilia Foundation Partners Drive Global Progress in Low-Dose Prophylaxis and Carrier Awareness
Novo Nordisk Haemophilia Foundation has shared a post on LinkedIn: “NNHF Partners Highlight Meeting We…
EAHAD Launches E-Learning Module on Non-Surgical Management of Hemophilic Arthropathy
Sep 18, 2025, 09:43 | Organizations
EAHAD Launches E-Learning Module on Non-Surgical Management of Hemophilic Arthropathy
  European Association for Haemophilia and Allied Disorders (EAHAD) posted on X: ''Watch the latest…
WFH Vice President Glenn Pierce on Slow Uptake and Industry Shifts in Hemophilia Gene Therapy
Sep 18, 2025, 09:18 | Voices
WFH Vice President Glenn Pierce on Slow Uptake and Industry Shifts in Hemophilia Gene Therapy
The World Federation of Hemophilia (WFH) posted on LinkedIn: ”WFH Vice President, Medical, Glenn Pierce,…
Paul Batty: The Hepatic Odyssey of AAV Gene Therapy in Hemophilia
Sep 18, 2025, 09:15 | Science
Paul Batty: The Hepatic Odyssey of AAV Gene Therapy in Hemophilia
Paul Batty, Associate Professor at University College London and Honorary Consultant in Haemostasis and Thrombosis…
Sep 18, 2025, 07:02 | Voices
Abdul Mannan: Embracing Failure as a Teacher in the Journey Through Medicine
Abdul Mannan, Consultant Haematologist at Betsi Cadwaladr University Health Board, shared on LinkedIn: “My journey in…
M Joseph John: Joint Health in Hemophilic Arthropathy
Sep 17, 2025, 09:52 | Science
M Joseph John: Joint Health in Hemophilic Arthropathy
The World Federation of Hemophilia (WFH) shared on LinkedIn: ''Can hands-on therapy boost outcomes? A…
Advance Bleeding Disorders Care: Submit Your Abstract for WFH 2026 by December 1
Sep 16, 2025, 08:36 | Organizations
Advance Bleeding Disorders Care: Submit Your Abstract for WFH 2026 by December 1
World Federation of Hemophilia (WFH) shared a post on LinkedIn: “Abstract submissions for both oral…
Nathan Connell Reflects on the Impact of COCs on VWD Patients Compared to Healthy People
Sep 15, 2025, 16:24 | Science
Nathan Connell Reflects on the Impact of COCs on VWD Patients Compared to Healthy People
Nathan Connell, Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital, shared on LinkedIn: ''Navigating…
Subcutaneous Prophylaxis for Hemophilia (With or Without Inhibitors) – Novo Nordisk and HFA Webinar
Sep 15, 2025, 08:26 | Organizations
Subcutaneous Prophylaxis for Hemophilia (With or Without Inhibitors) – Novo Nordisk and HFA Webinar
Hemophilia Federation of America (HFA) has shared a post on LinkedIn: “Join Novo Nordisk and…
Brian O Mahony Shares Amit Nathwani's Research from BIC 2025 on FVII and FIX Gene Therapies for Hemophilia
Sep 14, 2025, 22:03 | Insight
Brian O Mahony Shares Amit Nathwani's Research from BIC 2025 on FVII and FIX Gene Therapies for Hemophilia
Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC, shared…
Flora Peyvandi Closed BIC 2025 Thanking Glenn Pierce and Brian O' Mahony for Reminding Us of Our Impact on Patients
Sep 14, 2025, 18:21 | Insight
Flora Peyvandi Closed BIC 2025 Thanking Glenn Pierce and Brian O' Mahony for Reminding Us of Our Impact on Patients
Roberta Palla, post doctoral research fellow at the University of Milan, shared on X: ''Flora…
