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Hemophilia

2025 WFH Guidelines․ Advancing Safe and Informed AAV Gene Therapy Practice
Nov 12, 2025, 10:53 | Organizations
2025 WFH Guidelines․ Advancing Safe and Informed AAV Gene Therapy Practice
World Federation of Hemophilia shared on X: "The WFH Guidelines for the Management of Hemophilia:…
Juan Andrés De Pablo Moreno and Colleagues on Therapeutic FVIII Administration in Hemarthrosis in Mice
Nov 12, 2025, 04:50 | Science
Juan Andrés De Pablo Moreno and Colleagues on Therapeutic FVIII Administration in Hemarthrosis in Mice
Journal of Thrombosis and Haemostasis (JTH) shared on LinkedIn: ''Defective lymphangiogenesis and iron removal after…
Michael Makris on FDA Approval of GEVV-HEM Gene Therapy for Hemophilia
Nov 12, 2025, 04:42 | Drugs
Michael Makris on FDA Approval of GEVV-HEM Gene Therapy for Hemophilia
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of…
Dea Rojus Reflects on 4th International Conference on Hemophilia and Rare Bleeding Disorders
Nov 12, 2025, 04:38 | Voices
Dea Rojus Reflects on 4th International Conference on Hemophilia and Rare Bleeding Disorders
Dea Rojus, MBBS Student at University Of Sharjah, shared on LinkedIn: ''I recently attended the…
Shubham Khandve: Cell and Gene Therapy is No Longer the Future
Nov 8, 2025, 01:40 | Innovation
Shubham Khandve: Cell and Gene Therapy is No Longer the Future
Shubham Khandve, Manager at Spherical Insights LLP, shared on LinkedIn: ”Cell and gene therapy is…
Insights on Rebalancing Agents in Hemophilia from Cédric Hermans and Quentin Van Thillo
Nov 7, 2025, 03:20 | Science
Insights on Rebalancing Agents in Hemophilia from Cédric Hermans and Quentin Van Thillo
World Federation of Hemophilia (WFH) shared on LinkedIn: ''Rebalancing agents are reshaping hemophilia treatment—but key…
Andreas Tiede: Treating our First Hemophilia B Patient with Gene Therapy
Nov 7, 2025, 01:35 | Innovation
Andreas Tiede: Treating our First Hemophilia B Patient with Gene Therapy
Andreas Tiede, Professor in the Department of Hematology, Hemostasis, Oncology and Stem Cell Transplantation at…
Hemophilia of Georgia at the Southeast Region Hemophilia Network 2025 Meeting
Nov 7, 2025, 01:35 | Organizations
Hemophilia of Georgia at the Southeast Region Hemophilia Network 2025 Meeting
Hemophilia of Georgia shared on LinkedIn: ”Hemophilia of Georgia staff represented our organization at the Southeast…
HTC Twinning Between Semarang and Utrecht Concludes with Success
Nov 6, 2025, 04:53 | Organizations
HTC Twinning Between Semarang and Utrecht Concludes with Success
World Federation of Hemophilia shared on LinkedIn: ”The Hemophilia Treatment Centre (HTC) twins of Semarang (Indonesia) and…
Maria Elisa Mancuso Reflects on 2025 Annual Congress of the Italian Association of Hemophilia Centres
Nov 3, 2025, 06:57 | Voices
Maria Elisa Mancuso Reflects on 2025 Annual Congress of the Italian Association of Hemophilia Centres
Maria Elisa Mancuso, Senior Hematology Consultant at Humanitas Research Hospital, shared on LinkedIn: ''On October…
European Haemophilia Consortium: New Technologies Conference 2025
Nov 2, 2025, 14:12 | Organizations
European Haemophilia Consortium: New Technologies Conference 2025
European Haemophilia Consortium (EHC) posted on LinkedIn: ”The EHC New Technologies Conference 2025 is now underway in…
Michael Makris Shares 2024 Annual Global Survey from the WFH
Nov 1, 2025, 17:19 | Insight
Michael Makris Shares 2024 Annual Global Survey from the WFH
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of…
World Federation of Hemophilia: WFH Annual Global Survey 2024 Published
Nov 1, 2025, 02:26 | Organizations
World Federation of Hemophilia: WFH Annual Global Survey 2024 Published
World Federation of Hemophilia shared on LinkedIn: ”Just published: the WFH Annual Global Survey 2024!…