Flora Peyvandi: Excellent Presentation of ⁦Brian O' Mahony at BIC 2025 on Novel Drugs in Hemophilia
Sep 14, 2025, 15:50 | Insight
Flora Peyvandi: Excellent Presentation of ⁦Brian O' Mahony at BIC 2025 on Novel Drugs in Hemophilia
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
F8 Gene Variants Affect Desmopressin Response in Female Hemophilia A Carriers
Sep 14, 2025, 04:16 | Science
F8 Gene Variants Affect Desmopressin Response in Female Hemophilia A Carriers
Rare Disease Advisor has shared a post on LinkedIn: “The pharmacokinetic response of factor VIII…
Early Diagnosis and Care: Giving Children with Haemophilia the Chance to Thrive
Sep 13, 2025, 13:44 | Organizations
Early Diagnosis and Care: Giving Children with Haemophilia the Chance to Thrive
Kenya Haemophilia Association shared a post on LinkedIn. "Children with haemophilia can live healthy, happy, and…
Michael Makris on Rising Malignancy Concerns After Hemophilia Gene Therapy: Key Challenges Highlighted in NEJM
Sep 13, 2025, 13:35 | Science
Michael Makris on Rising Malignancy Concerns After Hemophilia Gene Therapy: Key Challenges Highlighted in NEJM
   Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief…
Brian O Mahony on 5-Year Roctavian Gene Therapy Data from BIC2025
Sep 13, 2025, 13:34 | Voices
Brian O Mahony on 5-Year Roctavian Gene Therapy Data from BIC2025
Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC, shared…
Peter Lenting at BIC 2025: Fantastic Lecture on FVIII Mimetics
Sep 13, 2025, 10:23 | Insight
Peter Lenting at BIC 2025: Fantastic Lecture on FVIII Mimetics
HITh lab Inserm shared on LinkedIn: ''The HITh lab Inserm is at BIC 2025 in…
Flora Peyvandi Shares BIC 2025 Coverage of Hemostasis & Thrombosis: 10 Posts Not To Miss
Sep 13, 2025, 10:20 | Insight
Flora Peyvandi Shares BIC 2025 Coverage of Hemostasis & Thrombosis: 10 Posts Not To Miss
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
WFH and Armenia: A Transformative Partnership for Hemophilia Patients Since 2018
Sep 12, 2025, 15:57 | Organizations
WFH and Armenia: A Transformative Partnership for Hemophilia Patients Since 2018
World Federation of Hemophilia (WFH) shared on LinkedIn: ''Years ago in Armenia, people with hemophilia…
Mutala’s Life is Transformed: Donate to Gift a Chance to Thousands of Children
Sep 12, 2025, 07:53 | Organizations
Mutala’s Life is Transformed: Donate to Gift a Chance to Thousands of Children
World Federation of Hemophilia (WFH) shared on LinkedIn: ''From pain to play! Mutala’s life transformed…
The True Price of Gene Therapy: Breaking Down Beqvez’s $3.5M Cost and What Really Drives It
Sep 11, 2025, 15:42 | Insight
The True Price of Gene Therapy: Breaking Down Beqvez’s $3.5M Cost and What Really Drives It
Scott Jeffers, Chief Technology Officer at GenSight Biologics, has shared a post on LinkedIn: "The…
WFH & EAHAD Host Regional Workshop on Shared Decision-Making in Hemophilia in Prague
Sep 11, 2025, 15:31 | Organizations
WFH & EAHAD Host Regional Workshop on Shared Decision-Making in Hemophilia in Prague
The World Federation of Hemophilia (WFH) shared on LinkedIn: "This weekend, the WFH & European…
Marstacimab Shows 93% Reduction in Treated Bleeds in its Phase 3 Trial