Brian O’Mahony Discusses Hemophilia Progress and Challenges in Kazakhstan with WFH
Oct 30, 2025, 07:53 | Blog
Brian O’Mahony Discusses Hemophilia Progress and Challenges in Kazakhstan with WFH
  Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC,…
Michael Makris on Biomarin's Decision to Divest Roctavian
Oct 30, 2025, 03:53 | Insight
Michael Makris on Biomarin's Decision to Divest Roctavian
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of…
World Federation of Hemophilia: Women’s Care in Bleeding Disorders
Oct 29, 2025, 06:52 | Organizations
World Federation of Hemophilia: Women’s Care in Bleeding Disorders
World Federation of Hemophilia shared on LinkedIn: ”At the 14th WFH Global Forum, experts from…
Ilja Oomen on Immune Tolerance Induction Failure and Hemophilia A
Oct 29, 2025, 01:36 | Science
Ilja Oomen on Immune Tolerance Induction Failure and Hemophilia A
Ilja Oomen, PhD candidate in Pediatric Hematology at AMC - Academic Medical Center, shared on…
Fadwa Said Abdelazim: Accurate Diagnosis Is the Foundation of Hematology Care
Oct 25, 2025, 07:44 | Insight
Fadwa Said Abdelazim: Accurate Diagnosis Is the Foundation of Hematology Care
Fadwa Said Abdelazim, Consultant of Hematopathology and Specialist in Hematology at the University of Teaching…
Melissa Glasner on Integration of Gene Therapy Into Hemophilia Care
Oct 24, 2025, 12:03 | Science
Melissa Glasner on Integration of Gene Therapy Into Hemophilia Care
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, reposted from  on LinkedIn: ''Thank you…
Stanislas Conseiller: Every Second, the Coagulation Cascade Protects Us
Oct 24, 2025, 10:20 | Insight
Stanislas Conseiller: Every Second, the Coagulation Cascade Protects Us
Stanislas Conseiller, Philanthropy and Fundraising Development Officer at the Paris-Saclay School of Medicine, shared a…
HFA Announces 2025 Scholarship Winner: Ivan Diaz
Oct 23, 2025, 09:55 | Organizations
HFA Announces 2025 Scholarship Winner: Ivan Diaz
Hemophilia Federation of America (HFA) posted on LinkedIn: ”Congratulations to our 2025 HFA Scholarship Winner —…
Haemophilia Associations of Mauritius and Lesotho Strengthen Collaboration
Oct 20, 2025, 06:24 | Organizations
Haemophilia Associations of Mauritius and Lesotho Strengthen Collaboration
WFH (World Federation of Hemophilia) shared on LinkedIn: ”This September, the third year of twinning…
Gene Therapy Data at Risk - WFH Advocates for Global Preservation Through GTR
Oct 18, 2025, 11:15 | Insight
Gene Therapy Data at Risk - WFH Advocates for Global Preservation Through GTR
  World Federation of Hemophilia / Fédération mondiale de l'hémophilie posted on LinkedIn: '' Nearly…
Salome Mekhuzla Invites You to Join WHO Essential Medicines List 2025 Updates Webinar on Hemophilia and VWD
Oct 17, 2025, 08:37 | Insight
Salome Mekhuzla Invites You to Join WHO Essential Medicines List 2025 Updates Webinar on Hemophilia and VWD
Salome Mekhuzla, Director of Global Development at the World Federation of Hemophilia, reposted from WFH…
WFH Advocates for Hemophilia Care Access at WHO EMRO Meeting in Cairo
Oct 17, 2025, 05:08 | Organizations
WFH Advocates for Hemophilia Care Access at WHO EMRO Meeting in Cairo
  World Federation of Hemophilia / Fédération mondiale de l'hémophilie posted on LinkedIn: ''During the…
Michael Makris Invites You to The Research Recap on FEIBA Use in Patients on Emicizumab
Oct 16, 2025, 04:43 | Science
Michael Makris Invites You to The Research Recap on FEIBA Use in Patients on Emicizumab
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of…
Cedric Hermans and Glenn Pierce On The Essential Role of A Positive Reinvestment Cycle in Hemophilia
Oct 16, 2025, 04:35 | Science
Cedric Hermans and Glenn Pierce On The Essential Role of A Positive Reinvestment Cycle in Hemophilia