Sep 11, 2025, 13:37 | Drugs
Marstacimab Shows 93% Reduction in Treated Bleeds in its Phase 3 Trial
National Bleeding Disorders Foundation shared on LinkedIn: ''Promising news for the hemophilia community! Pfizer’s HYMPAVZI™…
WHO Updates Essential Medicines List for Hemophilia and VWD: Louise Bannon Applauds Global Hematology Community’s Achievement
Sep 10, 2025, 15:02 | Drugs
WHO Updates Essential Medicines List for Hemophilia and VWD: Louise Bannon Applauds Global Hematology Community’s Achievement
Louise Bannon, Director of Membership, Marketing and External Relations of ISTH, shared a post on…
Iron Deficiency in Mild to Moderate Bleeding Disorders․ Key Insights from Prof. Flora Peyvandi
Sep 10, 2025, 08:06 | Science
Iron Deficiency in Mild to Moderate Bleeding Disorders․ Key Insights from Prof. Flora Peyvandi
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
From Weight-Based to PK-Tailored Prophylaxis: A New Shared Decision-Making Approach in Hemophilia Care
Sep 10, 2025, 08:03 | Science
From Weight-Based to PK-Tailored Prophylaxis: A New Shared Decision-Making Approach in Hemophilia Care
World Federation of Hemophilia shared a post on X: “Complementing the WFH Shared decision-making (SDM)…
Hemophilia Federation of America Launches ‘Blood Brothers’ Podcast for Men With Bleeding Disorders
Sep 9, 2025, 08:07 | Voices
Hemophilia Federation of America Launches ‘Blood Brothers’ Podcast for Men With Bleeding Disorders
  Hemophilia Federation of America (HFA) posted on X: ''Calling all Blood Brothers Are you…
European Haemophilia Consortium Marks World PT Day: Physiotherapy Empowers People with Bleeding Disorders
Sep 8, 2025, 14:26 | Voices
European Haemophilia Consortium Marks World PT Day: Physiotherapy Empowers People with Bleeding Disorders
  The European Haemophilia Consortium (EHC Haemophilia) posted on X: ''This World PT Day, we…
French Reference Center for Hemophilia Presented at The 22nd Turkish Hemophilia Congress
Sep 8, 2025, 07:00 | Voices
French Reference Center for Hemophilia Presented at The 22nd Turkish Hemophilia Congress
CRH French Reference Center for Hemophilia Lyon shared on LinkedIn: ''At the 22nd Turkish Hemophilia…
Brian O Mahony: WHO Updates 2025 Essential Medicines List Following WFH Advocacy
Sep 7, 2025, 14:09 | Organizations
Brian O Mahony: WHO Updates 2025 Essential Medicines List Following WFH Advocacy
Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC, shared a…
WFH eLearning Platform Explains the Different Types of Fibrinogen Disorders
Sep 7, 2025, 14:06 | Organizations
WFH eLearning Platform Explains the Different Types of Fibrinogen Disorders
World Federation of Hemophilia shared a post on LinkedIn: “Thanks for joining our poll yesterday!…
The World Federation of Hemophilia Celebrates WHO Approval of Essential Medicines List Updates
Sep 7, 2025, 14:03 | Organizations
The World Federation of Hemophilia Celebrates WHO Approval of Essential Medicines List Updates
  The World Federation of Hemophilia (WFH) posted on X: ''The global Bleeding Disorders community…
The WFH Congress 2026 Program-at-a-Glance is Here!
Sep 6, 2025, 15:33 | Organizations
The WFH Congress 2026 Program-at-a-Glance is Here!
World Federation of Hemophilia (WFH) shared on LinkedIn: ''The WFH Congress 2026 Program-at-a-Glance is here!…
The Body Explained on Blood Clotting Pathways
Sep 6, 2025, 13:48 | Insight
The Body Explained on Blood Clotting Pathways
The Body Explained shared an insightful post on X: "Blood clotting is life’s emergency repair…
Global Nurses Driving Better Outcomes in Hemophilia — WFH Nursing Committee
Sep 5, 2025, 14:10 | Organizations
Global Nurses Driving Better Outcomes in Hemophilia — WFH Nursing Committee
World Federation of Hemophilia (WFH) shared on LinkedIn: “The WFH Nursing Committee is dedicated to…
New Study Featured by Rare Disease Advisor Reveals Quality-of-Life Challenges in Hemophilia
Sep 5, 2025, 10:59 | Insight
New Study Featured by Rare Disease Advisor Reveals Quality-of-Life Challenges in Hemophilia
  Rare Disease Advisor posted on LinkedIn: ''Regardless of treatment regimen or disease severity, patients…
Hemophilia Care Advances: Learn About Prefilled Injection Pen Treatment with HFA
Sep 5, 2025, 05:22 | Organizations
Hemophilia Care Advances: Learn About Prefilled Injection Pen Treatment with HFA
Hemophilia Federation of America (HFA), shared a post on X: “New option for hemophilia care?…
Women with Bleeding Disorders Speak Out in New Documentary
Sep 4, 2025, 11:54 | Organizations
Women with Bleeding Disorders Speak Out in New Documentary
National Bleeding Disorders Foundation shared on X: ”For too long, women in the bleeding disorders…
PARTHENOPE Trial: A New Benchmark in Risk Score Validation
Sep 4, 2025, 11:52 | Insight
PARTHENOPE Trial: A New Benchmark in Risk Score Validation
Davide Capodanno, Professor of Cardiology at the University of Catania, editor-in-Chief of EuroIntervention, posted on…
Jacek Lesinski: The Importance of Whole Blood and Plasma Donation
Sep 3, 2025, 14:00 | Voices
Jacek Lesinski: The Importance of Whole Blood and Plasma Donation
Jacek Lesinski, a 3rd-year medical laboratory technology apprentice at Rheinisches Bildungszentrum Köln in Germany, specializing…
Insights from Michael Makris: FAERS Reveals Thrombotic Events for Marstacimab
Sep 3, 2025, 03:05 | Drugs
Insights from Michael Makris: FAERS Reveals Thrombotic Events for Marstacimab
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, UK. Editor-in-Chief…
Improving Hemophilia Care Worldwide: Insights from the WFH Nursing Committee
Sep 3, 2025, 02:34 | Organizations
Improving Hemophilia Care Worldwide: Insights from the WFH Nursing Committee
World Federation of Hemophilia (WFH) shared a post on X: “The WFH Nursing Committee is…
Why Early Testing Saves Lives in Bleeding Disorders - Kenya Haemophilia Association
Sep 2, 2025, 14:03 | Organizations
Why Early Testing Saves Lives in Bleeding Disorders - Kenya Haemophilia Association
Kenya Haemophilia Association shared a post on LinkedIn: “Haemophilia and other bleeding disorders often go unnoticed,…
Treatment of Deep Brain AVMs Tied to Increased Hemorrhagic Stroke Risk
Sep 2, 2025, 12:51 | Innovation
Treatment of Deep Brain AVMs Tied to Increased Hemorrhagic Stroke Risk
International Journal of Stroke shared a post on X: “Just Accepted. Study finds interventional treatment…
ISTH Pulse Podcast: 40 Years of Collaboration, Science, and Friendship
Sep 1, 2025, 08:10 | Organizations
ISTH Pulse Podcast: 40 Years of Collaboration, Science, and Friendship
The International Society on Thrombosis and Hemostasis (ISTH) recently shared a post on X: ”Tune…
Slow Uptake of Hemophilia Gene Therapies: Challenges in Access and Adoption
Aug 31, 2025, 09:45 | Insight
Slow Uptake of Hemophilia Gene Therapies: Challenges in Access and Adoption
National Bleeding Disorders Foundation  (NBDF) shared on X: ”A new forum piece in Research and…
Rishabh Singh Shares Enthusiasm for Blood Podcast on RNA Therapeutics in Hematology
Aug 31, 2025, 07:26 | Insight