Cedric Hermans, Head of Haemophilia Centre at the Cliniques Universitaires Saint-Luc in Brussels, shared on…
Nita Radhakrishnan Presented The Collaborative Data on Hemophilia from Indian Centers at MENA Conference 2025
Oct 15, 2025, 06:01 | Insight
Nita Radhakrishnan Presented The Collaborative Data on Hemophilia from Indian Centers at MENA Conference 2025
Nita Radhakrishnan, Additional Professor and HOD, Department of Pediatric Hematology-Oncology, reposted from MENA Conference on…
Pierre Grès: Honored to Share With You My Recent Award for Best Oral Presentation And My Experiences at The Congress of SFTH
Oct 14, 2025, 06:05 | Voices
Pierre Grès: Honored to Share With You My Recent Award for Best Oral Presentation And My Experiences at The Congress of SFTH
Pierre Grès, PHD Student at LVTS - Laboratory for Vascular Translational Science, shared on LinkedIn:…
Khalid Habaybia: This Conference Provided an Exceptional Opportunity to Share Knowledge and Exchange Best Practices
Oct 13, 2025, 04:46 | Organizations
Khalid Habaybia: This Conference Provided an Exceptional Opportunity to Share Knowledge and Exchange Best Practices
Khalid Habaybia, Unit Manager at Tawam Hospital, shared a post on LinkedIn: ”4th International Hemophilia…
WFH: Women and Girls with Bleeding Disorders
Oct 12, 2025, 11:26 | Insight
WFH: Women and Girls with Bleeding Disorders
World Federation of Hemophilia (WFH) shared on LinkedIn: ”Did You Know: Women and girls with Bleeding Disorders…
Deborah Wild: Thrilled to See GeneVentiv Selected for The NIH NHLBI Catalyze Program
Oct 11, 2025, 08:48 | Science
Deborah Wild: Thrilled to See GeneVentiv Selected for The NIH NHLBI Catalyze Program
Deborah Wild, CEO, Executive Board Member, and Leadership Coach, reposted from Damon Race on LinkedIn:…
ECTH 2025: Jan Blatný on Current Management of Hemophilia in Children
Oct 11, 2025, 08:44 | Organizations
ECTH 2025: Jan Blatný on Current Management of Hemophilia in Children
European Congress on Thrombosis and Haemostasis (ECTH) posted on LinkedIn: ”We're overjoyed to welcome Jan Blatný to…
WHO Expands Essential Medicines List for Hemophilia and VWD
Oct 9, 2025, 13:12 | Organizations
WHO Expands Essential Medicines List for Hemophilia and VWD
World Federation of Hemophilia shared a post on LinkedIn: “WFH advocacy made history: the WHO…
WHO Adds Rare Disease Treatments to the Essential Medicines List
Oct 9, 2025, 12:54 | Organizations
WHO Adds Rare Disease Treatments to the Essential Medicines List
Salome Mekhuzla, Director of Global Development at the World Federation of Hemophilia, reposted from Rare…
Alexandre Theron Shares The Proposals from SFTH on the Implementation of Prophylactic Treatments in Children With Hemophilia
Oct 9, 2025, 06:45 | Science
Alexandre Theron Shares The Proposals from SFTH on the Implementation of Prophylactic Treatments in Children With Hemophilia
Alexandre Theron, Head of the Pediatric Bone Marrow Transplant and Cell Therapy Unit at CHU…
EAHAD Signs Memorandum of Understanding with WFH To Empower The Global Bleeding Disorders Community
Oct 7, 2025, 08:30 | Organizations
EAHAD Signs Memorandum of Understanding with WFH To Empower The Global Bleeding Disorders Community
  European Association for Haemophilia and Allied Disorders (EAHAD) posted on LinkedIn: ''We are pleased…
Nita Radhakrishnan to Present The First Indian Collaborative Data on Hemophilia from the WBDR Registry
Oct 7, 2025, 04:20 | Insight
Nita Radhakrishnan to Present The First Indian Collaborative Data on Hemophilia from the WBDR Registry
Nita Radhakrishnan, Additional Professor and HOD, Department of Pediatric Hematology-Oncology, reposted from MENA Conference on LinkedIn:…
Nathan Connell: Interesting Data in The Management of HAC Has Been Published in Blood from Benoit Guillet and Colleagues