Rishabh Singh Shares Enthusiasm for Blood Podcast on RNA Therapeutics in Hematology
  Rishabh Singh, an Heme/Onc fellow at Indiana University, posted on X: ''Listened to this…
Flora Peyvandi Highlights Challenges in Delivering Gene Therapy Despite Scientific Advances
Aug 30, 2025, 14:38 | Insight
Flora Peyvandi Highlights Challenges in Delivering Gene Therapy Despite Scientific Advances
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
Wolfgang Miesbach on Transforming Care for Women and Girls with Bleeding Disorders: Key Guidelines 2021–2024
Aug 29, 2025, 19:18 | Insight
Wolfgang Miesbach on Transforming Care for Women and Girls with Bleeding Disorders: Key Guidelines 2021–2024
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a post on LinkedIn: “Advancing…
Flora Peyvandi: Join the Hemostasis Community at BIC 2025 in Italy
Aug 29, 2025, 09:02 | Voices
Flora Peyvandi: Join the Hemostasis Community at BIC 2025 in Italy
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
Improving Bleeding Disorder Care: WFH Conducts Workshops in Gabon
Aug 27, 2025, 17:17 | Insight
Improving Bleeding Disorder Care: WFH Conducts Workshops in Gabon
World Federation of Hemophilia (WFH) shared a post on X: “The WFH recently visited Gabon…
Rare Disease Advisor – RBC Rheology Alterations in Hemophilia with Arthropathy
Aug 26, 2025, 09:59 | Insight
Rare Disease Advisor – RBC Rheology Alterations in Hemophilia with Arthropathy
Rare Disease Advisor shared a post on X: ”Impairments in Red Blood Cell (RBC) rheology, particularly…
HFA Supports Future Planning for People with Bleeding Disorders
Aug 26, 2025, 09:57 | Insight
HFA Supports Future Planning for People with Bleeding Disorders
Hemophilia Federation of America (HFA) shared a reminder post on X: ”Life with a bleeding…
New EHC Report: Strengthening Bleeding Disorder Registries for Better Care
Aug 26, 2025, 09:27 | Insight
New EHC Report: Strengthening Bleeding Disorder Registries for Better Care
The European Haemophilia Consortium (EHC), has shared a post on X: “EHC Think Tank releases…
4th WFH Global Summit on Women and Girls with Bleeding Disorders! Register Now
Aug 25, 2025, 09:57 | Organizations
4th WFH Global Summit on Women and Girls with Bleeding Disorders! Register Now
World Federation of Hemophilia (WFH) shared on LinkedIn: ”The full program for the 4th WFH…
Enhao Li on Key Immune Differences Between HA and HB Patients with Inhibitors: B Cells Versus T Cells Dominance
Aug 24, 2025, 07:47 | Science
Enhao Li on Key Immune Differences Between HA and HB Patients with Inhibitors: B Cells Versus T Cells Dominance
Blood Journals Portfolio shared on X: "B cells dominate in patients with HA with inhibitors, whereas…
Hemophilia Doesn’t Define Me—Skyler Tulley’s 100-Mile Challenge
Aug 23, 2025, 16:06 | Insight
Hemophilia Doesn’t Define Me—Skyler Tulley’s 100-Mile Challenge
Hemophilia Federation of America (HFA) published on X: ”Skyler Tulley, born with severe Hemophilia B, refuses…
WFH Announces 4th Global Summit on Women and Girls with Bleeding Disorders
Aug 23, 2025, 07:54 | Organizations
WFH Announces 4th Global Summit on Women and Girls with Bleeding Disorders
World Federation of Hemophilia (WFH) shared an inviting post on LinkedIn: "You're invited! Join us…
Protecting Heart and Brain Health: Stroke Prevention in Women with Bleeding Disorders: NBDF
Aug 23, 2025, 07:48 | Voices
Protecting Heart and Brain Health: Stroke Prevention in Women with Bleeding Disorders: NBDF
National Bleeding Disorders Foundation shared an important post on LinkedIn: "Women with bleeding disorders face…
Diego Butera: Insights on Anti-FVIII Antibodies and Their Selective Binding
Aug 22, 2025, 14:48 | Insight
Diego Butera: Insights on Anti-FVIII Antibodies and Their Selective Binding