Oct 7, 2025, 03:56 | Science
Nathan Connell: Interesting Data in The Management of HAC Has Been Published in Blood from Benoit Guillet and Colleagues
Nathan Connell, Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital, shared on LinkedIn:…
New Insights On Pre-Existing AAV5 Abs in Haemophilia B Gene Therapy
Oct 6, 2025, 03:48 | Science
New Insights On Pre-Existing AAV5 Abs in Haemophilia B Gene Therapy
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared on LinkedIn: ''Exited to share…
Gianluigi Pasta On Cutting-Edge Cartilage Engineering for Bleeding Disorders Community at EHC 2025
Oct 6, 2025, 03:20 | Insight
Gianluigi Pasta On Cutting-Edge Cartilage Engineering for Bleeding Disorders Community at EHC 2025
The European Haemophilia Consortium (EHC) shared on X: ''Advances in orthopaedics at EHC 2025! Gianluigi…
Nita Radhakrishnan and Colleagues on Tertiary Prophylaxis with Extended Half-life Factor in LMIC Settings
Oct 5, 2025, 12:43 | Science
Nita Radhakrishnan and Colleagues on Tertiary Prophylaxis with Extended Half-life Factor in LMIC Settings
Nita Radhakrishnan, Additional Professor and HOD, Department of Pediatric Hematology-Oncology, shared on X: ''Tertiary prophylaxis…
Miguel Crato: I Feel I Must Always Be Strong, But That Wears Me Down
Oct 5, 2025, 12:29 | Voices
Miguel Crato: I Feel I Must Always Be Strong, But That Wears Me Down
The European Haemophilia Consortium (EHC) shared on X: '''I feel I must always be strong,…
Maria Elisa Mancuso: During Day 2 of the Annual EHC Conference We Discussed Very Rare Bleeding Disorders!
Oct 5, 2025, 08:32 | Insight
Maria Elisa Mancuso: During Day 2 of the Annual EHC Conference We Discussed Very Rare Bleeding Disorders!
Maria Elisa Mancuso, Senior Hematology Consultant at Humanitas Research Hospital, shared on LinkedIn: ''During Day…
Nathan Connell: A Groundbreaking Study Has Just Been Published in Blood, From Vincent Muczynski and Colleagues
Oct 5, 2025, 08:11 | Science
Nathan Connell: A Groundbreaking Study Has Just Been Published in Blood, From Vincent Muczynski and Colleagues
Nathan Connell, Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital, shared on LinkedIn:…
Rucha Patil: I Had An Opportunity to Deliver a Lecture on A Topic Close to My Heart at EHA 2025
Oct 5, 2025, 07:56 | Insight
Rucha Patil: I Had An Opportunity to Deliver a Lecture on A Topic Close to My Heart at EHA 2025
Rucha Patil, Scientist at Department of Haemostasis and Thrombosis, ICMR- National Institute of Immunohaematology, shared…
Maria Elisa Mancuso: A Real Pleasure to Participate in The Policy Roundtable on Future of Haemophilia Care in Egypt
Oct 3, 2025, 14:41 | Voices
Maria Elisa Mancuso: A Real Pleasure to Participate in The Policy Roundtable on Future of Haemophilia Care in Egypt
Maria Elisa Mancuso, Senior Hematology Consultant at Humanitas Research Hospital, shared on LinkedIn: ''It has…
Christian Pfrepper and Team's Letter on Emicizumab Plasma Concentration Measurment in EDTA plasma
Oct 3, 2025, 12:40 | Science
Christian Pfrepper and Team's Letter on Emicizumab Plasma Concentration Measurment in EDTA plasma
RPTH Journal shared on LinkedIn: ''It's mail day here at RPTH Journal Check out this…
FVIII Mimetics in Hemophilia: Comparing Emicizumab, Mim8, and NXT007 – Key Insights from BIC Meeting
Oct 2, 2025, 15:41 | Science
FVIII Mimetics in Hemophilia: Comparing Emicizumab, Mim8, and NXT007 – Key Insights from BIC Meeting
  Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, posted on LinkedIn: ''FVIII mimetics…
Roberta Gualtierotti: We are excited to share GAJA! Towards More Accessible, Patient-Empowering Care in Hemophilia
Oct 1, 2025, 02:00 | Science
Roberta Gualtierotti: We are excited to share GAJA! Towards More Accessible, Patient-Empowering Care in Hemophilia
Roberta Gualtierotti, Associate Professor of Internal Medicine at University of Milan, shared on LinkedIn: ''Timely…
Wolfgang Miesbach: Jan Astermark at the BIC 2025 Presented Potentially the First Oral FVIII Mimetic Treatment for Hemophilia A
Sep 30, 2025, 11:43 | Insight
Wolfgang Miesbach: Jan Astermark at the BIC 2025 Presented Potentially the First Oral FVIII Mimetic Treatment for Hemophilia A
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared on Linkedin: ''For decades, oral…
Michael Makris: NovoNordisk Has Applied to the FDA for Approval of Mim8
Sep 29, 2025, 21:11 | Drugs
Michael Makris: NovoNordisk Has Applied to the FDA for Approval of Mim8
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, UK. Editor-in-Chief…
Xue Feng Presented Her Work on AAV Vector–Based Gene Therapy
Sep 29, 2025, 16:19 | Insight
Xue Feng Presented Her Work on AAV Vector–Based Gene Therapy
Mediamedic shared a post on LinkedIn: "ISEH 2025 | Professor Xue Feng: AAV Gene Therapy…
Nathan Connell on Breakthrough Gene Therapy Advancing Care for People with Hemophilia
Sep 29, 2025, 04:51 | Voices
Nathan Connell on Breakthrough Gene Therapy Advancing Care for People with Hemophilia
Vasculearn Network shared on LinkedIn: ''A major step forward for people living with hemophilia, and…
Wolfgang Miesbach on the Bi8 Study: A Novel FVIII-Mimetic Antibody Gene Therapy for Haemophilia A
Sep 29, 2025, 04:42 | Science
Wolfgang Miesbach on the Bi8 Study: A Novel FVIII-Mimetic Antibody Gene Therapy for Haemophilia A
Wolfgang Miesbach, Professor of Medicine at Frankfurt University Hospital, shared on LinkedIn: ''The Bi8 Study…
Brian O Mahony at HABIT Summit 2025 Showcases Hemophilia Community Across Latin America
Sep 27, 2025, 12:43 | Insight
Brian O Mahony at HABIT Summit 2025 Showcases Hemophilia Community Across Latin America
Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC, shared…
Leonard Valentino on Hemophilia Care: Dr Keith Hoots Reflects on the History of HIV and AIDS
Sep 27, 2025, 11:09 | Voices
Leonard Valentino on Hemophilia Care: Dr Keith Hoots Reflects on the History of HIV and AIDS
Leonard Valentino, Former President and CEO of NBDF, President of WFH USA, shared on LinkedIn:…
Dr. Emna Gouider Belhadjali at 4th International Conference on Hemophilia and Rare Bleeding Disorders
Sep 26, 2025, 14:39 | Insight
Dr. Emna Gouider Belhadjali at 4th International Conference on Hemophilia and Rare Bleeding Disorders
MENA Conference shared a post on LinkedIn: "How is Glanzmann’s thrombasthenia being addressed in North Africa?…
Sundar Selvaraj - A Scientist Advancing Hemophilia A Research While Living with Severe FXIII Deficiency and VWD 2M
Sep 26, 2025, 10:44 | Voices
Sundar Selvaraj - A Scientist Advancing Hemophilia A Research While Living with Severe FXIII Deficiency and VWD 2M
National Bleeding Disorders Foundation (NBDF) shared on LinkedIn: ''Researcher. Advocate. Dad. Sundar Selvaraj brings a…
César Garrido Opened WFH Global Summit Sharing His Family's Experience With Hemophilia
Sep 25, 2025, 22:16 | Organizations
César Garrido Opened WFH Global Summit Sharing His Family's Experience With Hemophilia
World Federation of Hemophilia (WFH) shared on LinkedIn: ''Day 1 of the WFH Global Summit…
John Fanikos Praises Nathan Connell’s Efforts on Hemophilia Gene Therapy in Boston
Sep 24, 2025, 11:05 | Insight
John Fanikos Praises Nathan Connell’s Efforts on Hemophilia Gene Therapy in Boston
John Fanikos, Director of Strategic Initiatives at North American Thrombosis Forum, shared a post on…
Bleeding Disorders and Mental Health․ From Stigma to Support
Sep 23, 2025, 07:05 | Organizations
Bleeding Disorders and Mental Health․ From Stigma to Support
EHC Haemophilia (The European Haemophilia Consortium) has shared a post on X: ”Powerful conversations today…