Blood Journals Portfolio shared a post on X: "Patient-derived anti-FVIII antibodies bind preferentially to a…
World Federation of Hemophilia on Inhibitors in Treatment
Aug 21, 2025, 15:48 | Science
World Federation of Hemophilia on Inhibitors in Treatment
World Federation of Hemophilia shared an insightful post on LinkedIn: "Inhibitors are a serious complication…
Antoine Francis: LIFE - The Only Metric
Aug 20, 2025, 15:36 | Insight
Antoine Francis: LIFE - The Only Metric
Antoine Francis, Founder of Global Plasma Supply LTD, shared an insightful post on LinkedIn: ''From…
EHC 2025: Young Voices Shaping the Future of Bleeding Disorders
Aug 19, 2025, 14:23 | Insight
EHC 2025: Young Voices Shaping the Future of Bleeding Disorders
The European Haemophilia Consortium (EHC), has shared a post on X: “Amplifying young voices at…
Join the 14th World Federation of Hemophilia Global Forum in Montreal
Aug 19, 2025, 14:05 | Insight
Join the 14th World Federation of Hemophilia Global Forum in Montreal
World Federation of Hemophilia (WFH) shared a post on Linkedin: “Registration is now open for…
EAHAD 2026 Dublin: Join Leading Haemophilia Experts for Research Insights and Networking
Aug 17, 2025, 15:26 | Insight
EAHAD 2026 Dublin: Join Leading Haemophilia Experts for Research Insights and Networking
European Association for Haemophilia and Allied Disorders (EAHAD) posted on X: “Connect with leading voices…
Share Your Perspective: EAHAD Survey on Gene Therapy in Haemophilia Care
Aug 16, 2025, 17:16 | Organizations
Share Your Perspective: EAHAD Survey on Gene Therapy in Haemophilia Care
European Association for Haemophilia and Allied Disorders (EAHAD) shared an inviting post on LinkedIn: "Gene…
Cathy Harrison: Launching A Journal Club from EAHAD and WFH
Aug 15, 2025, 23:29 | Insight
Cathy Harrison: Launching A Journal Club from EAHAD and WFH
Cathy Harrison, WFH nurses committee Chair, shared a post on X: ”The latest collaborative webinar…
Thrombin Generation Assay to Guide Factor Therapy With Fitusiran
Aug 14, 2025, 13:09 | Science
Thrombin Generation Assay to Guide Factor Therapy With Fitusiran
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
Cedric Hermans Shares His Vision for the Use of APCC During Emicizumab Prophylaxis
Aug 13, 2025, 23:32 | Science
Cedric Hermans Shares His Vision for the Use of APCC During Emicizumab Prophylaxis
Cedric Hermans, Head of Haemophilia Centre at the Cliniques Universitaires Saint-Luc in Brussels, recently shared…
Chokri Ben Lamine: Causes and Diagnostic Approach to PTT Prolongation
Aug 13, 2025, 06:44 | Insight
Chokri Ben Lamine: Causes and Diagnostic Approach to PTT Prolongation
Chokri Ben Lamine, Adult Hematology and Stem Cell Transplantation Assistant Consultant at Oncology Center of…
Lindsey George on Gene Therapy Transforming Hemophilia Care
Aug 13, 2025, 04:13 | Science
Lindsey George on Gene Therapy Transforming Hemophilia Care
The World Federation of Haemophilia (WFH) shared a post on X: “Gene Therapy is changing…
Radoslaw Kaczmarek: Challenges Limiting Gene Therapy Use in Hemophilia
Aug 13, 2025, 01:39 | Insight
Radoslaw Kaczmarek: Challenges Limiting Gene Therapy Use in Hemophilia
Radoslaw Kaczmarek, Researcher at IU School of Medicine and Hirszfeld Institute, shared an insightful review…
WFH Humanitarian Aid Program Hosts Workshop on Hemophilia Diagnosis and Management in Türkiye
Aug 11, 2025, 13:20 | Insight
WFH Humanitarian Aid Program Hosts Workshop on Hemophilia Diagnosis and Management in Türkiye
World Federation of Hemophilia recently shared on Linkedin: “The WFH Humanitarian Aid Program hosted a workshop…
WFH Throwback: WHO 25th Expert Committee Meeting on Selection and Use of Essential Medicines
Aug 10, 2025, 06:59 | Organizations
WFH Throwback: WHO 25th Expert Committee Meeting on Selection and Use of Essential Medicines