WHO Updates Essential Medicines List for Hemophilia
Sep 23, 2025, 06:42 | Organizations
WHO Updates Essential Medicines List for Hemophilia
Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief of RPTH…
Survey on Rare Coagulation Factor Deficiencies: Share Your Insights
Sep 23, 2025, 06:37 | Insight
Survey on Rare Coagulation Factor Deficiencies: Share Your Insights
European Association for Haemophilia and Allied Disorders (EAHAD) shared a post on LinkedIn: "Reminder for healthcare…
Hemophilia Care in Syria: WFH Helps 10-Year-Old Gadir Live Pain-Free
Sep 21, 2025, 14:39 | Organizations
Hemophilia Care in Syria: WFH Helps 10-Year-Old Gadir Live Pain-Free
  World Federation of Hemophilia (WFH) posted on LinkedIn: ''For years, 10-year-old Gadir from Syria…
WFH: Hemophilia Innovations from Factor Therapy to Gene Therapy
Sep 21, 2025, 07:47 | Organizations
WFH: Hemophilia Innovations from Factor Therapy to Gene Therapy
World Federation of Hemophilia (WFH) shared on X: ”Hemophilia has led rare disease innovation—from factor…
William McKeown: 3 Days of Solidarity With My VWD Brothers and Sisters
Sep 20, 2025, 14:51 | Blog
William McKeown: 3 Days of Solidarity With My VWD Brothers and Sisters
  William McKeown, Geriatrician at National Hemophilia Centre, posted on X: ''Excited to be off…
Novo Nordisk Haemophilia Foundation Partners Drive Global Progress in Low-Dose Prophylaxis and Carrier Awareness
Sep 20, 2025, 13:58 | Organizations
Novo Nordisk Haemophilia Foundation Partners Drive Global Progress in Low-Dose Prophylaxis and Carrier Awareness
Novo Nordisk Haemophilia Foundation has shared a post on LinkedIn: “NNHF Partners Highlight Meeting We…
EAHAD Launches E-Learning Module on Non-Surgical Management of Hemophilic Arthropathy
Sep 18, 2025, 09:43 | Organizations
EAHAD Launches E-Learning Module on Non-Surgical Management of Hemophilic Arthropathy
  European Association for Haemophilia and Allied Disorders (EAHAD) posted on X: ''Watch the latest…
WFH Vice President Glenn Pierce on Slow Uptake and Industry Shifts in Hemophilia Gene Therapy
Sep 18, 2025, 09:18 | Voices
WFH Vice President Glenn Pierce on Slow Uptake and Industry Shifts in Hemophilia Gene Therapy
The World Federation of Hemophilia (WFH) posted on LinkedIn: ”WFH Vice President, Medical, Glenn Pierce,…
Paul Batty: The Hepatic Odyssey of AAV Gene Therapy in Hemophilia
Sep 18, 2025, 09:15 | Science
Paul Batty: The Hepatic Odyssey of AAV Gene Therapy in Hemophilia
Paul Batty, Associate Professor at University College London and Honorary Consultant in Haemostasis and Thrombosis…
Sep 18, 2025, 07:02 | Voices
Abdul Mannan: Embracing Failure as a Teacher in the Journey Through Medicine
Abdul Mannan, Consultant Haematologist at Betsi Cadwaladr University Health Board, shared on LinkedIn: “My journey in…
M Joseph John: Joint Health in Hemophilic Arthropathy
Sep 17, 2025, 09:52 | Science
M Joseph John: Joint Health in Hemophilic Arthropathy
The World Federation of Hemophilia (WFH) shared on LinkedIn: ''Can hands-on therapy boost outcomes? A…
Advance Bleeding Disorders Care: Submit Your Abstract for WFH 2026 by December 1
Sep 16, 2025, 08:36 | Organizations
Advance Bleeding Disorders Care: Submit Your Abstract for WFH 2026 by December 1
World Federation of Hemophilia (WFH) shared a post on LinkedIn: “Abstract submissions for both oral…
Nathan Connell Reflects on the Impact of COCs on VWD Patients Compared to Healthy People
Sep 15, 2025, 16:24 | Science
Nathan Connell Reflects on the Impact of COCs on VWD Patients Compared to Healthy People
Nathan Connell, Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital, shared on LinkedIn: ''Navigating…
Subcutaneous Prophylaxis for Hemophilia (With or Without Inhibitors) – Novo Nordisk and HFA Webinar
Sep 15, 2025, 08:26 | Organizations
Subcutaneous Prophylaxis for Hemophilia (With or Without Inhibitors) – Novo Nordisk and HFA Webinar
Hemophilia Federation of America (HFA) has shared a post on LinkedIn: “Join Novo Nordisk and…
Brian O Mahony Shares Amit Nathwani's Research from BIC 2025 on FVII and FIX Gene Therapies for Hemophilia
Sep 14, 2025, 22:03 | Insight
Brian O Mahony Shares Amit Nathwani's Research from BIC 2025 on FVII and FIX Gene Therapies for Hemophilia
Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC, shared…
Flora Peyvandi Closed BIC 2025 Thanking Glenn Pierce and Brian O' Mahony for Reminding Us of Our Impact on Patients
Sep 14, 2025, 18:21 | Insight
Flora Peyvandi Closed BIC 2025 Thanking Glenn Pierce and Brian O' Mahony for Reminding Us of Our Impact on Patients
Roberta Palla, post doctoral research fellow at the University of Milan, shared on X: ''Flora…
Flora Peyvandi: Excellent Presentation of ⁦Brian O' Mahony at BIC 2025 on Novel Drugs in Hemophilia
Sep 14, 2025, 15:50 | Insight
Flora Peyvandi: Excellent Presentation of ⁦Brian O' Mahony at BIC 2025 on Novel Drugs in Hemophilia
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
F8 Gene Variants Affect Desmopressin Response in Female Hemophilia A Carriers
Sep 14, 2025, 04:16 | Science
F8 Gene Variants Affect Desmopressin Response in Female Hemophilia A Carriers
Rare Disease Advisor has shared a post on LinkedIn: “The pharmacokinetic response of factor VIII…
Early Diagnosis and Care: Giving Children with Haemophilia the Chance to Thrive
Sep 13, 2025, 13:44 | Organizations
Early Diagnosis and Care: Giving Children with Haemophilia the Chance to Thrive
Kenya Haemophilia Association shared a post on LinkedIn. "Children with haemophilia can live healthy, happy, and…
Michael Makris on Rising Malignancy Concerns After Hemophilia Gene Therapy: Key Challenges Highlighted in NEJM
Sep 13, 2025, 13:35 | Science
Michael Makris on Rising Malignancy Concerns After Hemophilia Gene Therapy: Key Challenges Highlighted in NEJM
   Michael Makris, Emeritus Professor of Haemostasis and Thrombosis at the University of Sheffield, Editor-in-Chief…
Brian O Mahony on 5-Year Roctavian Gene Therapy Data from BIC2025
Sep 13, 2025, 13:34 | Voices
Brian O Mahony on 5-Year Roctavian Gene Therapy Data from BIC2025
Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC, shared…
Peter Lenting at BIC 2025: Fantastic Lecture on FVIII Mimetics
Sep 13, 2025, 10:23 | Insight
Peter Lenting at BIC 2025: Fantastic Lecture on FVIII Mimetics
HITh lab Inserm shared on LinkedIn: ''The HITh lab Inserm is at BIC 2025 in…
Flora Peyvandi Shares BIC 2025 Coverage of Hemostasis & Thrombosis: 10 Posts Not To Miss
Sep 13, 2025, 10:20 | Insight
Flora Peyvandi Shares BIC 2025 Coverage of Hemostasis & Thrombosis: 10 Posts Not To Miss
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
WFH and Armenia: A Transformative Partnership for Hemophilia Patients Since 2018
Sep 12, 2025, 15:57 | Organizations
WFH and Armenia: A Transformative Partnership for Hemophilia Patients Since 2018
World Federation of Hemophilia (WFH) shared on LinkedIn: ''Years ago in Armenia, people with hemophilia…
Mutala’s Life is Transformed: Donate to Gift a Chance to Thousands of Children
Sep 12, 2025, 07:53 | Organizations
Mutala’s Life is Transformed: Donate to Gift a Chance to Thousands of Children
World Federation of Hemophilia (WFH) shared on LinkedIn: ''From pain to play! Mutala’s life transformed…
The True Price of Gene Therapy: Breaking Down Beqvez’s $3.5M Cost and What Really Drives It
Sep 11, 2025, 15:42 | Insight
The True Price of Gene Therapy: Breaking Down Beqvez’s $3.5M Cost and What Really Drives It
Scott Jeffers, Chief Technology Officer at GenSight Biologics, has shared a post on LinkedIn: "The…