World Federation of Hemophilia (WFH) recently shared on LinkedIn: ''Today, the WFH is participating in…
CRH: Hereditary Combined Deficiency of the Vitamin K-Dependent Coagulation Factors
Aug 10, 2025, 06:33 | Science
CRH: Hereditary Combined Deficiency of the Vitamin K-Dependent Coagulation Factors
CRH French Reference Center for Hemophilia, Lyon shared an insightful post on LinkedIn: ''New publication…
HFA Shares Past Experiences and Invites You to Join Australian Bleeding Disorders Conference 2025
Aug 10, 2025, 05:33 | Organizations
HFA Shares Past Experiences and Invites You to Join Australian Bleeding Disorders Conference 2025
Haemophilia Foundation Australia (HFA) shared an inviting post on LinkedIn: ''The Australian Bleeding Disorders Conference…
Sara García Barcenilla: High-Quality Care for People with Hemophilia and Congenital Bleeding Disorders
Aug 10, 2025, 04:39 | Science
Sara García Barcenilla: High-Quality Care for People with Hemophilia and Congenital Bleeding Disorders
Sara García Barcenilla, Nurse in the Thrombosis and Hemostasis Unit, La Paz-IdiPAZ University Hospital, shared…
Safety Profile of Eptacog Beta Confirmed in New Haemophilia Journal Article
Aug 9, 2025, 15:03 | Science
Safety Profile of Eptacog Beta Confirmed in New Haemophilia Journal Article
European Association of Haemophilia and Allied Disorders (EAHAD) shared and insightful post on X: ''Check…
Hemophilia Alliance during Tennessee Hemophilia and Bleeding Disorders Foundation Annual Meeting 2025
Aug 8, 2025, 18:33 | Voices
Hemophilia Alliance during Tennessee Hemophilia and Bleeding Disorders Foundation Annual Meeting 2025
Hemophilia Alliance shared a proud post on LinkedIn: ''Hemophilia Alliance attended the Tennessee Hemophilia and…
Wolfgang Miesbach on Frailty in Hemophilia: New Data Shows 3x Higher Risk
Aug 8, 2025, 11:59 | Insight
Wolfgang Miesbach on Frailty in Hemophilia: New Data Shows 3x Higher Risk
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared a proud post on Linkedin:…
WFH Educational Platform Highlights the Broader Spectrum of Bleeding Disorders
Aug 7, 2025, 04:30 | Insight
WFH Educational Platform Highlights the Broader Spectrum of Bleeding Disorders
The World Federation of Haemophilia (WFH) shared a post on X: “Bleeding Disorders encompass more…
Conquering Factor VIII Inhibitors: New Insights Into the ‘Devil’ of Hemophilia A Treatment Resistance
Aug 6, 2025, 10:47 | Science
Conquering Factor VIII Inhibitors: New Insights Into the ‘Devil’ of Hemophilia A Treatment Resistance
Flora Peyvandi posted on X: ''Exorcizing the devil of factor VIII inhibitors'' “For the Devil is…
Heghine Khachatryan Acknowledges WFH Medical Board’s Insightful Lectures on Bleeding Disorders
Aug 6, 2025, 01:59 | Insight
Heghine Khachatryan Acknowledges WFH Medical Board’s Insightful Lectures on Bleeding Disorders
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, has shared…
WFH Humanitarian Aid Program Brings Hope to Cambodian Families with Hemophilia
Aug 6, 2025, 01:35 | Insight
WFH Humanitarian Aid Program Brings Hope to Cambodian Families with Hemophilia
The World Federation of Haemophilia (WFH) shared a  post on X: “Thanks to the treatment…
Heghine Khachatryan: Honored to Be Part of The WFH Regional Workshop 2025
Aug 5, 2025, 17:59 | Voices
Heghine Khachatryan: Honored to Be Part of The WFH Regional Workshop 2025
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Personalized Perioperative Management in Hemophilia: Key Insights from Heghine Khachatryan
Aug 5, 2025, 02:28 | Insight
Personalized Perioperative Management in Hemophilia: Key Insights from Heghine Khachatryan
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Irish Haemophilia Society Hosts Info Day for Parents of Young Children on Sep 6
Aug 5, 2025, 00:27 | Insight
Irish Haemophilia Society Hosts Info Day for Parents of Young Children on Sep 6
The Irish Haemophilia Society shared a post on X: “Taking place in the Grand Hotel…
Heghine Khachatryan Shares Highlights from WFH on PROBE and WBDR Impact
Aug 5, 2025, 00:15 | Insight
Heghine Khachatryan Shares Highlights from WFH on PROBE and WBDR Impact
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Thomas Reiser Invites You to Join the ISTH Academy Industry Portal: Be at the Forefront
Aug 4, 2025, 15:24 | Organizations
Thomas Reiser Invites You to Join the ISTH Academy Industry Portal: Be at the Forefront
Thomas Reiser, Executive Director of International Society on Thrombosis and Haemostasis (ISTH), shared an invitation,…
Genotype–Phenotype Understanding in Hemophilia B: Commentary on Factor IX Missense Variants
Aug 4, 2025, 06:00 | Insight
Genotype–Phenotype Understanding in Hemophilia B: Commentary on Factor IX Missense Variants
Ben Samelson-Jones, Assistant Professor of Pediatrics (Hematology) at the Children's Hospital of Philadelphia, posted on…
National Health Center Week – Recognizing the Vital Role of HTCs in Specialized Care
Aug 4, 2025, 05:47 | Insight
National Health Center Week – Recognizing the Vital Role of HTCs in Specialized Care
National Bleeding Disorders Foundation (NBDF) shared a post on X: “This week we celebrate National…
Women with Hemophilia Finally Heard: “DISMISSED” Premieres August 22
Aug 4, 2025, 05:33 | Insight
Women with Hemophilia Finally Heard: “DISMISSED” Premieres August 22
Patrick James Lynch, the CEO of Believe Limited, recently posted on Linkedin: “Women with hemophilia have…
Women with Inherited Bleeding Disorders: Overcoming Diagnostic and Clinical Challenge
Aug 4, 2025, 04:58 | Insight
Women with Inherited Bleeding Disorders: Overcoming Diagnostic and Clinical Challenge
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently shared…
Nathan Connell: What Is The "Mild Equivalent" For Hemophilia A That Is Achieved While on Emicizumab?
Aug 3, 2025, 17:48 | Science
Nathan Connell: What Is The "Mild Equivalent" For Hemophilia A That Is Achieved While on Emicizumab?
Nathan Connell, MD, MPH, FACP, Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital,…
Cedric Hermans on the Inspiring Impact of the WFH Humanitarian Aid Program Worldwide
Aug 3, 2025, 03:54 | Science
Cedric Hermans on the Inspiring Impact of the WFH Humanitarian Aid Program Worldwide
Cedric Hermans, Head of Haemophilia Centre at the Cliniques Universitaires Saint-Luc in Brussels, recently shared…
WFH Workshop Highlights: Advancing ITI Success and FVIII Optimization in Hemophilia Care
Aug 2, 2025, 19:15 | Insight
WFH Workshop Highlights: Advancing ITI Success and FVIII Optimization in Hemophilia Care
Heghine Khachatryan, Head of Hemophilia and Thrombosis Center, Yeolyan Hematology and Oncology Center, recently posted…
Chromogenic Assays Underused in Females with Hemophilia A
Aug 2, 2025, 16:50 | Insight
Chromogenic Assays Underused in Females with Hemophilia A
The World Federation of Hemophilia (WFH) shared a post on X: ”A global survey of…
WFH in Madagascar: Advancing National Bleeding Disorder Guidelines and Governance
Aug 2, 2025, 04:14 | Insight
WFH in Madagascar: Advancing National Bleeding Disorder Guidelines and Governance
The World Federation of Hemophilia (WFH) shared a post on X: ”The WFH recently visited…
Cesar Garrido: Continued WFH Support Secured in Ecuador
Aug 2, 2025, 04:03 | Insight
Cesar Garrido: Continued WFH Support Secured in Ecuador
Cesar Garrido, The President of World Federation of Hemophilia (WFH), recently posted on X: “We…
Glenn Pierce on Overcoming Barriers to Gene Therapy in Hemophilia Care
Aug 2, 2025, 03:40 | Insight
Glenn Pierce on Overcoming Barriers to Gene Therapy in Hemophilia Care
Glenn Pierce,Vice President Medical of WFH and member of the WFH USA Board of Directors…
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