WFH & EAHAD Host Regional Workshop on Shared Decision-Making in Hemophilia in Prague
Sep 11, 2025, 15:31 | Organizations
WFH & EAHAD Host Regional Workshop on Shared Decision-Making in Hemophilia in Prague
The World Federation of Hemophilia (WFH) shared on LinkedIn: "This weekend, the WFH & European…
Marstacimab Shows 93% Reduction in Treated Bleeds in its Phase 3 Trial
Sep 11, 2025, 13:37 | Drugs
Marstacimab Shows 93% Reduction in Treated Bleeds in its Phase 3 Trial
National Bleeding Disorders Foundation shared on LinkedIn: ''Promising news for the hemophilia community! Pfizer’s HYMPAVZI™…
WHO Updates Essential Medicines List for Hemophilia and VWD: Louise Bannon Applauds Global Hematology Community’s Achievement
Sep 10, 2025, 15:02 | Drugs
WHO Updates Essential Medicines List for Hemophilia and VWD: Louise Bannon Applauds Global Hematology Community’s Achievement
Louise Bannon, Director of Membership, Marketing and External Relations of ISTH, shared a post on…
Iron Deficiency in Mild to Moderate Bleeding Disorders․ Key Insights from Prof. Flora Peyvandi
Sep 10, 2025, 08:06 | Science
Iron Deficiency in Mild to Moderate Bleeding Disorders․ Key Insights from Prof. Flora Peyvandi
Flora Peyvandi, Professor of Internal Medicine-Hemostasis and Thrombosis Unit, University of Milan, former President of…
From Weight-Based to PK-Tailored Prophylaxis: A New Shared Decision-Making Approach in Hemophilia Care
Sep 10, 2025, 08:03 | Science
From Weight-Based to PK-Tailored Prophylaxis: A New Shared Decision-Making Approach in Hemophilia Care
World Federation of Hemophilia shared a post on X: “Complementing the WFH Shared decision-making (SDM)…
Hemophilia Federation of America Launches ‘Blood Brothers’ Podcast for Men With Bleeding Disorders
Sep 9, 2025, 08:07 | Voices
Hemophilia Federation of America Launches ‘Blood Brothers’ Podcast for Men With Bleeding Disorders
  Hemophilia Federation of America (HFA) posted on X: ''Calling all Blood Brothers Are you…
European Haemophilia Consortium Marks World PT Day: Physiotherapy Empowers People with Bleeding Disorders
Sep 8, 2025, 14:26 | Voices
European Haemophilia Consortium Marks World PT Day: Physiotherapy Empowers People with Bleeding Disorders
  The European Haemophilia Consortium (EHC Haemophilia) posted on X: ''This World PT Day, we…
French Reference Center for Hemophilia Presented at The 22nd Turkish Hemophilia Congress
Sep 8, 2025, 07:00 | Voices
French Reference Center for Hemophilia Presented at The 22nd Turkish Hemophilia Congress
CRH French Reference Center for Hemophilia Lyon shared on LinkedIn: ''At the 22nd Turkish Hemophilia…
Brian O Mahony: WHO Updates 2025 Essential Medicines List Following WFH Advocacy
Sep 7, 2025, 14:09 | Organizations
Brian O Mahony: WHO Updates 2025 Essential Medicines List Following WFH Advocacy
Brian O Mahony, CEO of Irish Haemophilia Society, Former President of WFH and EHC, shared a…
WFH eLearning Platform Explains the Different Types of Fibrinogen Disorders
Sep 7, 2025, 14:06 | Organizations
WFH eLearning Platform Explains the Different Types of Fibrinogen Disorders
World Federation of Hemophilia shared a post on LinkedIn: “Thanks for joining our poll yesterday!…
The World Federation of Hemophilia Celebrates WHO Approval of Essential Medicines List Updates
Sep 7, 2025, 14:03 | Organizations
The World Federation of Hemophilia Celebrates WHO Approval of Essential Medicines List Updates
  The World Federation of Hemophilia (WFH) posted on X: ''The global Bleeding Disorders community…
The WFH Congress 2026 Program-at-a-Glance is Here!
Sep 6, 2025, 15:33 | Organizations
The WFH Congress 2026 Program-at-a-Glance is Here!
World Federation of Hemophilia (WFH) shared on LinkedIn: ''The WFH Congress 2026 Program-at-a-Glance is here!…
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